If you are Hypermobile. If you have chronic fatigue, fibromyalgia and ME I think personally they are exactly the same thing, I have been diagnosed with all 3, if you feel anxious, tired all the time, if you have an ANA marker in your blood you have POTS! You can have POTS from being diabetic, being an alcoholic, loads of other things but for the fibromyalgia type things it's now called POTS which is that you feel dizzy faint sweat etc you DO need a positive ANA
What is a ana
Hi Pam,
Excuse my ignorance, but how can you be 'hypermobile' with fibromyalgia? The onset for me was a gradual slowing down of all mobility.
Am due to see the GP Friday, so will ask about the ANA marker
Thanks
Chickabee.
What is POTS?
can you describe what ANA marker is please I have fibro Me and Ms diabetes thryroid problem high blood pressure asthma
ANA refers to antinuclear antibodies - a positive result indicates that antibodies are present but doesn't always indicate an autoimmune disease. PoTS is an acronym for postural tachycardia syndrome - in short an abnormal increase in heart rate after sitting or standing up. It typically causes dizziness, fainting, sweating and other symptoms. Very similar symptoms to vertigo but comes on after movement. Not so sure any of this relates to those with fibro, as PoTS doesnt cause pain.
can you explain hypermobile with fibromyalgia for me please
Wow thanks very helpful I'm going to my doc tomorrow I'm going to talk to her about this
OK I was born Hypermobile (double jointed) of course nobody thought it was anything to worry about then! It isn't BUT if you then start to feel tired, your body aches, your head aches then you need to see a rheumatologist. I started to feel faint after my last son's birth 29 years ago, I was diagnosed with ME, then the problems got worse, chronic fatigue syndrome. Finally Primary Sjogren's with a positive ANA but I don't have the SS markers loads of us don't but I do have Hypermobility syndrome and POTS. When I explained this all to mt rheumy she agreed with me, and added fibromyalgia which I actually don't think I have as I have aches but not sensitive skin. However I do have Hypermobility Syndrome and POTS! all these are in rheumy except the POTS, but if you are anxious, very dry, or soaking wet if you do anything it could be POTS. Of course this is breaking science in the UK I would urge you to look at both POTS UK and the BSSA on your search engine. The BSSA is the charity for Sjogren's which means we offer have dry eyes and mouth.
It's short for Postual Orthostatic Tachycardia Syndrome which to pot it simply means you feel faint or tire very easily
ANA is a marker for certain information it is Anti Nuclear Antibody test, just a blood test
I have continually dry mouth and eyes all this is very interesting thank you for sharing it with us
thank you will have a word with my gp about it many thanks
Yes exactly just that that you are feeling rundown and tired so you MUST tell your new GP and don't be fobbed off that it's all in hour head, it might be but not the way he or you are thinking if you have tinnitus ringing in the ears it's not your ears you are hearing your brain!
A brilliant share Pam...thank you so much. So enlightening!
Chickabee
Hypermobile means you were born with bendy joints Fibromyalgia is when your body gets tired, the skin can be painful if touched
Most welcome
It's a blood test to look for certain markers that may give your doc an idea of why you feel poorly
I agree if you have been "diagnosed" with ME/CFS and fibromyalgia they are for the most part the same thing but I strongly disagree with the pots !my belief is you have hypothyroidism undiagnosed and not treated hypothyroidism under treated or thyroid hormone resistance undiagnosed and not treated !!! Thyroid disease is one of the most misdiagnosed illnesses because blood tests have been proven over and over again to be completely unreliable ! Thousands of patients are suffering the most dibillitating symptoms because doctors and endos stick rigidly to blood tests no matter that these symptoms point to hypothyroidism so they are left to suffer with no light at the end of the tunnel.
Yes I agree with that too, but they have NICE guidelines and that is that! I went to endercrinolgy a few weeks ago all negative because while the young consultant had heard of Hypermobility he hadn't of POTS, I left him the information so hopefully he WILL understand when I see him next, but as I am going for autonomic testing I think I will be finding out as he didn't do the test I wanted him to do!