Been having a dull headache for 3 weeks now, had a weird sensation 2 days ago my face, arm and leg on my left side all felt weak? I still had feeling and control but they felt weak, its hard to describe but its like my face was just feeling droopy on the left but no physical change
Went to a+e after the first episode had CT scan and reflex tests done, everything ok
was pretty fine after that, got home went to bed.. Woke up a few hours later and was ok, few more hours sensation came back, has been the same all day and today, sometimes it'll feel less weak and other times it'll feel really strange along with my head having a weird ache and a pain in my left eye like an ache
I cant explain it, feels almost like a dead arm, leg and face but not completely dead?
Doctor at A+e said everything was clear and he thinks its possibly just a migraine
I do seem to suffer from depression and Anxeity.. could be related?
Hi Sam,
Interesting the dr in emergency said its "just" a migraine! I bet he doesnt suffer with them, else he would NEVER say this. I was diagnosed with Hemiplegic Migraine, which symptoms are similar to what you have described and this followed a lot of tests by a specialist headache Neurologist.
I wouldnt just leave it at that, but get your GP to refer you to the best Neuro he can find, to run tests. You need at least a detailed MRI scan to rule out anything sinister a CT scan is not detailed enough.
Yes, depression does have a bearing on these type of headaches so my Neuro told me, so I was able to eliminate some things in my life to help this, plus I was offered Botox which together mean I havent had an attack since January.
Let us know how you get on, but this is my advice anyway.
Good luck and best wishes
Hi personal20 does botox help with the hemiplegic symptoms too or just the migraine pain. ?
Hi babs,
In my case it has helped with everything to do with HM, but I discovered and the drs confirmed that de stressing your life helps too.
Are you considering Botox babs?
I have Chronic Migraine with Aura and no medication at present. Was declined for botox and seemingly on top of the list for some new treatment suitable for cardiac patients. Not sure how long I will have to wait though 😢
Did they say why you was declined Botox?
Its not available yet on NHS where I live and because I already had nerve block previously with no results I think thats why.
I had nerve blocks too then went on to Botox. You are right that you have to wait a while after having nerve blocks before they allow Botox. I go to London for my Botox, which is not my area at all. This could be something for you to think about if you are not too far from London
I am in Scotland. So quite a journey. I have heard good and bad about botox. It works for some and not for others. Meanwhile I wait painfully. Sam however should get referred to a Neuroligist and get diagnosed. He/she wouldn't be offered botox straight away I don't think, they tend to try other treatments first.
You are right babs, Sam should get refered to a Neuro, not just fobbed off saying oh its just migraines! Yes it would be quite a journey to London to have Botox, but for me they have been great and well worth the travel
I acquired Long Qt Syndrome through migraine meds that put a halt to treatment and more or less has made me a prisoner as I cant get treatment for other conditions either. Not sure I could make the journey to London without getting a migraine enroute and ending up unable to function for a few days. Glad it has worked for you though ☺
I think Botox could be good for you though Babs as its not like taking meds. How on earth do you cope with no meds to help you, it must be so bad, I am lucky that I can take something to take pain away or go get Botox for it. I get 2 sorts of headache. Cluster and HM, and the problem is what helps the cluster, doesnt help the HM, so if I take a lot of meds for cluster, then I risk getting HM
I don't cope well and have anxiety and depression and high bp all which can't be treated. I had to give up work and in constant battle fighting the system to get benefit.
sorry to hear all that Babs, I hope you get somewhere with it all soon.
It sounds a nightmare! Just come on here and chat when you get down I will answer as soon as I can.
Have to go out now,
Take care
I thinknit does sound like hemiplegic migraine but sometimes that can have an underlying cause. In my case it was caused by an auto immune disorder. It is worth ruling this out if you have any other health issues going on like gi issues or any joint pain dry eyes or mouth or light sensitivity. I would ask for a referral to a rheumatologist.
Having plenty of GI issues, pain in knee joints too
Yes this is where you need to be seeing a rheumatologist or an immunologist. I had all of this too and was going from one specialist to another. Diagnosed with migraine, diagnosed with ibs. It was none of those things. Or at least they were all seemingly unconnected issues but were all connected and caused by auto immune disease.
I was finally diagnosed 12 or 13 years ago afyer a referral firstly to a rheumatologist who recognised I had an underlying inflammatory condition. Then an immunologist who diagnosed me after a year of monitoring. Look up headache in Lupus and see if that looks like your symptoms. There are many auto immune disorders but they have a similar profile.
Do you still have migraine as part of your auto immune issue Margaret?
Yes Babs it has been one of the main features but for the past 3 years all of my symptoms....migraine ibs joint pain other issues....have been well controlled by taking interferon. I recently had to stop taking it and I am waiting to see what happens. I currently have some ibs issues returning and a bit of joint pain. The migraine has so far stayed away. I am crossing everything it doesn't come back as it is hell on earth. Have you ever had a full diagnosis of your symptoms?