I have swollen limb and gain some usual weight. Still on prednisone of 20mg. I need alternative to the prednisone please
Hello Teddy, what country are you in?
How long have you had PV?
I live in Nigeria. I have been having PPv since a year ago. It really not being easy . I need help on how to manage better. Really afraid.
Hello Teddy it must be very frightening for you when you feel so alone.
Rare Connect is a support group for people with Pemphigus & Pemphigoid. It would be a good place for you to start because there are people from all over the world who are members.
I will send you a personal message Teddy, my post is waiting to be moderated, don’t be afraid.
Have you been given any drugs to help you with this disease?
Yes, I was placed on prednisolone 30mg, Aziathioprine 50mg every day for 2weeks and tappering down with prednisolone 10mg after two weeks. The blisters are healing now. But difficult tone sleep. My BP jumped up so, am on 10mg Almodaphine . Thanks again. I have joined rare connect site today.