Update On My 2 Days Appointment With 2 Different Urologist

You say your "PVR ranges from 100-150" but how much fluid is your bladder carrying? That would be the total of your natural void plus your catherized void. If the total is over 400ml, you might consider a self cathing program to keep the total under 400ml, or even under 300ml in order to give the bladder a rest so it can regain some elasticity. If you don't see results "in a few weeks" be patient. My bladder rehab program took many months to see results but the results did come. 

You bring up a good point about anxiety in the docs office effecting PVR results but it seems they also loaded you up with water. I think they do that so that you will urinate faster and therefore not overly extend your appointment time. The downside again is when you overload an already atonic/flaccid bladder, you create an artificial situation where the results can be badly skewed. This leads to a wrong diagnosis and often to incorrect treatments. Your real PVR is your real PVR, not the PVR measured through forced drinking of fluids. Fortunately you can now easily measure your real PVR at home through CIC under normal conditions.

I wonder how many people are getting operated on partly based on artificially inflated PVRs?

Jim

 

When you had 800ml PVR, was that after they water loaded you or was that taken with your normal daily fluid intake? If the former, then I would have them take out the catheter now and see if you can urinate. Then have them measure your PVR under normal conditions. If it's not too bad then just let your system heal and perhaps take a relaxant drug like Flomax. If it's high, then CIC might be preferable to having a Foley 24/7. CIC will also buy you time to see how you will do when everything calms down. The docs have a tendency to make a quick diagnosis and then point you toward their go-to operation. It's really up to you to help steer them to a course more in your favor. My urologists said I would never be able to empty my bladder completely on my own without a TURP. Well, guess what, never had a TURP and my PVR is often under 50ml.

Jim

John I should have read this one before I answered you in the other. At least the second doctor give you some things to think about. I hope you can do the CIC with the meds so this will shrink the prostate and you may not need the surgery. Which would be a good thing. The doctor is not going to say anything about the other doctor but the first one messed you up. Do what you fell is right for you. But I would try med and CIC first before any surgery.. Just relax please Ken

Hi David,

May I ask where you had the Rezum done and the name of the doctor.  Would you recommend the procedure?  Would you recommend the doctor you had?

Thanks a lot and good luck!

I would suspect that a significant number of patients, probably in the 65+ age range, use indefinite CIC rather than risk an invasive procedure such as TURP.

Hello Arlington and thank you for posting much appreciated yes you are right I need to learn CIC I did ask my urologist put me in contact with the best trainer in the Department of urology. I had a cyst oscopy yesterday

Sorry I'm on my mobile what I meant to say is that I had a cystoscopy yesterday and caught and infection so now's not a good time to start CIC since I'm very sore from the procedure plus adding again a catheter I'll keep you posted thank you

John

Hi Ken thanks for the message. Yes your right I felt that the second urologist is much more easier to talk too I was talking to him while while we were inserting to a catheter and gave me all the time I need it if I compare it to the HOLEP urologist . In any case once heal from the cystoscopy soreness and infection I will take the appointment for the self catheterization I will start my med as soon as I finish with cypro I'll keep your posted hope you're doing okay thanks Ken.

John

Thanks caringbah

PAE is also a possibility but I have to call back my green light urologist hot see if he had contacts for PEA in Montreal where I live

Thanks for sharing

John

Yes it is Tom but here in Canada it's more a problem of what province and city you live in . Montreal where I live is one of the biggest cities in Canada with over 8 million people and just HOLEP specialist to treat thousands of men if I was living in Ontario province I could of got a TURP in about 3 weeks time from the beginning of my problems over 3 months ago even here in Montreal all are doing TURP within 3 weeks it's a long wait time for green light and HOLEP

That would be a good thing to please look into it....PAE  Maybe I can find some in your area  Ken

To me it sounds like there trying to force you into having a turp.  If you want a turp we will give you one in 3 weeks.  If you want anything else you have to wait.  Sounds like they get more money for Turp????  Look into something else please John   Ken 

John, just be very careful. From bitter experience, urologists will bag PAE. Why? Enlarged prostates are huge business for urologists but PAE is a far superior process to TURP or laser but they can't do it. They are incredibly threatened by PAE. 

There are very lengthy discussions on this site about PAE. Guys all over the world are having them. I had mine done in Sydney. 

Just google PAE Montreal or Prostate Artery Embolisation Montreal. 

Good luck. 

That is right They make no money if they send you for a PAE  Ken

Hi Ken not really I`m talking about 3 Different urologist specializing in different methods, the green light one that I say Tuesday told me he has a 6 month waiting list and referred me to another uro that is doing TURP, so the Green Light urologist is not doing TURP, hospital already called me to do an rectal echo with another urologist most likely for the TURP but I will never go for that.

John

Thanks Caringbah

I will look it up, I think the Green Light uro mentioned the PAE, he went through many different options so I will check with him and see about the PAE option and who`s doing it in Montreal

Thanks again

John

At least your good on that Ken

Just me again.  Try that first  It may be all you need Ken

Yes Ken I'm looking into it, I have an rectal echo next Friday so I will get all the information for PAE if it's practised at that hospital I'm almost sure my Green Light urologist mentioned something about PAE, he told me he could refer me to any other methods in his professional contacts, even if I did the rectal echo with the HOLEP doctor, I will re-do it with the Green light doctor so when referring me he will have all test done on hand. 

Thanks

​John

Good morning John  Just got up and I was thinking about you and all the problems you are having. I am sorry.  What that doctor did to you has no words.    I was talking to my brother the other day and was telling him what happen to you.  To go from not having any problem to having a catheter for 4 months now that you can't pee.  Did you start the meds the doctor gave you I know he told you 3 month's but it may be quicker for you. I HOPE YOU GET SOME GOOD NEWS IN THE NEXT FEW WEEKS.  In Georgia now watching my grandkids  Have to go  they wil be getting up soon   Ken