Hi Victoria,
Yes one of the things many of us seem to have learned is that YNS appeared at times of great stress in our lives (mine was after a car accident) and that stress continues to play a part of it's course. The way we manage stress is unique to each and also to some degree with the cause of the stress at that particular time. But it is one of the things we CAN exert control over. Yes it takes time and effort, possible false starts, but is our own well being not worth it??
As a midwife in another life,(pre car accident) autoimmune issues tended to go into remission during pregnancy and rarely effected fertility. Yes the meds can be an issue. YNS effects the sinuses, lungs and lymphatics so fingers x will not effect this part of your life.
I can only tell you from experience having stumbled from chest infection to infection, streaming sinuses with such gunk I dont even want to remember, not to mention the nail/nailbed infections.Basically living on antibiotics for two=three years. I lost nine fingernails in total from seven fingers if that makes sense. All have grown back, much weaker and very ridged, requiring to be maintained very short and neat. Managing stress, eating a healthy diet etc believe me is a walk in the park by comparison.
Yes I am older than you. Take care....
Yes your SLE which is very similar to Sjogren's is causing your fingernails, and your sinusitis. If the nails have pits or lines and go yellow that is Lupus nails Or Psoriatic nail destruction and sinusitis is common with both. Keep an eye on your mouth and eyes too! Good luck!🍀🍀🍀
Victoria, my apologies modulator deleted part of the last communication so it does not read as intended. Annoying as it contained absolutely nothing.................... Good luck.
Pam,
Can you explain to me what you meant about the eyes. does this change your vision? the reason I am asking is that I have had a significant change in my upclose vision. I don't remember reading much about the eyes in all of this. I'm still going through all the google info I downloaded to read (my Dr advised me to do that because he said it was best to gather some info)...
Helen,
as a young girl I had severe asthma. Years of allergy hots stopped the attacks. When we moved to Virginia I started having constant sinus infections. We pulled up the carpets in the house and that really helped. 18 months ago I got another sinus infection. Cough and mucous remained.. but the mucous changed to a clear thick discharge. At that same time my nails began to change and fall off. been on constant antibiotics. My husband and I decided to have our house checked for mold - so we have someone coming in to check the duct work and another company coming in to check under our house. My cough is constant and I have had two bouts of bronchitis and one of pneumonia during all of this. I go through one box of tissues a week (i'm not kidding - I can't go anywhere without tissue). My nose and cheeks are constantly red from all the nose blowing!
Well I am myopic, but yes Sjogren's does affect your vision. You get dry eyes, they feel sore and scratchy. You may still produce tears, I don't but some do. If they are not good quality tears it's because they have lost the essential lipid layer, so your eyes dry out. We find our eyes tire more quickly too. For more information we have a facebook group in the UK called British Sjogren's you are most welcome to join. The charity in the UK is the BSSA you will find that on your search engine.
Well Sjogren's and SLE are close cousins so you may have either or both! Join British Sjogren's on FB.
Hi Suzy, that really does sound difficult and reminds me of how mine was in the early days. I tend to use Google scholar for research but note you are in the US so may have different access. I am in Ireland. There is no point in trying to link you to info here as it will just be deleted by the modulators. I know Lois contacted me off group previously so if you discover how to do this please do.
Feeling pretty disappointed; had asthmatic episode during last week- reaction to old grass being cut next door, now developed into chest infection so on antibiotics. I had managed to avoid the dreaded things ...
Hopefully if you do identify any mould etc. it is treatable. Take care.
Hi Lois, can you remember how to send a private message to someone?
You did to me some time ago but it seems to have been deleted. Hope you are well. H
I know what you mean about nose-blowing. I sometimes look like I've been in a boxing ring as my nose is usually really sore and bleeding. When I'm on holiday in the US I get US style Kleenex Ultrasoft tissues and bring back as many as I can cram in my luggage to keep me going for a few weeks. They are the softest tissues that I have come across. They are sold in the UK but the UK ones are like sandpaper in comparison.