My skin used to collapse where they travelled through. I thought it just went in about 3/4" from the hole. I didn't see it go all down the side of my face. I remember it well coz what with it being the second hole on the other side from the first, I was starting to look like the Joker.
I ordered some sulphur soap and cream yesterday. I looked at the side effects of canesten on the face, not good. You can get thin skinned, Rosetta (whatever it is called when you go red), acne. Clumps of veins.
You need to be careful. You don't want to be labelled a nut case. When I saw the dermatologist the first thing I said to him was.. I guess you read my notes and I'm supposed to be mad but I'm not. It was an ice breaker anyway :-)
Oh and one other observation, because you mentioned your kneck, when putting canisten on my face I would get bite size marks on my kneck. Like it makes them spread out a bit. They Defo don't like canisten. After a week though I don't think there has been an improvement. Haven't had antibiotics for a couple of months so I'm managing it a bit better. I think I'll manage it on my own as long as I have people who are / were going through it can advice and I don't resemble madusa. You really do get labelled a nut case.
I was thinking of going there. I thought it was a walk in clinic too. I knew you had to be referred if you don't go there, but not if you did. What makes me angry is that on their website, your doctor can refer you even if parasites are only 'suspected', so if you have no 'proof' but a sympathetic doctor, you could be referred.
I asked about that, but unfortunately I'm in Wales and the stingy local Health board wouldn't fund it. So that's that. I'm on my own. As usual.
They say they need proof, but would they need a depression sample before issuing antidepressants, or a back pain sample before issuing painkillers? Of course not. "I'm sorry madam, your back pain is all in your mind. You are imagining it. I will refer you to a psychiatrist.....". Nope. The first thing they would do is offer you antidepressants.
Hiwever, I am fairly confident with the sulphur, et al. Despite still not sleeping very well, my energy is starting to come up a bit, and that is a positive sign. The worms seem a bit quieter and I think some in my side have died.
When I saw the guy in there who sees you first, I broke down but all he could say is nothing he could do. Don't know why they told me on the phone I could just walk in.
The sulphur has to be the way to go, how long have you been using it?
I think I'll make a forum / website about this stuff. I'd love to know how many people in the UK suffer from it as we aren't a tropical country, not just for the UK of course. I know most forums I found about it were all abroad. Just like this group, people would start to trickle through. the moderators of this site have been good. I already have 2 domain names and a hosted server (my friends son) from when I was going to do an ecig business.
I started with Tony Pantelleresco's garlic & MSM (he's on You. Tube.) concoction (made mine with vodka - it's odd, it goes very green over a few days). I take teaspoon every two hours or so. It makes me feel a bit nauseus at times for a few minutes, but I'm not sure if that is my stomach or the worms' reaction. I find chasing it with water helps. It is pretty gross though.
He advised taking that plus copper, so rather than faff about with his copper solution using electrodes, I cheated and take 2.5mg chelated copper tablets. He reckoned that perseverance with the copper and garlic/MSM would win out in the end.
I then did quite a bit of research on sulphur and sulphur-based elements and realised just how deplete we all are. Without enough we cannot absorb or use nutrition properly, make enzymes, HCL, or hormones, processes and functions don't work properly, immunity is impaired, we can't make insulin, or digest carbohydrates properly, or make vitamin D from the sun, we get skin problems, hair loss, weak nails, mouth, teeth and tongue problems, neuropathy, retinopathy, etc., etc. The list is endless.
I was advised a while ago to take extra Thiamin on top of the B Complex I was already taking. The suggested dose was 200mg. I went straight in at the 200mg and my body went berserk for it. I had to cut back to 50mg and gradually increase over a few days. When I researched I realised my restless legs, neuropathy and other issues were due to sub-clinical Beri-Beri.
dumping gluten and most carbs helped, because it reduced the carb metabolism burden, but I needed therapeutic doses to heal the damage. Eventually though I stopped taking it. So I have now restarted it over the last 3 weeks. I also bought some Benfotiamine which is a better absorbed version and take 250mg of that too. Thiamin (B1), Pantothenate (B5) and Biotin are all sulphur-based elements, but even if we are getting enough in our food (which I doubt) we need sulphur in order to be able to use them. I take Biotin too, plus ALA, C, E, A, kelp, copper & zinc. These damn worms hijack so much of my nutrition I am throwing stuff at my body to give it the tools to fight back.
My hair has stopped falling out and my energy is slowly increasing. I have had very low energy for years, since I was a young teenager (I am now 58), and seem to have been dragging myself around most of my life. To have any improvement in my energy level is a bonus. 😊
That's quite a regime you have. I read as well to totally beat it you need to fight it inside and out and change your lifestyle forever. I can the outside bit but to give up everything forever is extreme :-)
What caused the hair loss? The stress of it all? My aunt lost huge patches of hair from stress. She had to wear a scarf or wig. The doctors didn't know what way it would go but she got it all back thank god. Stress is a funny thing.
That's also another concern, how big are the worms. I know 100% I had a fat one I could feel that run from my ear down to near my mouth and when my chin area was badly infected as I would pick thing out it would go over there. I mean big as well. I remember I was having a conversation with my boyfriend while touching my face, and suddenly I felt it move. To say I freaked was an understatement. I screamed the loudest shrillest scream whilst stamping my feet like I was running. The look on my bf's face was classic, the shock was like he'd seen a ghost. Sheer shock and horror lol. I have lost weight, and was looking a bit gaunt. I needed to but makes you wonder considering the amount of chocolate I've been eating, which apparently you also should eat.
I'd be happy to try and make up one of y our concoctions if they do help if you give me a recipe. The vodka one sounds good :-) jk. I would try one though.
Believe me, the garlic/MSM/vodka is just gross. Nauseatingly so. But whatever it takes. I can just about manage a teaspoonful.
mine are big worms. Ascaris I think, they can get as big as your pinkie apparently. Nothing shows in my skin, but I did have thin welts on my thigh when they fled from an anasthetic block in my groin after a broken leg op. They don't like anasthetic apparently. I also had worm tracks all in the dead skin on my leg after the cast was removed. I could feel the damn things slithering in and out of the wound, making it a darn sight more sore than it would have been.
its the juveniles and larvae i feel around my neck, face, scalp and eyes. I also have larvae-shaped floaters in my eyeballs - always long, thin with a blob (head) on one end. I feel them go into my eyeball, like a needle piercing it.
i do believe you need to attack these things, whatever they are, from the inside. They may show in the skin in your case, but it's a whole body issue. They are there because your body is out of balance.
as far as changing diet is concerned, it depends what you are prepared to do to get well. Much of our modern food is not food at all, but garbage dreamed up by men in white coats to appease our desires. if you eat food made by men in white coats, you end up having to see men in white coats.....
modern wheat is highly hybridised and contains far more proteins than its ancient counterpart, most of which are foreign to the body and very damaging. It is also in EVERYTHING. But you can avoid it by eating real natural food, fruit, vegetables, meat, fish, eggs, etc. i make awesomely beautiful cakes with ground almonds. I eat a few rice cakes, but never bread or wheat products. Not for well over 7 years. I don't miss it. It's just habit with most people.
you can't expect gluten free food to taste or feel like wheat-based food. That is a recipe for failure. You have to change your expectations. Think outside the box. Let moussaka become your favourite meal instead of lasagne, or cottage pie instead of pizza. I make a pretty awesome pizza base using cauliflower. It comes out like a scone base - which I always preferred to a bread base anyway. With tomato paste, bacon, mushrooms, spinach, cheese, etc., on top it makes a gorgeous meal. Very filling. It is never going to be pizza, but it's a very acceptable substitute.
What you eat makes a huge difference. If you knew something you like had been slowly and insudiously poisoning you, would you continue to eat it?
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Hi guys,
I dont know if this will help anyone but next week I am being tested for Leishmaniasis of course none of the doctors here think it is possible but the man I was put in contact with John Welch that works with USDA looked at my pictures and thinks that what I may have he sent me several articles prooving there have been cases here in oklahoma and texas I dont know about the UK but something to check into. Im also having a skin biopsy done finally!!! I hope something is found after all of this. I want my life back.
Hi guys,
I dont know if this will help anyone but next week I am being tested for Leishmaniasis of course none of the doctors here think it is possible but the man I was put in contact with John Welch that works with USDA looked at my pictures and thinks that what I may have he sent me several articles prooving there have been cases here in oklahoma and texas I dont know about the UK but something to check into. Im also having a skin biopsy done finally!!! I hope something is found after all of this. I want my life back.
I sure do wish you the best of luck with your test and the biopsies. It would be fabulous if they were able to figure out what it is. At least then they can treat it. I have had so many biopsies that have returned negative results and it is very frustrating and depressing - not to mention the looks I get which are "see, I told you in it is all in your head!". I have been going to a wound clinic weekly for two months and it just will not heal - so of course, they keep blaming me. I have not done this before because I am so ashamed of how awful my skin gets from this stuff, but I decided to share a picture of how it attacks my skin. Every time I get one area under control it seems to be intelligent enough to grow and spread into another area. It just seems never ending and no one wants to do any real tests like the one you will be having for the leishmaniasis. Truly - I really hope you have fallen into the right hands and get the help you need! Good luck and please do keep us posted!
Wow that looks seriously sore! I hope the tests find something, they can't leave you in pain.
I started the sulphur, it turned my silver black and green. Thank god I managed to get it off the jewelry. Wonder if it tarnishes gold. It's bringing out stuff from my skin that's for sure. Let's hope it carries on. It reacts quite weirdly with it. My skin isn't looking brilliant but imi guess it has to get worse first :-)
I'm so pleased for you Domino, fingers crossed. Somebody has to get to the bottom of it.
My god ruby, that looks soooo painful. How can they even imagine you are doing it to yourself. I don't see how they can justify not exploring every possible cause til they find something. Have you thought about maybe getting legal advice because it affects you physically and mentally when nobody takes it seriously as the condition just gets worse. I wanted to sue my doctors for all the scaring. I just needed a definitive answer that it was parasites but never got it.
I have but no holes and God I hope that's not next! I've been through the same ridiculousness with drs finally a Derm fevered me to one who spsilaized in parasits and he gave me over icon it's been 2 days! I'm tired of them and want the, gone, there going crazy now, hops it's the last dance!!!
Oh what's over icons?
Sorry I am so late in responding, but thanks so much for your concern. Legal advice is something I have not gotten and perhaps I should. The problem with it is now I have seen so many doctor sand none of them claim to know what it is and most of them have made sure to include DOP or self excoriations into my records. I hate to say this, because I am usually such a poitive and upbeat person, but I think the medical community is hopeless as far as us getting any real answers to our dilemna. It is very sad. I am in the same boat as you are with the scarring. The surgery alone left a 3x4 inch area on top of my head with no ability to ever grow hair again. Just recently, my neck is getting worse and it seems to be expanding down towards my shoulders. The doctors just look at it when I show them and shake there heads. I don't think they don't even want to know what it is. My face has bad scarring from the initial years of having the symptoms (which started over 8 years ago). It especially evident along my cheekbones and around the back of my ears. On a better note - do enjoy your day!
I'm sorry spellcheck did a number on my post!
Ivermictin 3mg I had to take 6 and in two weeks take 6 more!
This is the 4th night! I'm sick to my stomach. My head feels like it's going to explode, egg size bumps all over my scalp! The lines that you saw in your picture? I've been seeing those too now! Around my eyes down my nose and can barley breTh when their in my Throaght!
I went to infectios disease dr and they did a blood test and it was normal! She told me "there's a syndrome that feels like you have worms!!! I've heard that story many times! I have fibromyalgia and restless leg syndrome! I know the nerve ending crawling feeling their talking about!
I wish they were right but their not! One Derm told me it's your nerves Are you married? How's your Marraige and that's when I get crazy. ER called my husband! I ask "do you want to call my father too?" My Primary was god biggest joke she had her staff leave a message on my phone "sorry dr can't order those test for you get the phych eval suggested" I blasted her too! So they have me looking like a nut! They said "my anxiety leval is high" HELLO!!!
im dealing with worms and My doctors and ER are doing NOTHING for me!
Finally another derm suggested a colleague that specializes in Parasites!
the biopsies came back negative I wanted to cry again! But he looked at the sores/holes in my head listened to my stories about the while thread like or toilet tissue looking gooey things I keep finding!
He apologized for the rest of the medical field! Bless his sole!
He said i had a parasitic infestation!
Also said there is no side effects to the ivermectin so don't know wh they are do reluctant to give it when you sY you need it!
The side affects I have are "die off" disgusting but the medicine paralyzed the parasite/worms and kills them! And the toxic waiste causes the discomfort.
The scary thing though is I've been so sick before I found him! Months of fatigue diagnosed with narcolepsy, kidney stones and then a brain aneurism two emergency surgery so in June!
I believe these are all related!
I pray these effin things die once and for all tonight! It's night 4 and they are alive and well! More active then ever! Even in my eyes now not just around! I can see them! Infectios desease doc told me " it's floaters I have them too" NO it's the worms that are in the rest of my body!
Lim eating lots of garlic, ginger, cayenne pepper, onions, mint leaves making broths & teas! Paying Vaseline on my head to smother them! Trying everything! Good luck to you and I will keep you posted! But look for a derm who deals with parasites! What a nightmare!