Hello first of all.I have been having lower back pain off and on for a while but for the last couple weeks I have been weak and nauseous and my potassium is high.I am anemic but never felt like this.My sister had kidney transplant. I am scared to even mention it.
I'm having lower back pain too , so much but I also have MS which is confusing. I'm so tired of being sick I'll be so relieved when I'm not hampered by this sick body anymore.
Never diagnose yourself. How many people finally go to the doctor thinking that they know what is wrong with them and it turns out to be something totally different. Just yesterday I was talking, in person, to someone who went to the doctor for a pinched nerve, and it ended up to be a thyroid problem. I myself went once for what I was sure my appendix, and it was just a pulled muscle. My kidney was removed because of cancer. I then got pain in the area where the kidney was removed and in the spine in the same area. I ran to the doctor. He sent me for Xrays. It was just again muscular. Instead of thinking the worst, just go, and see what the experts say is the problem. By the way, you know what my symptoms were? NONE. the problem was found during a routine scan that had nothing to do with pain or any symptom at all. You never know.
Most of my ailments were found by accident too...except for the seizures and ms...one musn't put doctors above themselves, In 99% of all the doctors. Hospitals I've been to in the last 63 years, I see most of these clowns called Drs are just that. I've had medical training in college yrs ago so I know a bit more about conditions than the average Joe. I've diagnosed myself quite a few times and then got a "professional" diagnosis which confirmed it. The majority of these bozos only care about how far their wallets are getting.
Not far, FAT.
That's the predicament I'm in . I have to look up stuff because I have suffered for years with mystery symptoms.Last year I was diagnosed with a blood disorder.My dream is that a great dr.will finally help figure this all out and we can heal this body of mine.I don't look sick but I am sick and can't hold a job.We went down to two hours and I still couldn't work right! I learned not to put my self in anyone's hands .
What all have they tested u For?
What all have they tested u For? R u heat intolerant? How's your bladder?
My first symptom of CKD was age 17,.had a huge huge stone stuck in my ureter, nearly died...emergency surgery...had 24 hours left to live.
My bladder seems fine.I get heated alot and I choke alot .Numbness and tingling in hands and legs,poor circulation,blurred vision.I have mvp and high platelets,33 allergies, headaches.
I ask abouy your bladder because 90% of me patients have urinary issues. Do u get kidney infections alot?
MS not me . My phone is retarded
Nina,
I'd definitely get to a doctor and have them run tests. If they run a renal panel you'll know whether you've got anything to be concerned about with your renal function.
As far as early symptoms o experienced for my CKD I would have to say none. My labs showed difficulties long before I began developing symptoms. My earlier labs showed elevated potassium levels as well as anemia. But there are numerous problems that can cause those lab results so it wasn't clear that it was CKD for a few years after those initial labs occurred.
I realize that my CKD cannot be ciured; I'll have this for the rest of my life. But I find that with effective treatment I'm feeling and functioning quite well. However, I need medical support to achieve that outcome.
So I wish you similar outcomes. And, keep hunting until you find a medical team you can trust!
Marj
I have had kidney infection twice in my life.
Well said marj. Sure there are doctors that are "bozo's". As there are in any profession you can name. And it is likely that in some hospitals and institutions because they pay too little, they do not get the cream of the crop. But a blood test is a blood test. A CT Scan or an Ultrasound is the same everywhere. It does not take an expert to diagnose CKD. To self diagnose with just visiting a doctor is just silly. Now once diagnosed you certainly want someone with ability and that you trust to guide you medically. Find one. I have stopped going to a couple of doctors because I felt they did not hear me, or listen to my needs. Then I found my current team of a urologist, a kidney doctor, an oncologist, a cardiologist, a primary care, all associated with a well respected hospital in our area, and I feel confident in their opinions. The advantage too is by having more than one doctor you can compare their recommendations and diagnosis. Sometimes they do not all agree (mostly they do) and when there is a difference I bring it to the attention of all concerned and ask them to sort it out. But to believe that all doctors are useless and don't care for their patients, is just a small minority.
Rick,
I've had similar experiences with doctors. I suspect most of us have had some less than optimal care. I've "voted with my feet" when I encounter that sort of situation.
I now have a team who are associated with the most reputable medical facility in my region. It has made a tremendous difference! I feel MUCH better. I'm functioning MUCH better. And I trust them.
Like you I look for consistency across my team. When there is a difference of opinion, I bring it to everyone's attention so they can work together to get it sorted out. I find this multidisciplinary approach to my medical care is much more effective. But it can take some time and persistence to get this all set up and working well.
Nevertheless, it is absolutely worth all the time and effort to get a medical team in place that is able to provide effective care. And yes, I'm a real data geek. I keep a close eye on my data--you're right, no matter how marginal the doctor may be, the data is the data. I've recently changed nephrologist and am not only having better treatment results; I'm also learning that my prior nephrologist was really accurately diagnosing a part of what has been causing havoc for my kidneys. Clearly a change was needed! I'm thankful to have found s nephrologist who knows what he is doing🐶
Marj
Where do u go?
Dear Nina, How it was diagnose? I am KCD 3 but doctor did all different kind of blood tests including a biopsy, but nothing was found what has course this problem. Deep in my mind, i think i should have a kidney infection/decease. I had a slight BP problem for few years, and my physician told me that cant be the course for this in my age (44yrs). My sugar is normal. I am desperate Nina. Thanks, CS
Uf health
My reasoning is if you see a group of symptoms or long term problems the antenna should go up . Even when I have a diagnosis I am the one who research to find out if I should exercise and eat certain foods or take certain medicine and natural remedies ,yet we're told we not doctors .A person is going to be alarmed if you tell them their organs are enlarged etc! If I can't work what do I do?For weeks you ok then a flare up like your body lost it's mind.The forgetting is frustrating and embarrassing!