Another few days of feeling awful does anyone else wake up really thirsty, tongue feeling sore and rough? Blocked nose. Just feel stupid having to right down everything, to prove to my Doctor what im going through it makes me sad just want my old self back ive always been so active xx
me to hun i hate being like this i get so frustrated being couped up .
and have to think about everything i do before i do it .
i have a dry mouth and nose most of the time but not a sore tongue
yes, every morning. I've changed my pillows in case it was an allergy, I keep the heating off in the bedroom, I even take a piriton every night before sleeping and still I wake up hurting to hell and back, mouth and throat are bone dry and yes, my tongue is raw. It's driving me nuts being like this. I'm so fed up of always complaining about how much I hurt, how bad I feel, how tired I am, etc etc., and I'm driving my friends and partner to distraction, they must really be getting very fed up with me always moaning. I've had various guesswork from my doctor about how it might be related to a virus - for which I got prescribed a reducing course of steroids (prednisolone) which helped the pain whilst I was taking them but it all came back as soon as I stopped. Didnt do a thing for the other symptoms, which I have to admit are very 'flu-like'. Like you Terri - I've always been active and hardly ever given in to illness, I don't want some made up diagnosis just to get me out of the surgery, I want to find a cause for all this and get it to stop. I'm sure my GP sees lots of people who just want a reason not to work, I'm not one of them, I have to work to support myself and I want to do it without being in horrible pain all the time and without my brain fogging up. I had a mammogram appointment today - I firstly misread the letter and got the time wrong, even put the wrong time in my work calendar (luckily although I turned up late they still saw me), then I had agony lifting my arm over the machine as asked, then when finished, I had the embarrassment of having to ask the nurse to help me get my bra done up. For heavens sake I'm not even 60 and I'm feeling and acting like a 100 yr old. This is all so wrong.
Don't feel bad I believe all of us have to keep records of what is going on. I do wake up super thirsty but not the other things. I am like you I wish I had my old life back. Take care of yourself!
Has anyone discussed if any of us suffering from Fibromyalgia could be linked to flu injections?
The last two I have had,gave me a bad reaction, and I am thinking of stopping it.
I have looked up clinical trial on Flu injections and Fibro, and they did trials in 2011 in Israel, but I cannot find the results....makes me wonder why!
What do you think....could this be a link?
hi terri im the same but my doctor says it the tablets im on sore mouth dry throat and bugged up know
My reply is being moderated just now.
But basically I was saying do any of you have flu injections.
They dry your sinuses.
I have started a new discussion on links to flu injections.
Yes me....I always gave a drink on my side cabinet...real flu like Symtoms too..yuk..but as bad as this sounds...I'm glad I'm not alone...as far as having to write down everything you suffer from for you doc..mmmm..if only they understood...you will probably have a heap of writing....hope all goes well for you Terri..be blessed..:-) xx.
Hi Terri. What medication do you take???
Yes. I always have a sports bottle of water beside my bed. If I wake (which I do often!) during the night, I find it is more likely I'll get back to sleep if I take some water. Familiar with the blocked up thing too. I have almost entirely lost my sense of smell. I sneeze an awful lot too, which isn't great for my costochondritis!
I have flu injections every ear..I have never thought it could be this..as I take Amithriptiline at night and they can also do that..also have Sorgrens Syndrone...and that's the main source I reckon..also the meds...mm..make you very dry...but the flu like symptoms I think is the Fibro..it's soo hard to tell sometimes..isn't it...:-) xx.
Also I changed my pillows and sheets to Egyptian cotton and an allergy free pillow...pure wool is best..but my experience is they tend to flatten too quickly.. I use an artificial saliva too..especially at night..a mint flavoured one..
sorry for the rant yesterday - was a bad day all round what with being in pain and stressing about the mammogram and getting the time wrong etc etc. I didn't have a flu injection this year, I was advised that this year's vaccination wasn't effective against some of the strains prevalent at the time and I just couldnt face the discomfort as I always get unwell with it. I get sort of night time allergy symptoms, nothing really bad just dry nose, throat and sore tongue when I wake. Like others I've taken to keeping a bottle of water close to hand, which I guess is good for me anyhow 
Writing everything down must be a pain but I think I'll try it too for when I go back to the GP. I can never remember everything I have to tell them and always feel a bit under pressure to be brief, it'll be good to just hand them the details and let them see for themselves all the different issues. Hope your list assists Terri.
yes always have water next to my bed
dont do flu injections ,why add problems to an already stressed immune system . this year the vaccine was incorrect for the virus anyway .
excatly why i take no meds ,except natraul stuff .its just not worth adding to the symptoms i am already suffering,
I treated myself to a wool pillow too, I have to say its been great, but as you say it does tend to flatten a little or go a bit lumpy. I dont suffer such an overheated or sweaty neck and head any more and, sorry to be yukky, I dont 'drool' due to an open mouth either any longer. I like you swapped to egyptian cotton bedlinen, no more polycotton. Re the flu like symptoms, I'm guessing thats why my doctor took a stab at treating it as a virus because some of the symptoms are distinctly flu like but dont develop further into full blown flu. I'm amazed just how many people are suffering from these pains and symptoms, it's almost epidemic, yet so far most GP's haven't a clue and just throw painkillers at us. Anti inflamms dont work at all for me, paracetamol does a little but not completely. I really dont want to move onto opiates and addictive pain meds.
Don't think mine is as I haven't had a flu injection for many years and its only the last six months I've suffered from the fibro issues. I'm still suspicious about the viral link though, particularly as taking the steroids short term did have significant affect on my pain levels.
Hi Chris I'm on 100mg of sertraline my meds have just been increased was on 50mg but my last visit to the Doctors I was so stressed with all these symptoms thats why she increased them, I don't suffer with depression at all but I suffer with anxiety
hi its rubbish isn't it I have just started the last two years having the flu jab due to my work environment but the aches and pains have been going on for over four years, silly things like sleeping with a pillow between my knees because of my back a v pillow because of my neck and shoulder I could go on and on I now want a diagnosis so I can move on with my life hate it at the moment hope you feel better soon Tiswas xx
i know what you mean Loxie I hope you start to feel better soon xx