That when one reduces Pred around the 5/6 mgs one gets sooooo tired? Does the tiredness never stop?
Apart from the new RA in hips and ankles, I'm not doing too badly, but the tiredness!!!😴😴😴
Once you get to 7.5mg and below, your adrenals glands which have been asleep for all the time you were on higher doses, start to wake up.
They may not be fully functioning yet - ask you GP to arrange a ACTH test and see how they are doing. It is a simple, painless test and will be done agter you have seen an Endochronologist. Sometimes the adrenals don't wake up and then it 5mg of pred for life and it does no harm at all.
Have you been put on Methotextrate for the RA, it is the current gold standard treatment for TA.
Last paragraph. I know! Rheumy tried to put me on it when I was still on 40mgs of pred, many moons ago. He tried again later, but I started being sick again and I lost over 1 1/2 stone.
Lately he has tried me on Sulfasalasine (for the RA), same result. I'm sticking to the devil I know - pred.
Am going to ask about ACTH test next time I go to the doctor's.
Thanks for the advice.
C.💐
I wonder if Tocilzumab would work for the RA, visit the ARC site and read up on it.
I entirely agree, if it makes you sick - keep away from it all.