FAKING IT,
LOOKING FOR ATTENTION
LOOKING FOR SYMPATHY
JUST DEPRESSED,
CRAZY
MALINGERER
We are always in pain,
sick, afraid, exhausted, sad
and one more symptom
We are HEARTBROKEN Because of your Reluctance to BELIEVE AND SUPPORT US.
Oh kaz, how true this is. It shouldn't be this way, because with this amount of pain and discomfort I always think it must show somehow. It's very sad for us all, and kind hugs to you. I only hope that as awareness of fibromyalgia increases, people will start to see how things are for us. It is no fun!!!!! Why would we be behaving like this if there was nothing there!
Hi Boqer I hope that fibro will 1 day have the same recognition as ME MS and other conditions. It is certainly no fun in having this condition far from it. Just wish their was better understandiing of it and health proffessionals better educated in it.we havnt asked for this condition, we certainly dont want it. you dont ask to be ill.you would think with the condition being around for such along time. That it would be more out their. Their is a petition going to David Cameron about fibromyalgia trying to make awareness of it and how it affects us. we need as many people as possible to sign it. I cant say what you have to go on to sign it as the moderator would stop my message. but if your living in the uk and want to sign the petition private message me. I will tell you what to go on. take care gentle hugs
Hi Kaz
I have posted tis today to a few sufferers, I don't think it is a lack of belief, people who have never suffered an illness can never understand and when doctors and ''specialists'' have only drugs to help because they dont support ''alternative treatments'' the community has to find something themselves.
Fortunately for me I do not suffer with many ailments and is there a 'cure' probably not, but I can tell you of 2 people I have met who do suffer from 'Fibro' the first was a lady who was at a convention and I met her when she was sitting on the floor in a que and the second was a lady who attended a 'fit camp' in her wheelchair.
The first lady was introduced to a nutritionist at the seminar and agreed to try a course of specific vitamin supplements and today has a much improved life, she no longer has long stays in bed, she is comfortable walking, she has less bad days of pain and has had a new baby and now has her own business.
The second lady over 3-4 months attending her 'fit-camp' and being coached on changing her diet with the aid of meal replacements has also vastly improved her life.
the only conclusion I can come to is our bodies lack the right nutrition, the vitamin supplements and meal replacements these ladies were on were obviously helping their bodies get the nutrition they needed.
We all know that if obese people with type 2 diabetes lose weight their diabetes can improve, they will always be diabetics, but the symptoms will improve.
Given help, the human body is capable of healing many conditions unfortunately Doctors only prescribe Drugs which in themselves cause other problems which means more drugs are prescribed to counter the effects of the first, and on it goes.
Natural products are not even considered because drug companies cant patent them and doctors are not nutritionalists.
Hi Jim from what you have said about these ladies,is most encouraging. I am unable to take anything pain wise due to being alergic to opoids. so Im buisy researching to see what I can take in the way of natural products. I am eating as healthy as possible and do gentle exercise when I can. also what we have to remember is we are all different sometimes what works for one may not for another.But anything is worth a try especially if you get much improvement like those ladies. Thank you for sharing that with us
Totally with you on that Kaz.
But we are strong and will get through each day even if it is a challenge.
Lets NOT give in to Fibromyalgia. xx
and its about time people start to obtain facts before passing judgement on us
Hi Bee We are strong hun Im not going to give into it, Im going to battle all the way. Im not giving into fibro we have a mountain to climb each every day, but climb we must. onwards upwards 
xx
I wish they would get all the facts first before placeing judgement on us, but unfortunatly they would sooner just judge us so unfair on how we are treated but thats life? battle on onwards upwards we go
Hi Kaz. what you posted is so true.
it would help if we weren't judged before people knew the facts.
But they don't that unfortunately is human nature.
But we will never give up and will fight to the bitter end.
Take care and keep posting.
We will all help one another.
Gentle hugsx
This is so true Kaz, what an absolute tragedy that we all have to suffer this ! Do you know, the worst thing for me is not the complete exhaustion, not the relentless pain, but the total inability for so many to show any compassion to those of us endeavouring to live with this condition. I, am, heartbroken. It makes me so sad to have to admit that members of my own family are actually guilty of this. :-( God bless, & gentle hugs to all xxx
Hi sharon its bad enough when your family dont understand. my husband has just admitted to me he doesnt understand this is after seeing me so ill that my own gp was out every other day to check on me and she got carers in to look after me this has happened for the past 3 years running. he said tonight I have no understand of what your going through its left me so upset if our own husbands cant understand then theirs no hope with any one else. Imabsolutley distraught take care gentle hugs xx
Hi Kaz, I'm so sorry you are so upset, I can totally understand how you might be feeling. I have been married for 36 years, my hubby has always looked after me in every way possible, it has always been an equal partnership, we have shared everything, ups and downs ! But, he cannot understand fibromyalgia ! don't get me wrong , he looks after me, does anything and everything without complaint which I am truly grateful for, I know that I am extremely fortunate. But he just can't get his head around this bloody condition ! He has never actually said it, but I really do think that he thinks it is simply a case of putting your mind to it and snapping out of it. Heartbreaking.
HI sharon its left me heart broken and in a distraught state. Im just so shocked with what he came out with it was so unexpected.I think what it is . is with our condition you cant see it so it s like it doesnt exist. because I try to carry on as normal as you can be never complain or moan. he thinks everything is ok and im ok. it doesnt matter the fact im In sheer agony but dont say anything. Im just so hurt absolutley distraught. weve been married 11 years but known each other 28 years. weve never had it easy in our marriage his mother is interfering and has come close to splitting us up a few times. heartbroken tonight.
I'm thinking of you Kaz, stay strong, gentle hug.
your not heart broken yet he just needs to be educated on fibro and needs to stay quite and listen to you try what i private messaged you and hope it helps either way im here for you and always will x
there is hope and never give up my wife does not understand but she triess to but she said its 1 of those things you have to have totruely understand it but she learns more about it every day just to help her be more supportive and she is fantastic but your hubby would be to if he just listens and learns and i really hope he does for your sake cause i would not want you upset you have been there for me and are a real friend and i love you to bits and i hope things improve for you xx
Hi Kaz. How are you this morning. Hope you are still not to upset. It must have been the day for it, my husband told me yesterday that my back was getting worse because I didn't sit with a cushion behind my back. It hurts so much to hear him say that when I have supported him through an awful lot of medical problems in the last 25 years, we have been married for 34 years and like you been through so many ups and downs.
Try and relax, I know they are only words, but they are said with love and support.
Take care and gentle hugs x
Hi Kaz
I understand how you feel with you saying your husband does not understand your illness. My husband does'nt either, nor my immediate family. They just shrug their shoulders, and say 'you look ok to me'. That's just what I don't need when on a bad day, or even bad week which I am on at the moment. Only us sufferers on here understand this horrible illness. Without this site, I am so alone.
Such perfect words, reflects and sums it all up completely!....
I'm having a =/= day today.. fragmented and pained day..