ive seen it a thousand times but cant find it; an acquaintance of mine who has had pmr for 15 years and is currently on 1/2 mg. (she says forever which is pretty darn good) asked me about the relapse rate after discontinuing pred but i cant find it. thanks.
I think our autoimmune inclinations are with us to the end. I’ve had 2 severe bouts of PMR twice, went into remission twice after 1.5 years each. I have very very mild symptoms now, on 2 mg. pred a day.
But we’re all different. We just attend the same school.
Good luck.
Dan
thanks! glad youre doing ok now. i should have been more specific in my question–im looking for the stats regarding relapse in relation to the time on pred. seems like its almost 50% for those on pred for 1year and then decreases as the number of years increase.
i think youre right about it being with us to the end. im just now tapering to 5; started pred 2 1/3 years ago–but whos counting? will stay at 5 for several months once i get there.
Honestly don’t think there are figures to be found. I’ve not seen any.
im using the wrong word, per usual. maybe its recidivism? return of pmr? i seem to recall that for those who get off pred in one year, the return of pmr is something like 49%? for those on pred for 2 years, the relapse rate is lower and so on.
I know I have said that people who get off in a year or so are at a higher risk of relapsing (who cares what word, the doctors can’t agree on the difference between a flare and a relapse) but I have never seen any numbers and to be honest I doubt they could be accurate anyway. How do you differentiate between the persons who stop pred and the symptoms appear a few weeks, a few months or a few years later? Or who can stick at 1mg/day for yonks and are fine but it all comes back later without changing dose?