Waiting for treatment

Hi just joined this forum as my frozen shoulder is really getting

me down. How long has anyone else waited for Treatment?

Had pain since end of June, hospital involved end of August and only had physio last week and ultrasound but was told I need MRI.Hospital is sooo slow, my pain has been unbearable but now I feel like I'm really freezing and worried I'm gonna be too late to get an injection?

Hi namesake!!! Lol  smile 

This is my 2nd fs  sad  Went to GP August this year after suffering since May 2016 saw consultant end august had ultrasound & xray back to consultant september had surgery october & had further mua with cortisone shot monday just gone! Was the best thing to do! Pain was awful yesterday but much improved today.......rom vastly improved  smile Did say this was my 2nd fs first was operated on Feb 2015 with further mua april 2015 - intensive excersises & I had full 100% range of movements & no pain in less than 3months! Go for surgery you do not need to suffer any longer! There is light at the end of the tunnel  smile 

HI on my second fs. Was the left one last yr didn't last as long or as painful as this time. My right started in Jan/Feb of this year. I've had months of physio, cortisone injections, MRI, X-ray, hydrotherapy, pressure point massage, used oral anti inflammatory meds, oils, gels, a tens machine, joint supplements, taken turmeric tea, used tiger balm, I think that's it, could be more, I was back with doc yesterday he sent off a referral letter to see a specialist and booked me in for another shot of cortisone injections this fri. My ROM has not improved one bit the only thing which has slightly improved is the severe pain and nervy spasms I had and my sleep is getting better I can tolerate sleeping on my right side for small periods. The next thing to try for me after my injection is acupuncture. I could be waiting a while to see this specialist!! What's with all the Linda's getting fs!!!!

Hello Linda!!! So glad I found this forum it's just nice to hear

From people who understand the pain with this condition. I'm

Trying this week to chase up my MRI referall but as usual

Consultant not available etc etc. I'm trying to see light at

the end of the tunnel but it's difficult! Lack of sleep is

Driving me nuts and not being able to drive or do my

Household chores is so frustrating. I got this condition right

On top of a prolapsed disc in my back. I'm praying for an

Injection which I've been waiting for since September but got

To have all the scans first.

Hi

I've had pain since April this year. Had 5 steroid injections and they didn't work as it's in both shoulders. I was awaiting hydrotherapy to see if that would help with physio but now have to wait till I recover from recent brain haemorrhage. Mine are now frozen I think as stopped hurting constantly only hurt when I go to bed unfortunately, laying down is a massive problem. It's a long trek and I feel your pain but it's not a one option fits all. Sometimes waiting for it to resolve itself is the best way but that takes time.

I wish you luck and hope you get treatment soon xx

Ye I love this forum, let's you know your not alone, a lot of people don't understand how debilitating this disease is! I call it a disease!! And it seems there's is no quick fix for it just a waiting game! Oh to be able to reach up for something, close my bra, put my hands in my back pocket, tie up my hair and shave under my arm properly 😂😂

Lol given up on bras, the armpit and putting my hair up in

a ponytail!!!!

Thank you for your good wishes, it's lovely to hear from

others. Good luck to you too

what exactly are your symptoms as im not sure whats wrong with my shoulder 

Hi mine started as a nasty pain in my upper arm which got

Worse. If I make a sudden movement pain is unbearable

for a couple of minutes. Now my shoulder has an intense

pain as well which pain killers don't touch. Pain occurs all

Day and night. You lose the ability to raise your arm, reach

behind or to the side.

that is exactly how mine is.  but last year after three years of pain i had scans x rays injections and physio and it did make a blind bit of different, the dr says it is not frozen shoulder 

I have had it on and off for years and its definitely worse now  trouble is nhs seems to put these types of issues on the back burner these days

 

My hospital is terrible I have to push for everything to

happen. They say frozen shoulder follows a pattern and

goes through 3 stages. Hope you get yours diagnosed.

Hi Linda....is this yr experience with the NHS....it might definitely be a case of the louder u annoy yr doctor or consultant to get the treatment u need

FS seem to be all different. I am seven weeks on from a MUA. Intensive physio but chronic pain has gone and I am sleeping through the night. This one started in June. I am lucky I used private health insurance. However a MUA is not expensive. I couldn't cope anymore with pain. Hydrodilitation is also available. Good luck...does cortisone injections work...in some cases....that's the problem with a FS there is no one approach...expensive other methods r Trigenics available in Estonia and a new injection in the US which breaks down the scar tissue. ..

Glad you found the forum, Linda0709, but sorry to hear you're in such pain. We know what it's like!

My suggestion would be to insist on better pain control while you're waiting for further treatment. I had a compassionate family doctor who recommended long-acting codeine. I didn't need it more than a few months, but it made a world of difference.

Also, when I was up wandering at night, reading back on the forum about others' experiences...way back...was a nice distraction from the pain & sleeplessness.

One-armed hug, as they say,

Liane smile    

Thank you all for your feedback, it's nice to hear how

others deal with this awful condition. Been chasing up

My MRI referal all week but getting nowhere so really got

my firm let's get this sorted head on! Also spoke to my works

Occupational health advisor as I'm still off work. Not had a

Good day pain wise so gonna take the codeine to go to bed on.

It's bedtime that fills me with dread as I know what sort of

Night I'm gonna have!

Hi Linda....

I know it must be difficult fighting for treatment when u r in pain...I just had an Xray. Do they suspect something in addition to FS.

Sleeping is awful. Hot water bottle on shoulder. I tried everything.

Good luck

I've had an x-ray and ultrasound last week but they still

want to do MRI even though they say it's definitely FS.

Don't know if that's the norm. I've done stick on heat patch

but didn't help so I think I will try hot water bottle next.

Good luck to you too.

Just remembering the sleeplessness nights and pain before my Mua. I was at a hotel in Oxford after a wedding and took a hot bath at 3 a.m....I got into the habit of eating crumpets...exhaustion and pain and not driving because I wasn't safe....there is light at the end of the tunnel. ..I couldn't see it a few months ago...

A good 8 hours sleep with no pain is what I truly cannot

wait to have. I will appreciate a good sleep so much when

this is all over!

Hi, That is about the speed of the hopsitals.  You are never too late for injecitons, but remember they do not work for eveyone. I had 3 years of right shoulder and now I have my left shoulder. I am fortunate to have private cover, saw the conultant yesterday and the injections under a local guided  via  unltrasound are being done today the  pm. Some GP's do the injections so it may be worth enquiring. Try and keep arm moving with gentle exercises the physio has done with you. Yes it will be painfull but it is about keeping it moving, pain relief and hot or cold compressess. Best Wishes.