I am in a panic! Been handed a food death sentence and am worried anything I eat won't be right. What does a vegetarian eat with allergies with an diverticulitis flare up? Just so so confused. Can you die of diverticulitis? Am scared to death, worried and panicked. No jokes please - frightened enough already.
How did u get dianosied with it and u can’t die from it just got to watch what u eat that have pips in it who ever diagnosed u should of told u what u have to watch what u eat
I think the doctors and dietitians should all close. The real experts are the people on these sites who have 1st hand knowledge of what life is like to live with something as difficult as some of these things people ask help for on here. I take it you have something similar or diverticulitis? I have something similar called diverticulosis which I believe is the same sort of thing. I am fuming though - my doctor thinks it's a joke and my dietician thinks it's easy to play it down. I could cry, just a dietary sheet online as to what to cut out. I am vegetarian with allergies and don't know what I eat but then to top it all I get told it could take up to 2 months to see a Dietitian, in the meantime I do what? How can I tell what is high and what is low fibre? I'm just so confused 10 years with so called ibs, to be told no we got it wrong. Please that's why I asked for help on here. Thanks for replying.
I am having a flare up now. I was in the hospital for two days and got out Sunday. I took home the pill forms of the IV meds I was on. They didn't change my diet so I was trying to eat normal food. Bad idea. I have been eating a bland diet the last couple of days with bananas and dry wheat toast. Didn't help the pain any. Just a few minutes ago I ate some mashed potatoes and I'm hoping they don't make me sicker. The meds are so strong that you have to eat something. Did they give you antibiotics? This is my second big flare up.
I would take your diet sheet to your doctor and explain that you don’t understand it and that you are very concerned and anxious. If you don’t get help, tell your doctor that you will see someone else.
However, I don’t understand why it will take two months to see a dietician if you already have one.
The thing I worry about with diverticulitis is infection, absesses, and perforation. I check and make sure I'm not fevered. I had a low grade after coming home from the hospital. That is why they give us antibiotics to take care of infection when white counts go high. They did a CT scan with Contrast for me that showed the inflamed diverticula. I am taking two antibiotics right now and they are tearing my stomach up. I wasn't given a diet or anything to follow and my first attack was years ago. Now I have several other conditions to have to worry about as well. It's maddening.
To be honest Pippa I feel like making a formal complaint about this as I feel someone has got to answer why my health is so bad. I have in the last while just felt so ill. I think all health professionals are absolutely useless. My diet is as stripped back I can get it and yet I am still struggling. I now give up. I have seriously asked my doctor and Dietitian to take my bowel out and replace it, I asked at the hospital too. A dad with diverticulitis and grandfather with bowel cancer you can now understand my fear. My doctor is useless too her answer? It's nothing serious - it's bad enough if I can't eat isn't it? I will see my doctor and very soon. I'll let you know what they say to that!
I rang my doctors a weeks wait for an appointment. Rang to see if I can start the process of making a formal complaint for my misdiagnosis 10 years ago. Hopefully this will help.
Oh you poor girl I feel for you! Do you have ibs or diverticulitis? I didn't even know what to eat last night as I was so lost. I hope you find something to eat as I just got so stuck - everything has fibre in it!
If you are reacting to the antibiotics, ask your doctor to change them for something else.
Did you have a colonoscopy to confirm you have diveritculitis?
I have had a camera up, a camera down, a ct scan most recently, punch biopsies, a milk test and 24 hour probe test for acid. The ct scan said diverticulosis. I am just unsure what the difference is between this and ibs and what to eat full stop. I've now started a complaint procedure as I have always thought the initial diagnosis was wrong. My grandfather had bowel cancer and my dad had diverticulitis. Can't hospitals see that link? Flare up a little easier, but not much!
Diverticulitis and IBS have similar symptoms so they can be confused. It is possible however to have both conditions. On the other hand, IBS is functional and doesn’t show on scans and is normally only diagnosed when all tests are negative.
Diet wise, you could continue eating the things you normally eat if they don’t cause flare ups and avoid the things that you know are trigger foods. Diet sheets tend to give general advice and don’t take into account individual circumstances.
When I was given an IBS information leaflet, I found that most of the tips didn’t apply to me and I found my own solutions worked better.
Last year I made a complaint about the dodgy blood test I had three years ago which led to permanent neuralgia and IBS. The nurse who caused it and the Practice nurse who laughed at my complaint both got the sack! At least I got closure even if I am still in pain. I think a complaint often helps people to come to terms with a medical mistake.
Hi Pippa, I am already 1 step ahead of you. I will be making a formal complaint as I don't see this as a joke. I will sue them if necessary as they have made my health awful for 10+ years all because it was better to misdiagnose me with ibs, like diagnosing people with a virus! I will let you and Kim as she's responded too how I get on next week and with the complaint.
The very best of luck to you.
I honestly have no idea what to eat either and no idea what caused this latest flare up. I am feeling a little better but I have pain anytime I eat and have to eat to take the meds. Ugh. How are you feeling?
I have taken flagl before but it just makes me so sick. I try to eat with it but that hurts. I'm also on Levofloxacin. It's hard because I have medicine allergies.
Tell your doctor about your medicine allergies. There may be something that is mild enough for your stomach but strong enough to deal with the diverticulitis. My stomach reacts to a lot of medications too so I have to tell my doctor and dentist every time before I am given anything.
And you. X