Hi, I'm 48 and just had a biopsy today to confirm LS. Results in two weeks. The treating Gyn said it looks like a mild case. although she was nice and considerate, I did feel rushed and when describing my symptoms she assured me it was most likely LS. And would be treating me with steroid.
i imagine she will tell me more in two weeks, but I'm wondering what is considered a mild case?
i don't really get itching or burning, but sex is very painful, so that's off the table at the mo.
is it normal to have LS but not experience itching or stinging?
My issues starts about 3 years ago after going through chemo induced menopause. Mainly vaginal dryness and I was diagnosed with vaginal atrophy. That led to irritation and infamation.
I had 3 mona Lisa touch treatments and that fixed the vaginal atrophy but I didn't know I had LS. So still pain with sex and because I stopped using oestrogen cream, my VJJ quickly started to shrink. I'm going to watch the webinar about it tonight with my hubby, who by the way has been so understanding and patient.
thanks for this forum it's saved me a lot of worries and tears.
So even with the mona lisa still have to have hormones huh?is that indefinitely.I like you have ben told i have a so called mild case by one doc,another said i dont..guess i need a biopsy or third opinion.just wish these doctors new what they are doing.I honestly dont know if my symptoms are all from the atrophy or also from the so called mild case of LS.at present i barely have any itch.all ive used is a hydrocortisone cream 1 percent over the counter and some a and d ointment.I do get some burning and irritation.keep us posted.
I'm in the same boat. Itching and stinging only when I'm having a flare-up, which is not often, and I've had LS for ten years now. I can't comment on the subject of sex because I'm not in that kind of relationship at the moment and I'm 66 amd not missing it that much! It's got to be tough at your age and I'm glad to hear you've got an understanding husband. That's a bonus!! 
I think if I want my vagina to be nice n plump n soft again I'll have to start with the oestrogen. I wondered if stopping the hormone caused the shrinkage I'm experiencing or if that's the LS.
Its true, even the female Gyn I saw yesterday didn't talk much about LS or the condition I'm in. Just did a biopsy and said come back in two weeks.
Im just freaking out about it turning into cancer.......I already have non-hodgkins lymphoma follicular which is in remission ( but like LS is incurable too)
Hi Andrea, 10 years!!! How do you monitor it for cancer? Seeing as we have a 3-5% higher risk of developing it. My husband is amazing. He is so patient. A real gem.
So do you use the clob regularly?
My gyne sees me every 6 months, so if cancer shows up, she'll be on it. I've been using mometosone ointment (cortisone .1%) twice a week.
I dont know about you,but i wish i had a bionic body..always something to worry about.I worry about all this too and unfortunately the symptoms dont let a person forget it.I am on an anxiety med..i have a bad back etc.I just finally gave in and asked for an increase in my meds.i havnt gotton much done lately and it helps me deal with all this.
Yup better to stick with regular exams
Yes it seems the older we get the more health problems we get. That just sucks! I'm on anxiety Meds too otherwise I'd be curled up in the fetal position 24/7. I try and take one day at a time and if that's too hard then one hour at a time. I wish I was brave enough to talk openly to people about this rotten disease.
That's good. But you don't have a biopsy every 6 months surely???
I tell just about everyone..they dont understand and frankly seems like they dont care to hear about it.Even my closest friends dont understand.
No. I only had the one biopsy and that was at the beginning when the whole area was red and nasty-looking. It's been pretty much under control since then. I've been lucky so far, touch wood!
Do you have any of the classic white areas or is it just red?
I have a white streak more towards my vagina and running parallel to the vaginal opening on one side. It appears to be getting thicker and requires cortisone to keep it from spreading.
I've been instructed to use the cortisone over the whole vulva, but that induces side effects like small raw spots which get worse with more cortisone. When I've had those, I've learned to avoid them with the cortisone and that gives them a chance to heal.
Now I'm starting to use testosterone on the non-white areas. I recently had a flare threatening on the 'normal' skin, and testosterone is working very well - doesn't aggravate the red spots - takes down any inflammation.
I have a red spot,she said was probably from past irritation.not suspicious though.I was very irritated for a few months.also had some erosion areas which i think was from wearing tight pants and friction.
I am just so sick of this,costing a fortune with docs,still not sure..i do need a biopsy but new heath ins next year i am sure we will be getting a crappy high deductable plan..that will really help.might be going on hrt and thats expensive..ugh.my body will make ne broke.
I only wear skirts - no underwear lol - and only cotton slips. Once in a while I'll put on some baggy pants and some soft cotton underwear.
Sorry to hear about your expenses. Yuck! I'm in Canada and it's not an issue here. That is tough.
Finding myself in the same exact position as you. Am 50, dealing with menopause and the last 6 months of shocking atrophy. I have shrunk to a non-penis accepting size. The shrinkage is all the way inside, not just the opening. Am using estogen pessaries and topical cream for the vulva. Also trying to stretch with dilators. Sigh! So horrible isn't it. x