Hello Group, Just thought I would Post, I would like for you to tell us your one most single troublesome symptom. I know that most of us have multiple symptoms. Just curious what bother everybody the most. I will start the ball rolling, My most bothersome symptom is chronic dizziness.
Bertman
Bergman,
Vertigo is the symptom that puts me in bed. It is the most fearful and debilitating for me.
Have a symptom free Sunday. One day at a time. Sometimes one hour at a time. Ha
Jim
Hello everyone. The first symptom I ever had was a white noise in my ear. Kind of like a seashell noise only very loud. It would come and go and sometimes be really loud and sometimes be really quiet. After about six months the noise is there 90% of the time and that used to bother me but now when the vertigo attacks have started, the noise in my ear is nothing. The hardest thing for me is how fast an attack hits me. All of a sudden my head gets really heavy and things start spinning and I have to be in a lying down position with in about 20 seconds. Gives you no time to adjust and I think that’s why it is so scary. Happy Sunday to everyone and I hope it’s a good day for us. Candy
Good morning. The most distressing symptom for me is the occasional very loud jet engine in my head tinnitus. I wake up panicked and heart thumping. I don’t know how I could live with that all the time. However I have not had a serious vertigo attack for about 6 months and I might change my mind if that starts again. Have a symptom free day everyone.
Same! I feel dizzy and light headed every day. Sometimes more than others. Having to negotiate day to day activities around the dizzy and light headed. Next is not knowing if its going to turn to vertigo.
Third is the constant Tinnitus.
Exact same as Freeze Frame. Dizzy all the time, every day...worried it will turn into the full blown vertigo attack when I need to lie back at the dentist office or at the doc's. Compensating for it continually, always. Followed by the constant, piercing tinnitus.
~Mary
High to all,
i would have to say its the anxiety and fear
of having an M.D. attack or panic attack outside.
i would pick an M.D. attack over panic attack all
the time...but both do your head in...
Being on my own in town if it starts spinning. Happened once & I had to ask where a toilet was and I'm sure the girl thought I was drunk. OH usually with me now and I don't panic as much now. Happy day guys 😀
That's the reason I have a medic alert necklace saying I have MD and some of the symptoms I might be experiencing. I never leave home without it.
Prior to surgery it was Vertigo now it’s my balance-I have none.
Willow
My wonkiness, as I call it, has only been made better by seeing a upper cervical chiropractor. Regular adjustments has readjusting my neck and head from the auto accident I had so many years ago. I sincerely suggest you try it. DR. Marcon is on U tube...watch and learn.
Sorry Dr Burcon from Michigan.
Hello Jim, I truly understand your situation, God Bless You
Bertman
Hello Candy, Thank you for sharing with us. I understand how abrupt these attacks are, I live in fear of what awaits me, My therapists says I shouldn't focus on my next attack, but she doesn't have meniere's disease either. Have a great day
Bertman
Hi Mary, I told my dentist I can't lie far back so he adjusts his chair accordingly.
Hi Willow, I am sorry to hear you are in the same boat as me no balance
Bertman
Hi..As time goes on, I am lucky not to have too much vertigo. I cannot lie completely flat, do exercises which makes me bend or move my head a lot, and I hate quietness,
The noise in my ears are the worst! I have lost 30% hearing loss and now afraid of loosing more. There are specific noises I cannot hear at all. I just live with the noise ringing in my head every day and find this to be the toughest!
Hello Sharonl, I understand your situation, My vertigo has subsided substantially, only to be replaced with loss of balance. As the disease progressed the balance went down hill. I went from a cane (still able to balance by switching hands with the cane) to a walker to support me both left and right sides, to a wheelchair when I would fall back away from my walker.
Bertman
Hello Bertman, I've been lucky so far and only had 2 attacks that put me down with vertigo. I don't know if you remember but my ENT prescribed patches behind my ear. I've had MD not quite a year yet. The patches worked and stopped my vertigo and they are Scopolamine. I think they use these for people on cruises. I was on these for 4 or 5 months and the side effect was chronic dry mouth. I finally got off them but I will say, they stopped the vertigo. I now carry with me a little roller bottle of Vertigo X and put behind my ear if I feel vertigo coming on. It seems to help. I really feel for the younger people who have MD and will have to deal with it the rest of their life. I'm 66 and not looking forward to what MD might have for me in the future but pretty sure I'm not going to be around 40 years to deal with it. I've got to find an ENT that will prescribe betahistine for me. I want to try it just to see if it works for me. Thanks for starting the discussion and you seem to be the Godfather of MD. Always find your post interesting and informative!
Hello Patrick, Thank you for sharing, Meniere's disease is a wicked thing to deal with. The symptoms can be most disabling to say the least. I have learned a lot from meniere's, it got my attention at the onset of my first severe vertigo attack and has kept my attention with the unpredictable symptoms over the years, I have a lot of respect for the disease, unfortunately it controls my life on a daily basis. Thank you for being a part of this group, we are stronger in numbers.
Bertman