You'll Never See Me Coming

[nh_user_777207]

I have the poetry bug..........I must warn you it is rather dark!

You’ll never see me coming

I’ve been watching you for a while now

I’ve been laying quietly in wait

I’ve been holding out for the best time to strike

I’ve re-written your destined fate

All the plans and dreams that you have built

Will now be out of reach

Cos I will strip you of them all

Drain your life force like a leech

You will feel my presence, but you’re not quite sure

You will start to doubt your own mind

You will lose your friends one by one

And your life will slowly unwind.

I will attack you when you are awake

I will hurt you as you sleep

I will inflict loads of pain in every limb

You’re mine forever now, you’re mine to keep

It’s funny, how I can impact your life

Making sure others can’t see me there

And if one day you think you’ve given me the slip

I’ll catch you up with a pain you can’t bear.

 

Don’t worry, I will give you as much as I take

After all, we’ll be together for life

I’ll make you forget important things that you need

And each day my gift will be strife

Oops Sorry I didn’t introduce myself

Fibromyalgia is my name

And I welcome you with open arms

To my nasty little game

Sleep well all, gentle hugs xx

 

[nh_user_46769]

Erykah71,

This is a perfect summation of Fibro and how it treats you.But if they were/are

your friends.Fibro will not misplace them.

I love this will you send to me direct.I would love to share.

[nh_user_777207]

Yes of course I will, but please feel free to copy and paste

[nh_user_46769]

Hi again,

My Niece was just here trying to do that for me and said-the Apple is not the

same and she didn't know how to copy/paste from this computer.

Thank You,no rush

[nh_user_777207]

I've tried attaching the doc but either my comps playing up or my brain is  (Think I know which one it is)

If you want to PM me your email address I will send it to you

x

  

[nh_user_745620]

well put and written you have explained fibro to a t well done you. take care gentle hugs 

[anon53727290]

Well written..

[anon53727290]

So true  x

[nh_user_698579]

Hi there, yes, a good poem, kinda sums things up

You write well, are you on an art site, if not maybe you should consider it, I know quite a good one if you like

[nh_user_777207]

Thanks everyone. 

Boqer, that'd be good thanks. I don't write as often as I used to but if I feel passionate enough about it I try to write a poem. Thank you x

[nh_user_745620]

good luck for your meeting today thinking of you take care x

[nh_user_777207]

Thank you Kaz, Feeling very anxious now, IBS has been flaring up too . Not long now I will let you know how I get on x 

[nh_user_745620]

I know that feeling well I had very bad IBS too. make sure you have everything you need dont put a smile on your face for them grimace with pain thinking of you good luck take care big hug coming to you xxx

[nh_user_745620]

Hi How did you get on todaywith the assesment? gentle hug

[nh_user_777207]

Hiya, I think it went okay thanks. HP was a registered nurse, but I hope she had some understanding of fibro as she mentioned fibro fog.

A couple of the questions were a bit wierd, for example I told her I couldn't open a can with a tin opener because of weakness and pain in my arms and hands and she said 'don't you have any kitchen aids' to which I replied 'like what?' and she said 'a tin opener ' 

I did want to laugh when talking about my IBS. My daughter said she had difficulty spelling diarrhea so after thinking about it changed it to loose stools lol.

I was shattered by the time I left the office, and there were no cabs available so ended up having to get a bus home which not only aggrivated pain and already playing up IBS, but left me wrecked and needed a nap as soon as I got home (which lasted about 2 hours)

Anyway, it's over now, so now the wait for the brown envelope - which I just have the feeling will be onto appeal, but I know there are quite a few people here in the process of or thinking about claiming PIP so will keep the fibro family up to date.

Thanks for support Kaz (and everyone) Gentle hugs back to you x

[nh_user_745620]

I was thinking about you yesterday and wondering how it was going for you. pleased it all went Well  for you just hope prey you do get it with out having to appeal. everything crossed for you. have you thought about an electric can open I have 1 they are very useful to have we brought 1 for the mother in law as she was struggling with a normal can opener.Hope the IBS has eased mine plays up when I have appointments like yesterday its eased abit now. take care gentle hugs x 

[nh_user_777207]

My daughter said as we left, that she knows what she's getting me for xmas - an electric can opener - she's already bought me a foldable cane to keep in my bag incase I need it lol - when she gave it to me she said the next step is an old folks home . I said deal, as long as it's an expensive one and she foots the bill. Looks like I will be getting a can opener instead 

It will be nice if I don't need to appeal, but I am so tired and achy today I am going to try and put it out of my mind for now. IBS has gone back to sleep so that's a good thing.

Hope you're feeling okay, gentle hugs back x

[nh_user_745620]

You now no what your getting for christmas it will be very useful. I feel as though I should be in an old folks home I feel 90 at the miniute. I walk with walking stick and also have a walking frame thats useful especially when my balance problem isnt good. Im pleased your IBS has eased for you. I would rest up today, I would go on line and treat to yourself. I have just done that my laptop is on the blink so Ive just ordered another 1 a very early chrismas birthday present for me my birthday is in dec. we  deserve to have a treat with all we have to to contend with. take care gentle hug x

[nh_user_777207]

Ooh nice one. I just got an upgrade on my phone so treated myself to a £2.99 case lol.

I think I need to start using a stick, but I am a) embarrased to use it (silly I know) and b) not prepared for people to ask me what's wrong.

I should use it when out, because although I rarely go out, I do struggle. 

My right calf and thigh is murder today, so gonna sit and relax - and prob have a kip 

look after yourself x 

[nh_user_745620]

I do feel embaressed when using it, I dont like going out in my wheelchair either. I tried to walk yesterday but couldnt do it my husband had to grab the chair and get me in it. My passion has always been walking designing and football. I still love designing my home. but walking has gone along with watching football. never mind plod on. I would put your feet up and just relax and chill today. I think we both need it after our jaunt out yesterday. Hope your pain soon eases for you. Take care gentle hug x