Hello everyone,
I would like to start to follow and diet which can reduce my current flare up and any future issues with ls but my problem is that I am nearly underweight and I have heard that a lot of these diets make you lose weight.
Does anyone have any suitable suggestions for a diet that will not make you lose any or too much weight?
Thank you.
Also, my gyno refuses to do a biopsy to make sure that it is lichen sclerosus so I self diagnosed it myself sort of. I am also applying betnovate at the moment and I am wondering how long it takes for this to work?
If I was you I would ask for second opinion, especially if you are seeing signs and symptoms of LS!
Hi soso
Where do you have LS I seem to think sugar aggravates it and dairy.
Have you ever had an abnormal smear test only some hydrocortisone creme can activate hpv, but definitely eliminate sugar
Hiya
Cut out dairy, wheat/gluten and sugar including natural sugar. There are plenty of dairy free/gluten free options in supermarkets so you shouldn't lose weight at all. Good luck! X
There are white plaques and I have told him that they are spreading but he seems to be adament on believing that it's due to some kind of irritation or allergic reaction.
I have it on my vulva and no I have never had any smear test as I am only 18.
Hi just to say I have self diagnosed whilst I wait for a consultants appointment and have started treatment as well. This would interfere with the bipsy results but as I heard that they do not always do a biopsy but see if it responds to treatment of Betnovate. So that is what I am doing and it does seem to be more comfortable after a couple of weeks.
I thought about diet but I do not want to lose weight either. I tend to eat healthily anyway and have always avoided strict elimination diets because it is so difficult to be sure of the results. I may look into it further though and see if there is any science behind it. Lots of useful info on the management of it in other forums.
I would insist on having it properly diagnosed so you are on the right track.
With the diet I would eat well considering your low weight such as full cream milk, butter, cheese, meat with fat still on, lot of fruit and vegetables and even some chocolate.
When my grandson was underweight my daughter was told to give him cream as well. Bread as well except white bread because to get it white they use a nasty chemical, bleach.
I have never found any connection to food but I do suspect autoimmune as I have several of those. My specialists have advised no food connections and they are a research hospital.
I do avoid sugar as I am a diabetic. Also, I have crohns so I have enough to balance with that as well.
Everyone should have a healthy diet for the most part anyway.
NowI have been diagnosed with osteoporosis especially in the back so putting everything into perspective there are worse things than LS once you get good at managing it which takes a while.
How very sad it is when the doctors cannot recognise LS, or when they do not really know what LS is!! If I were you I would get a second opinion. You need to find someone who really knows what they are talking about! Where do you live? I was lucky to hear from someone on this forum about a knowledgeable doctor of LS and I have made an appointment to see her. I can't wait!
Anything with sugar seems to aggravate things for me, not so much fruit though thank goodness. Even honey gets a bad reaction and I love honey!! Yoghurt, but strangely not milk, although I don't drink more than half a pint daily in tea or coffee! I have had to stop using sweeteners, but I am not prepared to give up milk!
Are you vegetarian?
Betnovate is not as strong as dermovate. I used it to begin with but have not switched over and dermovate does the trick for me!
Good luck and let us know how you are doing.
\please read "now" instead of "not"
Hi soso
thought you you would be interested to know - I went to see my doctor today who is a specialist in LS/vulvar problems. I told her that I don't use the steroid cream anymore (or anything topically) and have just changed my diet (no sugar/dairy/gluten) and she was very pleased that my LS has gone completely into remission. She said there is a link with autoimmune diseases and food and I should just carry on doing what I am doing and discharged me completely. I don't even need to go for an annual check up! If you google dairy and sugar you will see that they are both hugely inflammatory to the body. Give it a go - you have nothing to loose. I think it took probably 3-4 weeks before I saw a difference. I do think we are all different tho and have LS for different reasons and you have to try different things to see what works for you. I really hope you find out what will help you very soon so you can control it and not the other way round!!! XXX
I am using betnovate, which my gyno has prescribed but it looks like it is making things worse. The plaques are getting bigger and I did tell him so but he keeps telling me to continue using it.
My gyno keeps telling me that it is not lichen sclerosus but he is also not sure what it is. Thank you for the advice.
I live in London and I am trying to completely cut out sugar and gluten. I'm not sure whether my gyno would give me dermovate instead as he is believes that it isn't ls 
I will continue to use betnovate just incase
Soso
Ask your GP to refer you to Dr Wendy Reid at the Royal Free Hospital in Hampstead Heath. She is fab - very knowledgeable and open. She will definitely be able to tell you if its LS or not. You may have to wait a few weeks tho to see her.
xx
All the more reason for a diagnosis as then the actual cause can be addressed. All the best soso86525!
Yes it is difficult to get everything in perspective especially when young but as we age we accept things start going wrong with our bodies. The awful photos that can be seen are frightening but that is worst case senario most probably untreated for years and there are many around with controlled symptoms and deformity but they would not warrant a photograph.
I am always hesitant to try faddy diets and only if there is scientific evidence would I consider it. The same with lotions and potions as I was tempted with my sons eczema to try everything to get relief but you have to be systematic and only try one change at a time. Also give it time to work unless there was an obvious allergic reaction..
These chronic conditions do take time to get on top of them.
I could not agree more. I use the ointment prescribed and the moisturiser prescribed by my specialists. I do not touch my diet except to address my conditions which include osteoporosis which needs calcium so dairy is necessary as well as some other vitamins like D. I am not dairy intolerant thankfully and K2 is in there which also helps the osteoporosis. I have enough to balance with diabetes and crohns without starting to eliminate vital nutrients. I am more concerned with having a balanced and nutritious rich diet.
LS is not the worst thing I have but I am careful to keep it under control which is easily doable with Advsntan fatty ointment used most days.
For me it was definately the cutting out of sugar and the gluten free diet that made a difference. For other health issues I already had to omit alcohol and caffeine. I do eat a good portion of fruit every day, often fresh from the garden. I do well with berries for instance. And I eat as much as possible fresh produce. Whatever is in season.
As for dairy productss - I still take a small portion of a good quality yoghurt every day, but feel sick/nausiated when I drink milk. Cheese seems to trigger LS.
It takes careful observation to find out what foods work best for you and what foods to avoid.