Hiya im 37 yrs old and in the menopause.i have been suffering from burning down below since the start of dec last yr.my own doc done swabs came back clear and to be honest i dont think he knows what to do for me besides prescribe me creams which dont help.i recently went to a lady doc who specialises in the menopause.she checked me out below and seems to think i could have ls.i have no white spots but i do have some dark skin discolouration around my vulva.im goin for a biopsy in 2 wks and im at my wits end.i dont wear underwear and im wearing loose clothes.im under 8 st ive never been heavier than that but now and a few people have commented on my weight as im after loosing another few pounds.im just wondering has anyone been diagnosed with ls who hasnt had any white spots to begin with? Thanks xx
I'm waiting for a confirmation of LS, I've just had biopsy. I've not got any spots or itching just constantly burning n sore. Creams I've been given have so far not given me much relief.
Hi yes I have never had white spots or patches I suffered for about a 2 years then had biopsy to confirm LS. My symptons are itching burning very sore and sometimes after sex bruising and carpet burns. I'm on steriod creams and moisturing creams I also use estrogen cream because I'm also going through the menapause hope you get some good treatment
Before biopsy I had some relief with evening primrose oil rubbed on to sore areas, will try that again once stitches have dissolved! I am going through menopause. How long did you wait for results of biopsy?
I was dignosed having only severe itching, inflamation and fragile tissue- that came off on the loo paper after dabbing following a wee. At the time there was some fusing of the labia too. I havent had white spots - once i did have what looked like a blood blister. Do look at the various threads as there is a lot of useful advice about how to manage symptoms. Basically stress makes the symptoms worse, some people find certain foodstuffs like sugar coffee and wheat may make them have a flare up. Avoid perfumed creams and lotions on the area.Keep moisturised Use barrier creams to keep body fluids off the area. Avoid penetrative sex if possible
Good luck
I think it depends what country your in mine was back within a week but I'm in Dubai and it's all private care
Hi Catts123
i had two years of pain and soreness and was forever being diagnosed for thrush by my GP. I would be given a course of Canniston which would help for a short period then back to where I started. I didn't have the white spots just red raw and over that two years my vulva area became more and more scarred. My daughter is a doctor but in Virology and I had never really wanted to ask her to look 'there' but out of desperation I asked her if she would have a look at it. She was horrified and immediately organised for me to see a consultant dermatologist. I had a biopsy which confirmed the LS diagnosis that was just over two years ago. I now use Dermovate twice a week and wash the area with Epaderm Ointment and use Epaderm cream to help keep the area moist. I also have Vagifem tablets to insert twice a week. This regime has kept it under control and I am not as sore as I used to be. Strangely enough I have never had the white spots until recently.
Hi Catts..hopefully your biopsy shows you don't have LS!! But if you do then you have caught it very early. My white spots and wrinkly white cottage cheese skin dint show up until I was in my 50's but I do remember having bruised skin now and then in my 30's and 40's. I use to think it was just from having sex and I bruised easily. I never new I had it then. If I had of known then, I could of started a regime of some kind so it would never have progressed to the point the white patches came. I think when the white patches come it's way past the beginning stages, so make sure you gets our biopsy and and know for sure, and if it positive then you are at least ahead of the game to keep it under control so it won't progress forward.. Good luck! Let me know your results
Sorry for the spelling and grammar..my auto correct drives me nuts sometimes
hello catts123
i have been diagnosed and i have no white spots
i attend a gyneocologist for my LS she is very good
i am in the UK
i use emuvate on flare ups but i have been very lucky and not had any since using this and washing with Double Base gel
and only wearing white underwear and only using non bio Fairy or Persil washing
all this was reccomended to me
e from my Gyneo lady i also have a collapsed bladder but i get very dry
maybe i should ask her is it ok to use vagefem tablets
she also says if you can wear no knickers but with the bladder problem not too sure about that
You and me both!!! I hang my head in shame if i havent checked it out first! and often i click send before thinking!....perhaps the LS is in my brain too!!!
Absolutely...I type so excitedly that hitting send is sometimes an instant reaction LOL!!! I will proofread carefully from this day forward.
Thanks so much for all your replys it means a lot.my family and one of my close friends know but i dont think they know how distressing it is when u have the burning constantly its takin over my life at the moment.i had somethin similar 2 yrs ago but i was goin through fertility treatment at the time and was using cyclogest pessaries and i thought it was from them.i stopped them after 4 days but had the burning for about 2 months afterwards and then it just stopped.the dermo doc i saw said if it was ls he would give me dermovate cream and just booked me in for the biopsy.i was in and out in ten mins 180euro less off.i had some accupuncture done a few wks back as well but no change.would i be ok to go to work the day after the biopsy he said he will take a sample from 2 areas im just wondering should i book the following day off work just in case?thanks again for ur replies..xc
I did not have any problems after the biopsy, just a tingy bit sore but after the soreness you have been having it should not be anything to worry about. Good luck I hope it all goes well for you.
I think it depends on what your job is! I took 4 days off and I'm still sore and uncomfortable as stitches still there.
Thanks guys im havin it done wednesday week so i might take the following day off just to be sure.
Hi, I'm 38 and I know exactly how you're feeling :-( I literally had a biospy last Tuesday to diagnose LS, I got myself so scared with worrying beforehand that i cancelled the op twice but in the end i decided to be able to move forward I needed to do it and it actually went really well. I spoke to the doctor beforehand and she let me collect some numbing cream to put on before going to the hospital (that really helped) i did take the day off after just to take things easy, but armed with painkillers i could have gone back, although my job is a desk job and i did take a cushion LOL. To answer your other question I've never had white spots, i look quite pale but angry red inside, according to the doctor it looks like i've had 'shrinkage' and have lost structure, and at this moment in time i'm unable to have sex or an internal (this has only happened in the last 12-18 months) sorry if TMI.
If you have any more questions ask away :-)
Hope it all goes well
Hi honeyduck74
Thanks for replying.i hope ur doin well urself.i have a prescription for numbing cream as well so that should help hopefully.have you gotton any results back from your biopsy yet? I never asked at my appointment so not sure how long ill be waiting.im goin totry the bread soda baths to see if it helps.id try anythin at this stage.i hope ur feelin a bit better it would take a lot out of you.
Hi guys just a quick update.had the biopsy done all went well just had a small bit of bleeding when i came home but it stopped as quick as it started.was told ill have the results in 10 days so fingers crossed for them.thanks again for the support xx