I have just wasted an hour and half at an appointment at pain management to be told I had to pace myself do light exercise use my core muscles relax n avoid stress after having pain of some sort for over 30yrs I think I already know this so no help at all rant over
Gentle hugs to all xxx
Hi Debbie1966 so sorry to hear youve not got on well at the pain clinic. cant believe what they said to you, as if you didnt already know all that honestly. You Take care gentle hugs xx
Hi Debbie
That's terrible! You get all geared up to go somewhere, and hope to find a little help in things, only to be told that. It's like they have no understanding at all. I'm really sorry.
Gentle hugs
what a bunch of idiots! I just love hearing 'you must pace yourself' when a lot of the time we're unable to do absolutely anything at all, let alone over exert ourselves. Secondly, they should know by now that fibro flare ups aren't predictable - there are days when I do almost nothing and the slightest thing (like taking a shower) triggers it and other days I can go to work, come home and cook dinner etc., and am not so bad. These are supposed to be the 'experts' eh. I'm pretty sure half of my symptoms are due to the stress of having to deal with a totally ineffective and useless health care system - the frustration of it all can cause illness on its own. So sorry to hear you had such a wasted trip and I bet you had to wait ages for that appointment too.
Hi Debbie....How awful but not shocking!! Unfortunately, it's a long process to find that right doctor...maybe do some on-line research, ask around on various FMS forums, you might be surprised on what info you may get...hang in there and don't give up! "If at first you don't succeed, try, try again" words I live by !....I do however know just how frustrating it is...In the meantime, you will always find comforting support here on this site...Hoping you feel better soon gentle hugs
Hello Debbie
Know exactly where you are coming from?
Dont worry you are not alone, have been fed the same thing over and over again?
They have"nt the courage to tell you that unless you pay for treatment you are not getting anywhere? cant imagine how much money is wasted on these clinics to tell people the obvious?
Hi Debbie. I had a similar experience to yourself. I waited for 4 and a half months for an appointment at the pain clinic, to be in and out in 5 minutes, having been told I had chronic pain and to just get on with it and that I would put weight on so be careful what you eat. End of appointment and discharged as they couldn't do anything for me.
Nevermind find the next doctor and onwards and upwards.
Take care and gentle hugs
Thanks everyone for your replies and support my gp is great but sent me there because I am allergic to so much he is limited to what he can give me and thought they might help I will just go back to him n c what else he can suggest
Gentle hugs everyone xxx
Wow how annoying and frustrating. Doctors still seem to be in ignorance about the pain mechanism in our bodies and how to treat it, they are only just acknowledging that Fibro exists even though it has been round for centuries.
I still hold out hope for these new medications they are testing, that maybe they will come up with a drug that helps with minimal side effects. I have decided that in the end it is up to us to keep abreast of the research online because no one else seems to really care. Cynical yes, frustrated yes!
Enjoy your weekend and I hope it is relatively pain free. xxx
I know what you mean about being allergic to everything, even paracetamol sets me off. Have you tried Lyrica it seems to be the only
drug I can tolerate and even then I have to take a very low dose, which cuts the pain by a bit. Every other drug they tried had too many side effects in many instances the opposite to what they should, they would give me insomnia when they should make me drowsy. It sure is a pain isn't it. Are you allergic to all the chemicals in the environment?
Yep......the thing that Really gets to me is that "they Never tell us How to Not get Stressed/avoid stress"....our lives ae made up of stress ....that's how most of us got here in the first place......STRESS...............Bron
Yep stress is part of our internally wired urge for survival. What is more they tell you to meditate and then you read statements from other experts that meditation can cause psychosis. Go figure???
That's about it deb..they don't say much more than that...try not to stress..it will only make your Fibro worse..gentle hugs ..be blessed, have a lovely day..:-) xxx
I hear you Debbie.... I hear you!! Yes, I know exactly what your saying and feeling at that/this point... So frustrating isn't it.
Hugs to Ye xx
Not tried lyrics might ask GP about that only allergic to some chemicals not all but yes it is a pain thanks for ur suggestion
Gentle hugs xx
Yes very frustrating just have to keep going n hope we get help from somewhere x
Gentle hugs xxxxx
Yes cant avoid stress when trying to live a normal life x
Gentle hugs xxxxxxx
well Debbie, when you find "that Help" can you Please send It over to Aussie, espeicially to Brisbane, QLD, and I'll pick it up from the airport, if you can............or post....and pay I'll pay any postage costs...........xx
hi Boqer How are you? hows things with you hun? Hope your not in too much pain. Im in agony with my back at the min but plodding on. hope you have a good day with not much pain take care gentle hugs xx