Hi guys
Does anyone know what will get rid of the White patches? As they have scarred bad and are starting to really cause me distress and upset when I look.
Anyone know what will help it blend into my skin or medication? Some are raised aswell which seem like it is impossible to go away
Hi Lara,
Have you been to your gynaecologist and had a diagnosis of LS? White patches are a pretty sure sign. You need to get the standard prescription and use it properly. Do watch Dr. Goldstein's presentation so you're up to speed on this horrible disorder that nobody talks about.
https://patient.info/forums/discuss/dr-goldstein-lecture-271556
Two things:
1. stress makes LS worse, so freaking out will only trigger a flare. You might look into various mindfulness practices.
2. if you're having intercourse even though it hurts, the friction and bodily fluids will make it worse. Wait till you get it calmed down.
Now, aside from the meds, which are for life, there's a lot you can do to keep LS calmed down. One thing you can do right away is cut way down on the most inflammation-causing food – sugar. Even piles of fruit. It's not an allergy, you can have a normal small amount. Just no candy bars or big, sweet desserts, ice cream cones, etc. This will make a difference quickly.
Have you stopped using soaps and smelly stuff on your undercarriage?
Are you wearing cotton underwear and loose pants?
Bathing with 1/3 cup of baking soda in the water is very calming and healing.
A diagnosis of LS and proper treatment can stave off disfiguring scarring and prevent cancer. The appearance of white patches is the least of our problems.
We all freaked out for awhile after diagnosis (or just figuring it out for ourselves on the internet) but joining this community and being able to talk about it and get helpful tips makes a world of difference. I've had LS for forty years, but was only diagnosed in 2013. I had two children naturally, lots of satisfying sex, and I'm not going to get squamous cell cancer of the vulva because I'm looking at my undercarriage every day with a shaving mirror, using the prescription properly and keeping it slathered with oily stuff to keep it from drying and cracking and to act as a barrier against irritating urine.
Hope this helps. Glad you found us.
And to make things a little more pleasant, after Morell's suggestions: Take a baking soda bath (add one third to half a cup) and have a soothing bath. Then use coconut oil royally to make all flexible and comfortable. And rinse with baking soda in a squirt bottle (three pinces) with warm water after each bathroom visit.
Thanks morrell I really appreciate it
Yes I have been diagnosed with it and I am 17 years old however the itch has been controlled as I have been treated only after a year of having it.
I understand that I am very lucky howrver I do experience discomfort occasionally but the worst thing is the white patches which make me more upset as I am very young. Hope you are staying strong and it's sad to hear that you've had it for so long!
You are very young Lara. this is a "club" no one wants to join, but we are on a very supportive site. Where are you? Can you ask you GP or your gynae to give you the names of others with LS in their practice that you could talk to and have a relationship with? Being able to talk to some one else withthe condition is amazinglyhelpful.
I would be very cautious about putting anything else on your vulva that could cause further damage. Give the gynae's secretary a call and ask to speak to the codultant and ask the question to some one who know and has seen your condition. If the white patches themselves are not causing a problem the "look" of them with fade and change with time.
Most people dont KNOW what they look like in that region , some are silly enough to think their labia is too big floppy and ask for a surgical reduction,(hopefully that request is refused) just remember YOU are the only one to see that area unless you have given your consent for others to view it, so unless they are causing discomfort -worry not about the look. Take heed of the other advice to manage the condition and your stress levels. Endorphines are produced when you take up exercise - this will make you feel much better about yourself as well as doing you some good
Good Luck