Wow Ruby thats dreadful. When they say you are delusional and you are totally sain its not only insulting, but its frustrating. The more you try to convinnce them what you are saying is true the madder you sound. I did look niot Morgellons but from what I found they were more colourful and didnt resemble tiny white worms. I used to google spikes in the face that move around because that's what mine started out as. They would leave tracks under my skin and travel so far infecting the entire route so my skin was like plasticine, it was like they killed the skin as they moved through it. Every explanation a GP or hospital come up with didnt tie up with the symptoms. Little white heads for example dont travel around under your skin. I was told burst cysts etc. One GP even said to me it was impossible and that there was only one worm that could travel around the body and it would have to go through the throat area and the person would have a bad cough. God knows what she got that info from lol. She was the one refusing to refer me even though I'd been told at the hospital I needed a referal.
All I have at the moment is a slow release antibiotic and fucadin H cream. I told the dermatologist I though it could be Candida because you can get parasites on the skin. I could smell the yeast on myself from so many antibiotics.
The only thing that was anything like what I had on Google was Candida. The Morgalons were very different, the symptoms and how they looked.
I do think the original infection was something laid soemthing in my skin and it progressed to this. I was constantly on 7 or 10 day courses of antibiotics and i've always hated taking them because it destroys your immune system and it wasnt dealing with the cause. I was asking for antibiocs my skin was so bad. Fighting with the worms didnt help and made a terrible mess of my skin. I'd get so angry though because i was scared of them and I'd decide enough was enough and they were coming out. I will give you the name of the antibiocs later, i'll check what they are called.
Do you live in the UK. I wonder if your GP could refer you to the dermatologist I saw. He was the only person that actually listened and didnt dismiss me with a silly theory. I'm supposed to see him again when i finish this course of medicine. He does private and NHS.
Threadworms infest the intestine, the cycle is about 10 days. A dose to kill the worms, then 10 days later to get eggs hatched. If the dose is insufficient or administered at the wrong intervals, both doses must be repeated.
Leptospirosis is treated with antibiotics, severe cases Intravenously. Scabies are treated with Quellada lotion, but I'm not conviced an oinment is going to eradicate a subcutaneous infestation.
A vital point is that worm infestatations are infectious. Care should be taken to protect others from cross-infection. Close physical contact and hygiene are of concern.
I suggest you obtain a small specimen bottle and next time you remove one (or part) of these parasites, collect it as a sample for investigation. Perhaps email photos of skin eruptions to a tropical medicine lab.
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The tablets I have are called Acnamin. Used for acne and bacterial infections.
Thanks for the info on tablets as i am trialling so many different treatments none of which are working very well. I have an appointment with infectious diseases dr next week but he is probably going to tell me it's all in my head and that i have mental issues...pathetic i say
Hi there - I am so glad to hear you are feeling better and even healing. I looked up the Acnemin tablets you are taking and they appear to be isotretenoin (Accutane) which does have the potential for bad side effects you should stay aware of. It is metabolized through the liver and it might make sense to ask your doctor for blood and liver enzyme testing while taking your course. I am certainly not a doctor, but after reading these side effects it made me think it best to at least ask your doctor. Here is the site with the drug information: http://www.medicatione.com/?c=drug&s=acnemin&ingredient=isotretinoin
The Fucidin H is a cream that contains two active ingredients, hydrocortisone acetate and fusidic acid and considered to be an antibacterial. Are you also taking antibiotics and if so, which ones? Thank so much for sharing so much information with us!
Moderator recommended tropical med lab.after removing the ending. This is not my meaning as out of context.
Hi,
my partner and I are also from Australia, NEWCASTLE NSW.
we have been going through the same thing for roughly 9 months now. Appointment with infectious disease specialist on the 12th of may which is probably just after you have your appointment. I would very much like to hear how you go with this and any advice you may think would be helpful for us prior to our appointment. We are just so worn out from all of this, tired of doctors and dermatologist not even examining but going directly for the delusions of parasatosis label and basically recommending a psychologist. We don't need a psychologist we need medical assistance!
Fingers crossed for you lets hope there is finally an answer to eradicating this dreadful issue.
Hello,
So glad to head you are on your way to healing.
Did your doctor tell you what parasite/worm you were infested with?
Thank you for posting this. I'm going through very similar and hoped to get the name of parasite for my dr as well.
Thanks in advance
Hi All,
Just an update to how its all going. Well, I dont think this course of antibiotics is clearing them. 2 months in and I would expect now to be nearly cured of it. Its defo some sort of bacterial infect that's causing it. I dont think the cream i was given is strong enough to kill them off. disappointing really. I think probably, when I stop taking them it will all flare up againt as big as it was. I seem to be going through that cycle at the moment because I have lots of little bumps under my skin which I know is caused by this.
For those who asked the parasites were never given a name, all my tests come back negative so the dermatologist didnt do blood tests again. I just wish one blood test had shown something and then everything, probably would have been cured. I think the antibiotics are just delaying the inevitable.
Will be fun trying to get a referral from the doctors again.
Anyone one else having a good result with anything they are trying at the moment? I'm thinking of asking my beautitiion if she knows anyone within her field that might know about it. When she first saw my skin she thought immediatley it was something to do with all the moscito bites I got in Mexico. I was smothered with them as it was rainy season then this a month after.
Your beautician may be able to help cosmetically. However, this is infectious and she needs to be careful.
Skin infestations are a reality and I don't understand the problem you're having convincing medics of your condition and getting EFFECTIVE treatment.
EG :-
Roundworms (nematodes) – the adult worms can reside in the gastrointestinal tract, blood, lymphatic system or under the skin. Alternatively, the immature (larval) states can cause disease through their infection of various body tissues.
Leptospirosis (as previously suggested) urgently needs ruling out as this is in the face and can affect the eyes. Google' images of Leptospirosis' and be wary of eye redness.
The mosquito attack you mention is a possible cause of your suffering. They spread more infections than malaria, including parasites. As you have removed worms from your skin, I recommend collecting a specimen and presenting yourself to an infectious disease specialist.
Not to scare monger, your condition may not be the most serious, which could be why it is so prolonged without proper diagnosis.
Hoping for postive results soon.
Hi I am having this same issue and can not find a dr to help me they either dont believe me or say they cant help me i am desperate for some answers I can not continue to live like this please tell me have you found anything out???
I am also coughing up whats looks like larva and I pulled a what my vet identified as a hookworm I look 8 months pregnant and have a blind spot in my right eye from this I have pics and video I just do not understand why the drs will not help what did I do what is wrong with me I have a little boy with downs and he needs me but I cant continue to live with these things in me. please help somebody anybody my parents and vet will vouch I am not crazy.
I have pics and video could you please help me?
Didnt you take the hookworm to the doctors instead of the vet?
I read online that canisten works. I need to try and see the dermatologist again. Fun n games with the insurance company no doubt.
Hi Cjd, sorry for the late reply. I am no further with it really. Defo not cured.
I took the worm to contagious disease specialist in tulsa. he was a jerk didn't really look at it and said it was not a worm I said what about my pics he said too blurry he told my mom it was morgellons a mental condition total crap because my vet said she's been a vet for twenty years she knows a worm when she sees one and my psych I see for PTSD said he would back me that I'm not delusional but I don't know where else to go.
What did your doctors say about it, maybe ask them to refer you to a specialist and if not are you in a position to book yourself an appointment with a dermatologist maybe.
There is a parasite killer on amazon. If you just search worm killer, called Elle Belle. It has good reviews. I would be too scared to take it myself, if huge worms starting coming out of me I'd freak out, probably bang my head and kill myself lol. I would freak.
It says for all stages from eggs to full blown worms.
It sounds to me like you both have Morgellons - and I don't mean delusions of parasitosis! I have had it for 8 years and it has been pure hell. I have seen so many specialists you can't believe it and at least 12 biopsies. They all come back negative. I remove things from my skin that do look like worms but seem more fibrous and sometimes ropey, so it is impossible to figure out what it is. I have a microscope and have tons of videos and photos of both tissue and blood and it is very strange stuff that I cannot identify. I have had major surgery on my scalp because it causes terrible open wounds on me. Right now I have a giant open lesion on my neck that measures at least 2x3 inches and very deep. The one on the top of my head was 3x4 inches and right down to the skull bone. Of course, all I ever get from the doctors is the recommendation to see a psychiatrist and take drugs which I refuse to do. I went to an infectious disease specialist and he had me on a very strong broad spectrum antibiotic for almost two years with no positive results. Google Morgellons online and go to the Morgellons sites. You will be amazed at how many people here in the US and across the world have it. I really am sorry that you are both exibiting the symptoms. You can try the anti-worm medications but I have taken them numerous times without any change at all. Even my husband is starting to show signs of having it. His scalp and face are getting very bad sores that he cannot get rid of easily and his doctor has no idea what it is.