Vestibular

Michelle, don't despair. Everyone is different. We all hope that everyone will have as short an episode of this as possible. By sharing ideas and things that help we'll all get through! 

Don't get too down....though I admit I do on really bad days..I bought my herbal pills today, I'll be taking a few in a minute with a Camomile tea, hopefully that will help me sleep, reduce any stress and I'll wake up feeling better than usual. I'll let you know!  

You poor thing

I know Chris it's soo difficult to stay positive tho and after reading that lady has been suffering for 5 years rolleyes it's like wow ok there's no hope for me.

I have my baths with my oil & spray lavender every night & started to do the vestibular 5 times a day so I am trying to stay positive & stress free. Iv lost my job, my friends & no partner sad it's really difficult. & when you're mums not supportive eaither can be difficult. Imagine if we woke up one day feeling normal omg I'd scream and run around haha! And cherish life so much. I even fort God was punishing me or someone was as well. Your brain is in over load with this.

But we have to stay positive! Even tho it's hard we have to!

Yes because my left side is my weakness i sway to the right.  Between us we might be able to walk in a straight line

That's our body compensating strange things xx

Have you tried acupuncture? I had a go and it helped for a few days after, and I did a few sessions but the benefit then started getting less and less. Before my testing starts I'm trying to get the stress down as much as possible, its the only way I can control the dizzyness. I've not had an MRI yet so there is still that worry but until then I'm trying really hard to chill, but like you I don't socialise much as I can't function in company and I'm sure some people think its all made up. 

Worst thing you can do is get depressed!!

Yes Iv tried accupunture as I had issues with my neck. And it really helped with the neck. Didn't help with the stress mind you but helped with the neck. I do rdccomend it to people to try.

Yeah that's true. The more we stress the worse it gets. But it's not purely depressions tho like Drs try say it is as they have to rush you out there. I didn't feel depressed until all this.

X

Michelle, if you believe in God, which I do, i don't believe  it's a punishment. God is kinder than we think.  This was brought home to me when i visited my GP recently,  who no doubt was trying to be sympathetic towards me,  but said to me 'you must feel like you're being punished'.  I hadn't thought that at all because this isn't personal, it just happens, as do other kinds of illness.  Please try not to think that way because it will only drain you of the energy you need to adapt to this condition and you need that energy to try to recover.  Keep doing what you're doing to try and help yourself, take no notice of those who don't understand, although it's difficult,  because there are plenty of others on here who do understand. Sometimes i wonder if there is a much simpler remedy to all this that hasn't yet been established.   Just do it one day at a time because piling on all the anxiety about having it 'forever' doesn't make it any easier.  Marion has learned to live with it despite it being 5 years, and she's right.  Last week i thought this is never going to go away, then i've had a good week this week, but it could be back again tomorrow,  so it's ups and downs but i hope the periods of respite become longer in duration once I learn to adapt.  When this first started i hoped it would be gone within a few weeks and then it got worse.  It has never been as bad as it was since then and the periods of imbalance have lessened so hopefully something is healing/ adapting to this condition, even if very slowly.  Hang in there  I'm off to bed, as i should have gone much sooner.

Hmmmmm

Just seeing what she wrote has made me very depressed & I dont want to get into a god battle but if there was a god he wouldn't allow us to have this I'm 23 I'm tiny too I can't cope & my body can't cope so Saddly I don't believe in him.

But that's just me.

The last 3-4 weeks Iv been the worst Iv been in long time soo dizzy & constantly felt like being pushed its got worse & these excersizes do not make things easier you feel sick & dizzy & get the shakes after. But he said that was all god. Will see Iv gotta keep doing something Spose or I will just lay in bed all day every day what Iv been doing since October. I bought a pony too week ago to get back into and tbh I'm struggling I'm at yard & I feel dizzy & have sit down every 5mins that's no life for anyone! But horses are so therapeutic I think she knows I'm not well as she's very patient.

All the best xx

Michelle its a big step forward getting a pony! I don't know where you are in the country but its a gorgeous day, I try and get out and do stuff even if its just hanging the washing out or walking round the garden, I see all these things as part of the retraining same as any exercises, they have to help. 

I wonder if anyone has tried hypnotherapy to help with the anxiety? Think I may look into that.

Hope all is good at the stables Michelle, that has to make you feel better inside. 

Going to pop my herbs now see if anything happens - they didn't really help me sleep tbh but it was hot last night. Just want a good nights sleep as well! 

I'm in Essex Chris

And my pony peanut her name is lol she's fantastic she's so patient and I always give her a cuddle. Iv had horses since little Girl and I can honestly say animals sense things. I lost my horse 2 years ago in a accident and I always get upset about it. Iv had a terrible 1-2 years. Loosing my horse,dogs partner and then suffering with vertigo.

I honestly think it adds on stress ect. My therapist ( I did counselling ) agreed she said youv had such a terrible time BUT she didn't think it was all MH issue she did say you need to get this vertigo looked at. And Saddly I just can't afford to see her anymore ( ATM anyways ) I highly reccomend to people to go counselling its amazing just talking to someone who doesn't judge you and listens.

I'm sorry to hear you didn't sleep. BUT it was really hot last night! I was so hot! You need to buy sage oil & lavenda oil for the bath ( both good for stress ) and lavenda spray and I use head balm aswell it does help me to relax. But the heat doesn't help. My mum can't even sleep very well cause the heat lol so the heat doesn't help.

Xx

Lol, so much for herbal tablets. Worst day so far. Feeling crap and desperate. Everything swaying, just pitched on the sofa looking at the sun out of the window.

So 4 months and its worse than ever. No idea what to do except wait for my appt in a week or so. Anyone also get tingling legs and mild headaches? Not sure what is to do with this or what is just in my head now.

Hope you had fun with Peanut michelle! 

 

Hi Chris,

My sister and I took St Johns but it caused us both to have severe migraines, which is the last thing you need with dizziness and sickness. 

Be careful, maybe check with you GP or Pharmacist. 

Pauline

Thanks Pauline, I spoke to the lady in holland and barrett and she also said avoid for dizzyness so I got some milder ones called "Quiet Life" (!), which are a mix of motherwort, hops, passiflora, lettuce and valerian extract and a few vits, really just to see if even a placebo effect might help...  

I tried walking with my eyes shut and I too move to the left! I felt very anxious about doing it, because of the dizziness. I have an appointment to have my eyes tested again. It's surprising how much a good opthalmologist can pick up in the examination. 

Pauline

Hi Michelle, good news about your pony - hoping it helps to take your mind off all this.  Are you OK riding? or does it cause you balance problems? 

I'm not overall sure about doing the exercises too much if they make you feel worse but lying in bed too long makes me feel worse when i eventually do get back up.   I think the more i try to do the more i challenge this dizziness perhaps has helped me most but its about getting the balance right.  I do my exercises but they are my own made up ones and i only do them once a day and then only briefly, cos i work and drive i can't do anything that makes me feel worse. 

I don't know how long you've had this dizzy problem but i know when i first got it it was much more severe than it is now.  Over the past 2 years i've had about a further 4 to 5 bouts of BPPV and although it still affects my vision and balance it was never as bad as when it started and i was crawling around on the floor.  So i only hope that you learn to compensate more and more and end up feeling a whole lot better as you learn to adapt. 

Take care.

Just to say St John Wort is a good tonic for mild to moderate depression but i would steer clear of it for inner ear problems as it shouldn't be used if you have tinnitus so that makes me think it's not good for any inner ear disorders.

Thanks Anne, Someone else said avoid....I posted this somewhere else, but I've only just worked out the reply button here!

"I spoke to the lady in holland and barrett and she also said avoid for dizzyness so I got some milder ones called "Quiet Life" (!), which are a mix of motherwort, hops, passiflora, lettuce and valerian extract and a few vits, really just to see if even a placebo effect might help...  "   

Hello Michelle and others, Ben here.

12JUN15 @ 6:30pm GMT 

Thank you for getting back to me about the exercises, and thank you to all of you for your great input.

 

I would like to express my opinion about the relativity of these things that we read about on this forum, including depression, satisfaction and even God.

I am not a doctor.  >BUT<  It has been my discovery, through hours and hours of reading and studying and asking hundreds of questions to everyone I meet with this hideous disease as well as the professionals that I have seen, that depression can certainly come from a balance disorder.  

Depression is one emotion that we derive from the whole balance system.  It is a complex system, involving the equilibrium function of the Vestubular system, the feedback we get from our eyes, legs, feet and gluteus (bum) maximus. 

Our whole attitude and understanding about how we feel is influenced by this complex.  Our very feeling of well-being (our pereception of how we are doing) comes from our ability to understand what is happening to us, and that involves our brains using the balance complex.  Things like depression, anxiety, stress,etc originate not entirely, but certainly, from the balance system affecting our brains.   I won't explain it in detail here, but it really has been my finding.  

The emotional state of mind, as we have all heard, is soo important to someone with an illness, especially to someone with a terminal illness.  We have learned that if we are happy and something terrible happens we deal with it much better than if we are already down in spirit. Studies have shown that if we are successful or triumphant our brains release hormones and secretions that make us feel good and create a calmness for us. We all know that mood therapy is not complete without mental prepardness.  So it just makes good sense to keep a positive outlook going.

On the subject of faith and religion, prepardness applies again.  Practicing a religion, any religion, aids in making one more able to accept both negative and positive experiences.  It is a matter of conditioning.  Just like an athlete who is proficient at some sport due to conditioning, the human mind can be conditioned to accept things as life progresses.

The belief in "God" for example is a conditioning process that one goes through in order to explain things of a higher level of understanding than they themselves can explain.  In Christianity the trials and tribulations are  a process meant to strengthen and prepare us for things that would be overwhelming to us if there were no conditioning.  

Then there are statements like; "power corrupts and absolute power corrupts absolutely."  These are conditioning the mind to handle success and be humble about it.  Since ultimate understanding or knowledge will be overwhelming, it's sort of a governor or throttle to keep success from corrupting our belief in ourselves. 

One idiom I try to live by is "all things in moderation".  I don't know that I do it all that well, but as I age I see how it makes good sense, so I keep trying.  I don't "blame" God, as in punishing me or abandoning me, but I certainly do keep a sharp eye out for the reason why I have it.  I look at heredity and viruses and damage caused by a bump on the head, or a vertebrae issue. Then I tell my self that it is far better than cancer or a stroke.  

I try to learn all I can about this lousey VN and in so doing I am preparing myself for the future.  I know that depression is a strong possibility due to the lack of good signals from my damaged nerve, so I keep it in total check by changing up my routines and trying not to dwell on it too long.  

 

One of the ENT's that I was seen by told me not to go on these web based forums because she felt they were not good for me.  Eventhough I disagree with her, I do understand what she means, it goes back to that moderation thing.  If all I do is read about this monster, and everyone else's problems with it, I certainly could be influenced in a negative way by it.  So I change it up a bit by going in different directions with it.  Like making a joke out it (the monster).  

As an example: When I meet people that don't understand what I dealing with, sometimes I tell them I feel like I just drank 3 or 4 glasses of wine.  Then I say it feels like "happy hour" , or, "it must be happy hour somewhere because I'm sure feeling happy."  They usually laugh and say "well is that so bad?" To myself I say it is, but to them I say " no it saves me a lot of money".  My joy is derived by knowing that they couldn't possibly know what I am enduring and that they would hate it if they were actually "drunk" all the time.  It makes me laugh on the inside!  

Of course there is this :       When all else fails,  EAT CAKE.  (moderately)

   

I hope this helps.  Good Day !

Ben

 

I did it again yesturday jogged in the door closed my eye went to my left.

Haven't done the excersizes today oops rolleyes as been keeping busy today. So Iv had no time. I will do couple this evening instead.

I'm also looking at pics & my left eye I close it slightly ( vestibular guy said was my left )

My eye test is booked for 29th

Let me know how yours go wink let me know if anything happens xxx