Has anyone out there gotten a vulvodynia diagnosis? Im interested in your experience.
I just got the dreaded diagnosis and i am convinced its herpes related.
Sorry, i do not have an answer for you...
But i want to ask what are your symptoms? Because it bas been painful down there since my first break out 7 weeks ago...and itchy also...
Thank you for sharing!
I have chronic nerve pain in the vulva area. It feels like yeast or bacteria burning but i am negative for everything except hsv2. It sort of moves around, sometimes its the labia, sometimes the vaginal opening.
I am told its nerve damage (vulvodynia) from chronic infections.
I dont know how long i have had hsv2 but i suspect a long time. I have either never had an ob or i get internal lesions only. I cant help but wonder if the vulvodynia is an atypical expression of hsv since they are both nerve disorders
Really hard to say...
I have the same thing!!! I am positive for hsv1 (not 2) down there. I am pretty sure i did not have it for a long time because i was soooo sick when it happened...
Anyways, thank u for your answer, i know what is happening to me now.
I hope you are gonna get better soon!
Take care of yourself!
Thanks for responding Caroline!!
Good luck to all of us !
I posted this same question on the vulvodynia forum so maybe some one over there will know
I just Googled vulvodynia and herpes, and it appears other women have the same issue with both, with one derm website saying that vulvodynia can be brought on by herpes simplex or zoster. But I read elsewhere that frequent vaginal infections and antibiotic use could also be a cause.
Youre dedicated lol !!!
Its confusing. Theres lots of stuff out there. Some say its not related, others swear it is.
Ultimately i guess it doesnt matter, except im worried about my level of contagen. I am afraid i might be caught in some incessant prodromal state. That would mean im constantly shedding, that would suck!!
Lol, too much free time and nothing better to do!
Vulvodynia itself does not presumably cause HSV shedding, so the issue is how to distinguish between vulvodynia sensations and HSV prodromal symptoms.
Kinda costly to do, but I have read that it's possible to have yourself swabbed for several days to look for shedding. Might just be a series of regular PCR vaginal swabs, I suspect.
I wish they would come up with an in home swab, that would be a great addition to the take home ph tests and pregnancy tests
I think that can possibly be arranged with your doctor. You'd have to enquire.
Hi. Is anyone still on this thread. I have vulvodynia from hsv 2. It's been 5 months. I feel like my life is over. Amitryptline helps and I might go on lyrics. But my concern is being contagious all the time. My bf doesn't have h so this could ruin our relationship. Please is someone in my situation could reach out it would mean so much