weird cant explain dizziness?

Hi. Hoping for some answers cry.il start at the beggining. back in 2015 i suddenly started having weird dizziness attacks,iv had them on and off ever since,i would say in the last  two years i have probably had them happen 5 or 6 times evenly spaced out during the year.

Now for the hard part ,trying to explain what happens,i have seen my gp and she thinks its vertigo but the room does not spin ...I have had vertigo many years ago which was a inner ear problem and the room was spinning for days i was given stemitell tablets which did help but i felt very unsteady for weeks after that episode.This however which i get now is nothing like vertigo. I can be sitting watching tv one minuete and then when i look away at something else moving my head its like everything takes a second to catch up ,it happens both ways when turning my head.is their anyone else had the same thing happen to them and has anyone ever been told what it is .please help x

Did your GP check your eye movements?

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

Well firstly 'Vertigo. Isnt a conditon. It is a verb which describes any kind of dizziness. You can have BPPV vertigo symptoms. This is 'crystals in the inner ear,,Vestibular system that become displaced and can cause problems.  You cannhave Migraine Associated vertigo, MAV for short, of which you do not have to feel,the pain of a migraine. 

I have that 'delayed' thing too . My dizziness is me, not the room spinning feeling. The reason for this as has been explained to me by consultants and research is we use three main things for balance, vision,hearing and our vestibular system.  Some people,get it due to their ears, eg a problem in eardrum,,damage etc. But if these arent in sync for whatever reason,mthen the messages to,our brain are confusing and, we get symptoms,,if that makes sense?

i,suggest you go,to the following website:- Vestibular Associated Vertigo (Veda). They are the best, as far as i'm concerned, site,for all things dizzy. Detailed descriptions of all the various kinds, treatments, even lists of Specialists in Uk and rest of world.

 

hi .thank you for your reply x

hi yes she did and all was ok

You're welcome. Hope,it helps. I had to,learn to research as drs etc were not much help! I now know more than they do for the most part!! (Which isn't  that hard)? guess they don't  do Vestibular,system on much detail when it,comes to,our problem!

I would like you to try something for you.  Find a large foam or something similar to stand on, stand with your feet together, and close your eyes.  Have someone nearby to catch you just in case.  When you do the above, do you consistently fall to the same side?

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

Hi.i tried what u suggested and I did not fall either way but I was swaying

It therefore appears that you do not have unilateral vestibular dysfunction.  I agree that what you have is not "vertigo".  All things being equal, I would suggest going to another GP for another opinion, as the first is clearly wrong.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

Do I need to stand on something to do what you suggested because I stood in kitchen floor why does it have to become?

Why does it have to be foam like you suggested?

Without the foam, you are using proprioception (touch) to stand.  With foam, you are dependent on vestibular (balance) sensation.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

OK thank you .I will try with foam. I have a memory foam pillow will this be OK?

hi. i tried the foam test . i put two memory foam pillows together stood with feet together ,closed my eyes and i began falling to the right side .i did this again a few times and i do fall to the right side so much so i have to open my eyes to stop me falling.what does this mean?

This means that you have vestibular dysfunction with respect to the right ear. I suspect that you are suffering the consequences of poor compensation for a vestibular neuritis that you had at the beginning.  You therefore need vestibular rehabilitation to help you compensate better.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

​Fellow of the European Academy of Neurology

Thank you for your help ..should i go back to my gp with this new found info?

Yes. I would also recommend doing a caloric test to confirm this.  This should also show hypofunction with respect to the right ear.  Also, ask your GP to test your eye movements in the dark in the absence of visual fixation (using a flashlight).  He or she should see nystagmus beating to the left.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

​Fellow of the European Academy of Neurology 

Thank you i will ....can you just explain what a caloric test is and how this is performed ?

Hot/ cold air/water in the ears, and the eye movements are recorded.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

​Fellow of the European Academy of Neurology

Hi. Thanks for explaining caloric ...my partner did the foam test just to see if the same thing happened to him and it did he consistently fell to one side and he has never had a balance issue in his life so this don't make sense. I guess if most people did this foam test the same would happen.but thank you for trying to help