Once again, I feel a twinge of guilt with my good news as so many of you are suffering just now, but I simply have to share it. I have just been discharged from the Hospital :lol: My lovely, lovely Consultant was so pleased with me, she gave me a big hug :hug: My ESR and CRP were 2, although in all honesty, they've never been hugely raised. She said to come off the Alendronic Acid and Omeprazole - I had to admit that I had done this myself and she said she was pleased that I listened to my body and made my own decisions. I'm due to reduce to 2mgs next week and she's very confident that I'll come off the Pred completely. Its never been my main goal, just want to feel well on the lowest dose I can manage, so 'nil' would be a big bonus. I've slowed down even more now as I approach 2mgs, as it really does seem to be better for me. My body hardly notices what I'm up to and I like the feeling of control. I never was a patient person, but if PMR has taught me anything, then its patience :o I do hope you don't mind me sharing this. I just feel very elated after a really stressful week when it was all bad news. Take care.
Lizzie xxx
Cogratulations Lizzie Ellen,
how lovely to hear your good news.
Hope it'll continue to go well for you, and you will be down to nil.
Hopefully I'll be there with you, so to speak. :hug:
Best wishes, Julia ( DD ) xx
Lizzie Ellen, so very pleased at your good news. :P I do hope that you will be continuing on the same route till the final Pred is taken ! It must be a lovely feeling to be aproaching the finishing line, after so much suffering. I am glad to hear the good news, because at times I am owerwhelmed by such big depression. I just want to go to bed, and never wake up again. Good news like you are sharing with us, are extremely welcomed. Keep on going on the right track ! :run: :wink: Love. Granny Moss :rose:
Lovely news Lizzie Ellen :D :D
Inevitably on a site like this it will be the difficulties and problems that we see most often, because people want help and support BUT we do need to have the good news too, so its GREAT :D :D
Green Granny
LizzieEllen
The day you get off preds does not mean you are finished with us.
Not on your life, I expect two things from you
1) A Story of Your Journey from beginning to end, inlcuding our funny names, the ups and downs and the tears and laughter. Yes, it will go on our website and also in our Newsletter. So get cracking.
2) You come back here, at least once a week and chip in and let us know how you are getting on. You are not allowed to disappear.
Good News has to be shared, it gives the rest of us hope.
We have two good news stories on our website and I do so hope yours will be the third (3rd time lucky)
Good Luck and Good Health.
LizzieEllen,
I am so pleased for you...you have had so many other things to contend with in the last few weeks that it is high time you got some good news 8) :cracker: :hug:
Love, pauline
Don't worry Mrs. K. I'm going nowhere! I've had so much help from all you lovely people, whether you've got it, had it, got it back or whatever. And not just PMR support, but personal support recently relating to my Grandson. I've been able to have a moan, let of steam :steam: , 'enjoy' a period of depression :cry: and discuss serious medical issues with people who really know and care. I feel blessed that I struck lucky with my lovely Consultant, she's a real gem and my Doctor has been so open to new ideas relating to my experience as well. I can hardly remember the bad, bad days when I wept with pain, and screamed with the frustration of not being able to even dress myself. However, the bathroom radiator is still half hanging off the wall as a monument to the days when the only way off the toilet was grabbing the rad and pulling myself off :lol: I've still got a way to go and I know it can come back, but I won't live in dread of that, no point worrying about something that hasn't happened yet. But I will get my stubby little pencil out and start writing my story 
:bubbly:
Lizzie xxx
Great idea - I imagine it will contain loads of emoticons!!!!! :D :wink: Lizzie I'm so very pleased to hear your news, just what you deserve after your other not so good news recently, but all will come well, I'm sure. Go give yourself a special treat - I remember how I felt when I was discharged and how lovely you all were in spite of those poor newcomers still suffering, but you will all get there too :P :magic: :cracker: :redwine:
MrsO
Hi Lizzie Ellen
That is great news I am so pleased for you Just be very careful now !! Your PMR seems to have followed the pattern of my first bout
I really did at times just before my 2nd bout overdo things physically and that year I had lots of throat infections so look after yourself and I hope this bout is a distant memory soon !!
Best wishes
Mrs G
Brilliant news! :cracker: :bubbly: :ok: :magic:
And as MrsK has said - now you have the almost complete answers for people - I may know a lot of the technical/medical background but I'm nowhere near finished yet :cry: - so your role is to show that the diagnosis is not the end of the world. It was at the back of my mind as I posted in reply to Fiftiesgirl - maybe what we need is someone like your lovely consultant and MrsK's 3 guys (typical of her to have that many :wink: :roll: ) to get together with some of us and do a book which could be given out to new patients - I know we have the internet but for many people reading on the computer is difficult - not just older ones either, my husband has to download stuff and print it out to be able to understand it properly (technical genius that he is!).
see you round - don't go overdoing it now!
EileenH
Lizzie Ellen, I just want to add my congratulations to the others you have received....... you give me hope!!
It must be a fantastic feeling to have come through all the pain and frustration of PMR and see the light at the end of the tunnel. I wish you the very best for your ongoing health.
Don't disappear! I too love all your emoticons and would miss them ..... :lol: :lol:
Congratulations Lizzie Ellen
I hope the pred reduction continues smoothly. You certainly deserve to be pain and medication free. Keep posting. I'm not on here much but everyone on here has been so helpful - I don't know how I would have managed without them. It is people like you who give us all hope and that is so important.
Beev :D
Congratulations Lizzie,
It's good to read some good news for a change. :roll:
Hope you have continued success on the Pred reduction.
Lizzie Ellen, don't apologise for sharing your good news.
We cheered here tonight when we heard the lovely news about the plumber who won a million and a half with a £2 accumulator bet. Made it worth switching on. Wish my gee gee backing grandad had been alive to hear it.
Your Guardian Angel must have been putting this by for you in a week when you've been so worried. :wings:
Lizzie Ellen this is indeed wonderful news I can see you are buzzing and so you should be you are a trooper :cheers: :cracker: