I really really wished I didn’t google about Gilbert Syndrome!
Apparently something I have with recent elevated Bilirubin levels, apparently all the other tests for liver are fine. So they said I have Gilbert Syndrome.
Which I’m trying to understand and put my mind at ease that it definitely can’t be harmful. Looking for that reassurance I suppose.
But then come across other things on the article...... ya know the C word!!
To make sure that if you have jaundice it can be such & such Cancer!
Well that’s one of the reasons why I’ve been doing some research as I have a tint of yellow in both eyes at the bottom & sides that I have had for a few weeks now. Everytime I look I think there getting worse, but my partner thinks not. Maybe just my mind?
I did stop using Dr google as made me bad, and worry. But that was for other things. Didn’t expect to see that on Gilbert Syndrome article.
I have health anxiety & worry loads about diseases and fatalities that could happen.
Wish I didn’t do it! 🤬🤬🤬🤬
I still can’t have no there’s something wrong even though I’m feeling better. Just these niggling pains that come & go in and around the abdomen area, & the toileting issue.
My partner keeps saying if something was wrong it would of shown up with in the blood tests and ultrasound &stool samples that’s been done.
Sometimes that reassured me but then other times it really doesn’t!
Hi there, sorry you're going through a tough time. Health anxiety sucks and one of the worst things is some people don't take it seriously. About a month ago I googled a symptom and ended up developing a phobia of the condition that came up and convinced myself I have it even though only about seven thousand people in the world have it! The brain can be so powerful and can mimic symptoms of things we are afraid of so accurately even when we don't have them. Check out the anxiety guy on YouTube, I've learned so much from him and he's helped to put my mind at rest when I'm feling really anxious about something. Meditation videos on YouTube have also been helpful to me as well which I would recommend, especially if you're having trouble sleeping. Staying distracted is key as well, to keep your mind off things. Also I'm not sure if you're seeing a councilor at the moment but if you're not I would recommend it because I think it could be beneficial. I'm on the waiting list to see one at the moment and I'm hoping it's going to help. Good luck and take care.
Hey, just a bit about myself. I had severe health anxiety and depression as well. Thankfully its a lot better now. I was exactly in the same boat as you are. I have gilberts syndrome. Its literally something that increases the level of bilirubin your blood by a bit. As long as all the other liver tests were fine theres nothing to worry about. Having a yellow timge in your eyes is normal when your bilirubin levels are slightly elevated. As you've stated all your tests were clear so your fine. If you need anyone to talk to I'm here. I've been through what u are going through, same applies for anyone on here
Sorry to hear that you suffer from health anxiety too. Can’t believe how many people do 😢
Yes I totally agree with you, the mind is a very powerful thing .
I suppose I find it difficult to except it that it’s Anxiety. This all started in April this year , so compared to a lot I haven’t had this that long, but boy it really has played havoc with me 🙁. Especially the first 2 months with constant dizziness plus other things. It always seem to change from one thing to another.
I’ve had a few digestive problems that got tested & better(mushy stools) TMI Sorry, they put it down to viral. But I’ve also been told it sounds similar to IBS from some lovely people on here, as I went out at the weekend And took advantage of feeling loads better( which I have for the past 3 weeks or so) so drank a bit of alcohol & had a curry, then bang Sunday morning mushy/ watery stools, & still isn’t right yet.
Then these niggling pains & yellow tints in eyes, then seeing that S### on the internet. Well it doesn’t take much for it to kick back in.
I take it your ok & haven’t got that very rare disease? The mind again plus the help of the internet ☹️
I try to keep distracted but I’ve always been an over thinker, minds always ticking whatever I’m doing. I’m waiting to hear from CBT as yes I agree think it might help retrain the brain as I’ve also always had an over active imagination.
I will check the anxiety guy out on YT.
I hope whatever your going through same to every one else it gets better, as it’s flipping cruel.
I’m happy to hear that you have overcome this cruel illness or at least it’s a lot better.
Yes all other tests were fine, including Liver function test I’ve had a couple of them & all came back fine. The thing is the DR. are not worried about it as last time I was tested about 3 weeks ago it was 3.2(I think) the higher mark in the normal range if that makes sense. Which I haven’t a clue what is worryingly high & what/if it can cause problems. Apparently in 2014 it was in normal 🤷🏻♀️ For 6 months I was taking Isotretinoin for my acne & had to have blood tests for liver function every couple of months as they can affect the liver. That’s how I found out about Gilbert’s. So that plays on my mind, did it cause damage etc...
Yesterday seeing about jaundice can be other things such as pancreatic and bile duct C#####. Really scared me.
I feel better in myself, especially compared to what I did do, just those few niggles, digestive issues & a little jaundice.
I lost my mother in law last September from pancreatic cancer & liver and sometimes my mind tells me I’m the same. 😢 With the pains and jaundice. I mean it’s only a little bit. She was a Legend, Such a powerful, strong woman. I don’t know how she managed like many many others.
And here’s me tests are fine & im going on like there’s something seriously wrong! It makes me feel so selfish and I really try to forget & not think about my health but I find it so bloody hard! It’s like I packed up smoking for about a month but then I had this persistent cough for ages, plus battling this, and I’ve heard about so many people that packed up smoking that actually got diagnosed for this that and the other, not long after packing it up, just trying to do the right thing. So that thought scared me but so does the effects but started back smoking , & the cough went. How flipping bizzare 😲 unfortunately still smoking but cut right down. I want to pack up cuz that’s another battle but I need to overcome this I think first. Don’t need any other symptoms to be added to this H/A.
I’m waiting to hear from CBT I think that will hope, well I hope so anyway.
Do you have regular blood tests to check Bilirubin levels?
Hey, yeah I get what you mean I lost family members to cancer as well and when I was going through health anxiety I would google cancer symptoms and it use to play on my mind. And nope I don't really have regular blood tests to check my Bilirubin levels. The senior doctor who saw me said that wasn't necessary. And nope I haven't made any diet changes. I eat what I usually eat. If you need to chat about anything etc just send me a message Stay Positive x
Yeah I totally get what you mean finding it hard to accept that it's just anxiety related. I usually switch back and forth between believing it's my anxiety and believing there's actually something wrong sometimes multiple times a day on a bad day. I was only diagnosed about a month ago so I still haven't got the hang of controlling my thoughts ect yet but I think I've had it for about 2 years. They didn't tell me what type of anxiety but I think I have a mix of health anxiety and agrophobia. The rare disease is actually not something doctors can test for but there's other minor things I can have so I'm going to keep trying for tests. Yeah it would make sense if you had IBS, I've heard that's common for anxiety sufferers. Hope you feel better soon too. Good luck x
Hi Chloe, Yes I do think that as soon as you can accept it’s Anxiety,it’ll be easier to overcome it. Think that’s probably the hardest part. I’m like yourself I keep switching every day. It’s exhausting.