well i woke up at 5,30 this morning, as it was a lovely sunny one i thought do some washing and hang it out.
Did!!!!!! then the rain came dashed out to bring it in,
We went to rothbury a nice little town, and had a LITTLE walk, and guess what hubby said are you ok doing this! i felt better for that
Had a few new niggles, panicked then remembered what you all said breathe, try relax and guess what it worked for a bit, but i am getting there.
still trying 7.5 pred.
trying nettle tea for the itching as i wondered if i might have an allery as my eyelids are puffed up in the corner and i know this can be a sign, as i had a very made case of hives 8 years ago. My whole body swelled up in big blisters, could not eat for 2 weeks and was on amino acids.
It worked.
Has anybody tried boroco i thinks that what its called i think its a vitimin drink.
Hi Margaret, lovely to hear from you and you sound more confident. I am relatively new to PMR so I can only tell you about my experiences. I did try Barocca, it's vitamen C it's a wee bit expensive I though but have since changed to Healthspans Vit C. Hope it helps, I take mine every day without fail. So easy does it and you will get there. All the best. Regards Pat ps and don't forget to breathe deep breaths.
Beroca is not Vit C - though it does contain some, it's primarily vitamin B and is supposedly good for energy. I take it every day but I don't really know whether it does any good because I probably get enough vitamins from my food. So I guess I'm just taking it as an insurance policy and because I like the taste. It's quite expensive too. But certainly worth a try.
Ask him if he'd object to you going to a support group coffee morning? The UK PMR forums are no different - that's why some of us hang around to make sure there is a minimum of "s%6&" and anything scary is de-mystified. And the links we give are safe and reliable with no woo.
My google search is so well trained it only gives me medical links to real sites
Yes - you should tell him it is a site set up by doctors for doctors originally and then they added patient information pages too. The forums are very closely moderated, both by computer screening which is why some posts disappear for a while as well as people.
Hello Girls.it is dull&raining here hence on Laptop, i might be pushing my luck but A/O, i have no faith in wonder drinks etc, I have tried them all from Hello Vera to Green teas none worked for me,i just try to follow good advice on Diet.I also think we can upset ourselfs by seeking to much info,Like most i stick with the 3 main forums.margaret i may have missed it have you got the Dvd&kates book,i passed mine onto family.all my info has come from the Girls who were there at the start off these Forums.if i may? give my regards to a fellow grump.Hope for the most your break has gone well.take care. Dave
Margaret, you are educating yourself by using this site and reading peoples comments. Asking questions and getting answers is not scaring yourself, you are getting information from educated people and their experiences. I have two sons and one of them does understand my condition with having ME for 14 years, and a short stint with fibromyalgia and now PMR since November last. My oldest son I don't think he understands or doesn't want to, probably the latter. I still don't have an appointment with Rheumy, there is a 6 month waiting list for urgent patients.
I would hate to be without this site. I have learned so much about PMR/GCA and steroids. So you keep on logging in and ignore if you can, any negative comments from anyone. Good luck Margaret on your journey. Keep in touch when you can. Regards Pat
A university friend lived in Hanging Heaton for many years, was a GP in Batley. If you need a good PMR rheumy ask to be referred to the Leeds rheumatology department at Chapel Allerton - probably one of the best in the country for PMR and GCA.
Hello again, your husband comes out with pretty much the same statements as mine....I am struggling at the moment, and don`t know if it`s because I am lowering the steroids (from 17.5 to 15 over the last month) but my energy and blurred vision are very bad, and like Pat with ME/Fibro as well, it`s a minefield trying to figure out what`s wrong and how to handle it. My husband said to me 3 years ago when I came home with my first lot of steroids....no good will come of that, you going on them, which he repeated last night, and I almost found the energy to respond!! Also the amount of people that say "you look well" errrrrr. I have learnt that there are few people that really understand, when we are ill, and it`s a waste of precious energy trying to explain....keep strong and keep up the fight I say!!!
My nurse daughter told me I should get off the steroids as they were dreadful things - her attitude has changed since they are the only things keeping her asthmatic daughter alive.
I think a lot of it is fear on their part - and, being a bit pointed about some husbands, a nagging feeling they should be doing more to help. The men who help their wives with the things they can't manage any more seem a lot less anti-pred or anti seeking help on the internet - which comes first though I have no idea. Does that make sense? I know what I mean.
And before any blokes on here get defensive or offended - you all KNOW what it is like to have PMR. In your cases - are your wives a bit "must be man flu?"
I have always had the nagging feeling that the doctors probably know more than us, what steroids MAY do to some people, but until you have been in such pain and restricted......I have never been able to tolerate medication..so was overjoyed to be able to take something at the beginning, for relief, and boy was that quick, my family and friends were amazed at the real me!!.. for a while....but it has become complicated, with the lowering. If I had known about this forum 3 years ago, |I think I would be like you now Eileen, on a maintenance dose, As I have posted recently, my husband has wonderful health, so he dosen`t have a clue. He does all the heavy work, but is retired so.....There is always a trade off with meds, not just steroids...My sister after a year of suffering with severe pain and stiffness in her knee, and being housebound at 49, is now being offering Methotrexate, but may people have told her it``s wonderful, or not to go near it, so it`s not just steroids...(.Yes, Eileen I do know what you mean!) My husband says when anything (illness) comes along, just refuse to have it aaahhhhhh!