Hi there why do I feel alone when I have people around me most of the time what should I do about this
listen to your people. My family are so important to me. They see me every day and know what I'm going through. Without them i would be truly lost
I have family around me but I still feel alone
Can you say more abut what makes you feel alone? I feel like that from time to time as well, and that would be because I am too tired to follow what is going on, or because my world is so different from that of healthy people.
Do you have Chronic Fatigue Syndrome ?
Think it's to do with my cfs knowing that people don't see the different in you they just think that u don't want to work ect when you do but can't
Yes I have cfs have it over 10 years
It is truly exasperating when people do not GET this..I do not know any ME person who wouldn't do just about anything to get their previous lives back!
We call it ME - CFS is something else, a kind of burn out ness. Some docs call it post viral syndrome.
Michael - Since most of us are suffering in one way or the other, it is difficult to feel communicative when life is going on for others around you at a different pace. You must constantly evaluate the amount of energy you think you'll expended, just to focus and be as "with it" cognitively, (as others might expect) or having crashed and burned previously, repeatedly, in social settings and had to make explanation of your unpredictable behavior, you may subconsciously be avoiding social interaction as a self-protective behavior.
You may seem to be, or feel okay, but quickly be exhausted, for no good reason, and just making it one minute to the next. What if you had friends over and you had a system crash? Excuses and a quick exit! What fun you must be to be around?
You may "look" okay, your next "up" moment, but in your body and mind, you know things could change in a flash, and you'll need to be horizontal physically, and you'd be "out to lunch" mentally.
The fear of being out of control in a social setting and operating in a somewhat "normal", but always short-lived, time of functional living, can make you not really want to interact with others. It gets tiring to have to explain if you are not feeling well or you're not up to an activity, task, or dialog.
I have had one faithful, ever present, Comforter for Whom I don't need to be, nor does He expect me to be, anything but my honest, suffering-and-living-life- as-best-as- I-am-able, self. He knows me better than I know myself and He uses my time alone with Him to reflect on, and accept my circumstances in light of all He has blessed me with in this life, and what is in store for me for eternity.
I know Him, because I have come to know and love His Son, Jesus The Messiah, God loves me, forgives my trespasses, indwells me with The Holy Spirit, gives me peace that passes understanding, and promises, when this body dies, my soul will live with Him in a new, glorified, pain-free body, for all of eternity!
While you're trying to understand human frailty and why you are feeling alone, look inwardly and ask yourself if you are confident in trusting you own answers to life's struggles, you life's end, and what you really know is afterwards for you.
Thousands of years ago, a Godly man wrote great advice for all of us: Trust in the Lord with ALL of your heart. Lean not on your own understanding. In ALL of your ways acknowledge Him, and He will direct (orchestrate) your life's path!
Jesus said: I am the Way, the Truth, and the Life!
WHAT HAVE YOU GOT TO ..........GAIN!!
Have you ever been referred to neuro physio ?
No what is that
It is physio aimed specifically at neurological conditions. There is also (GET) Graded exercise therapy a structured exercise programme to gradually increase exercise tolerance.
GET is notorious for making people worse. You cannot exercise your way out of ME
Dr. John K Chia is a CDC doc who specializes in CFS/ME writing extensively about the viral infection that causes the illness. Check him out.
Until they come up with a cure for the virus that causes the symptoms, any amount of physical activity can cause a flare up of symptoms. it sounds like another way to push us to "try" another opportunity for disappointment after another effort at a suggested "way" to improve falls flat and it takes a week to recover.
Is it a particular virus or one of many that can produce the same effects ? Way back I had a similar condition that lasted for a year after having had Flu.
I got my cfs from a flu
When I had it in 1970 it was called Yuppie Flu and it lasted for over a year. As always I was ahead of the game and of course doctors did not beleive it :-) Now: Yuppie Flu. Yuppie flu is one of a number of names given to the condition of general malaise and fatigue accompanied by various troublesome infections which results when the body for one reason or another becomes chronically run down. The condition is known also as chronic fatigue syndrome and myalgic encephalomyelitis.
I feel alone when I don't get to talk to people who really understand me. I'm lucky to have three close friends who get me, two have chronic diseases, so they get that too. But they aren't always available due to their work or illnesses (2 i talk to maybe once a month). I feel like some of my family members think I just have depression or deconditioning. Its hard to make my Mom adjust her expectations of me, but shes slowly getting it. One of the reasons I signed on to this website is to communicate with others who have similar struggles. I hope you are able to talk to someone about what you are going through. Sometimes family can be helped to understand better. I don't know your situation but i hope you get whatever it is you need to feel less lonely.