# UTI's and PMR, I don't know what to do, please help!

**URL:** <https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091>\
**Category:** Bones, joints and muscles\
**Tags:** Polymyalgia rheumatica and GCA\
**Created:** [13 June 2017 19:51 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091 "2017-06-13T19:51:48Z")\
**Posts on this page:** 14\
**Page:** 1

<div class="post-metadata">

**Author:** ![nh\_user\_909302](https://community.patient.info/letter_avatar_proxy/v4/letter/n/a3d4f5/32.png) [@nh\_user\_909302](https://community.patient.info/u/nh_user_909302)\
**Post date:** [13 June 2017 19:51 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/1 "2017-06-13T19:51:48Z")

</div>

Since I've had PMR 1 /2 years ago I have have so many UTI's. &nbsp;I'm down to 5 mg. and have not had an infection for almost 3 months (hurray), but it began again recently and I have all of the signs of which I'm very familiar with. &nbsp;I had a UA, they prescribed microbid 100 mg. BID for 5 days without results, and they said the culture did not show infection!!! &nbsp;I had another repeat UA and all it showed was white blood cells, and theyi're doing another culture. &nbsp;My urine is very cloudy, bad odor, and I don't know what is going on. &nbsp;I will see the urologist end of this month, &nbsp; I need to stay VERY close to the loo! AND just before I go on a 2 week, so I doubt if they will be able to get the culture before I travel. trip. &nbsp;Does any other PMRers have similar problems? &nbsp;What could this be? &nbsp;It is VERY uncomfortable, inconvenient, and several clothes changes.

Thanks for any help at all. &nbsp;I haven't been jumping in with replies to other comments since I've had nothing to add, but I follow this site and have learned so much. &nbsp; &nbsp; Elinor

---

<div class="post-metadata">

**Author:** ![nh\_user\_843256](https://community.patient.info/user_avatar/community.patient.info/nh_user_843256/32/3586_2.png) [@nh\_user\_843256](https://community.patient.info/u/nh_user_843256)\
**Post date:** [13 June 2017 20:28 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/2 "2017-06-13T20:28:38Z")

</div>

I am sure Eileen will know the answer to this, and a quick google didn't lead me to a reference - don't have time right now - but I'm sure I read a few months ago that sometimes people with PMR show symptoms of a uti, but actually do not have any infection.&nbsp;

---

<div class="post-metadata">

**Author:** ![nh\_user\_165393](https://community.patient.info/letter_avatar_proxy/v4/letter/n/d78d45/32.png) [@nh\_user\_165393](https://community.patient.info/u/nh_user_165393)\
**Post date:** [13 June 2017 20:41 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/3 "2017-06-13T20:41:31Z")

</div>

You sound just like on of my mates, finally she asked to be referred to a Urologist. Had one appointment and it was sorted out.&nbsp; Now 9 months down the line, no UTI's.

You could try this, 1 level teaspoon of Bicarb in as little water as possible.&nbsp; Repeat 2 hours later and see if it subsides and disappears.&nbsp;&nbsp; First thing I use.

---

<div class="post-metadata">

**Author:** ![nh\_user\_1058110](https://community.patient.info/letter_avatar_proxy/v4/letter/n/977dab/32.png) [@nh\_user\_1058110](https://community.patient.info/u/nh_user_1058110)\
**Post date:** [13 June 2017 22:21 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/4 "2017-06-13T22:21:00Z")

</div>

Interesting. I just had the same thing happen, just before the PMR diagnosis. All the signs but no infection. I took a few large doses of powdered Vit C and drank lots of water and it passed. Good luck

---

<div class="post-metadata">

**Author:** ![nh\_user\_909302](https://community.patient.info/letter_avatar_proxy/v4/letter/n/a3d4f5/32.png) [@nh\_user\_909302](https://community.patient.info/u/nh_user_909302)\
**Post date:** [13 June 2017 23:21 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/5 "2017-06-13T23:21:56Z")

</div>

Thank you all for your replies. &nbsp;I am trying the bicarb now and will repeat in 2 hours. &nbsp;All suggestions are greatly appreciated!

---

<div class="post-metadata">

**Author:** ![nh\_user\_12898](https://community.patient.info/user_avatar/community.patient.info/nh_user_12898/32/1979_2.png) [@nh\_user\_12898](https://community.patient.info/u/nh_user_12898)\
**Post date:** [14 June 2017 11:18 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/6 "2017-06-14T11:18:05Z")

</div>

It is not uncommon for PMR to be accompanied by irritable bladder syndrome and pred sometimes makes it worse. You get all the signs and symptoms of a UTI but there is no positive culture result. I had exactly the same but only rarely was it an infection. This is why I always ask if the "infection" has been confirmed with a culture. But whether it is an infection or not - if it happens more than &nbsp;a couple of times, you need an expert urologist, not a GP.

In my case it was compounded by a mechanical problem - a very narrow urethra and what was probably happening was that the bladder wasn't emptying properly, leaving stale urine to fester. I had a cystoscopy to rule out any other nasties and a urethral stretch and the problem disappeared for nearly 10 years. Another cystoscopy and stretch, same again. Now 5 years into the next post cystoscopy period.

---

<div class="post-metadata">

**Author:** ![nh\_user\_909302](https://community.patient.info/letter_avatar_proxy/v4/letter/n/a3d4f5/32.png) [@nh\_user\_909302](https://community.patient.info/u/nh_user_909302)\
**Post date:** [14 June 2017 13:58 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/7 "2017-06-14T13:58:49Z")

</div>

Thanks Eileen for your informative reply. &nbsp;I have been going to my urologist for several years, he leans toward &nbsp;female urology. &nbsp;I do not empty my bladder, I have had urethral dilation& cystoscopoies. &nbsp;He doesn't like to give me anything like oxybutin or detrol medications due to the fact that I don't empty my bladder. &nbsp;I have taken so many antibiotics for UTI's this past couple of years, even went &nbsp;for IV treatment for a week to avoid cipro. &nbsp;Now this so called non infection is something new, and I am going to ask the urologist to prescribe something ;like oxybutin to help me function and calm my bladder. &nbsp;My repeat UA is now being cultured and I should hear soon. &nbsp;We are going on a road trip for 2 plus weeks early July and I need some help, will have to choose one of the two evils to get me through. &nbsp;Oh, for a good night's slep! &nbsp;Up severall times, no wonder I drag through the day. &nbsp; I've taken the prednisone for 19 months, that's when the UAs became my frequent visitor. &nbsp; &nbsp; &nbsp;Sorry you have have had these problems, along with others, and are so willing to advise others!

---

<div class="post-metadata">

**Author:** ![nh\_user\_909302](https://community.patient.info/letter_avatar_proxy/v4/letter/n/a3d4f5/32.png) [@nh\_user\_909302](https://community.patient.info/u/nh_user_909302)\
**Post date:** [14 June 2017 14:09 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/8 "2017-06-14T14:09:32Z")

</div>

I did try your suggestion last PM, no results. &nbsp;Thanks anyway, and I'm glad it worked for you!

---

<div class="post-metadata">

**Author:** ![nh\_user\_909302](https://community.patient.info/letter_avatar_proxy/v4/letter/n/a3d4f5/32.png) [@nh\_user\_909302](https://community.patient.info/u/nh_user_909302)\
**Post date:** [23 June 2017 00:47 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/9 "2017-06-23T00:47:09Z")

</div>

Post Script on UTA; &nbsp;Last week after the culture was done ( on a UA that had NO infection, only white cells) I was prescribed cefpodoxime 200mg BID for 7 days. &nbsp;I have one more tab to take, and viola! my urine is clear and my uncomfortable symptoms have disappeared! &nbsp;I have an appt. with my uroligist again next week. &nbsp;(I should be in good shape when my husband and I take our road trip early July for approx 2 plus weeks, NJ, Ohio, KY, NC.) &nbsp;Thanks for all of your comments.

---

<div class="post-metadata">

**Author:** ![nh\_user\_12898](https://community.patient.info/user_avatar/community.patient.info/nh_user_12898/32/1979_2.png) [@nh\_user\_12898](https://community.patient.info/u/nh_user_12898)\
**Post date:** [23 June 2017 11:07 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/10 "2017-06-23T11:07:30Z")

</div>

Hurrah! Now all they need to establish is was it really an infection - or is it coincidence. But it sounds good! Have a lovely break

---

<div class="post-metadata">

**Author:** ![nh\_user\_909302](https://community.patient.info/letter_avatar_proxy/v4/letter/n/a3d4f5/32.png) [@nh\_user\_909302](https://community.patient.info/u/nh_user_909302)\
**Post date:** [23 June 2017 12:54 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/11 "2017-06-23T12:54:58Z")

</div>

Thanks! &nbsp;The human body is an amazing "machine", but it IS human and doesn't always seem to act according to Hoyle!....Next week - - "on the road!"

---

<div class="post-metadata">

**Author:** ![anon53727290](https://community.patient.info/letter_avatar_proxy/v4/letter/a/67e7ee/32.png) [@anon53727290](https://community.patient.info/u/anon53727290)\
**Post date:** [23 June 2017 13:17 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/12 "2017-06-23T13:17:18Z")

</div>

You could try d mannose for your bladder. Its usually very effective. Good luck

---

<div class="post-metadata">

**Author:** ![nh\_user\_909302](https://community.patient.info/letter_avatar_proxy/v4/letter/n/a3d4f5/32.png) [@nh\_user\_909302](https://community.patient.info/u/nh_user_909302)\
**Post date:** [23 June 2017 13:23 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/13 "2017-06-23T13:23:56Z")

</div>

Sorry for my ignorance, but what is that and what does it do?

---

<div class="post-metadata">

**Author:** ![anon53727290](https://community.patient.info/letter_avatar_proxy/v4/letter/a/67e7ee/32.png) [@anon53727290](https://community.patient.info/u/anon53727290)\
**Post date:** [23 June 2017 14:39 UTC](https://community.patient.info/t/uti-s-and-pmr-i-don-t-know-what-to-do-please-help/596091/14 "2017-06-23T14:39:41Z")

</div>

Its for UTIs and bladder problems, I can't give you a link unfortunately but you can look it up with Google. It can be purchased on line in tablet or powder form or a health food shop. Its been recommended on this site before and saves having to keep taking antibiotics. I use it whenever I feel any problems beginning down there and it is soon solved for me. I hope it is the same for you as its such a relief!
