Not sure if any of you are aware, The University of Leicester are doing a current survey asking us, the sufferers regarding research to this horrid disease. You will find it on the LS-UK support Group for women site, it takes not even 10 minutes to complete, very simple questions to ask/answer.....Please look it up & complete asap as it's not going to be running much longer. It's basic things like, what would you like to be researched further, & why...Please all do your best, if you have to join the group fine, At least have a look & try to complete it. Many Thanks y'all have a good day
I have had a look at this site - it looks like a very old site and I did try the "polls and surveys". Couldn't make any sense of it whatsoever. It just looked like a list of questions that the patient would ask a doctor (and no answers - no change there!) and a button at the bottom of the list to "Vote"(?). Just to see what happened, I clicked on the button and it said "Thank you for voting". What?! I am guessing that this whole discussion string is a fake/waste of time. If anybody else has any success, I would love to hear. I suspect LS Sufferer is having a laugh.
That poll has been there for years and there is no indication that it has anything to do with the University of Leicester. I don't think that was the site LS sufferer was referring to as it is a unisex site and LS sufferer says the site was for women. So we are no further forward.