# \#Hemifacial spasm

**URL:** https://community.patient.info/tag/hemifacial-spasm/350.md

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## [Hemifacial Spasm](https://community.patient.info/t/hemifacial-spasm/295887)

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**Author:** [@anon53727290](https://community.patient.info/u/anon53727290)\
**Replies:** 13\
**Last updated:** [25 March 2026 11:25 UTC](https://community.patient.info/t/hemifacial-spasm/295887 "2026-03-25T11:25:06Z")

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I've had the symptoms for nearly ten years now (am 56 now); I gave into botox for about 4 years but gave up on it a year ago as it didn't really do much except make me look weird! I tried acupuncture & saw a chiroptrac…

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## [Does this sound like HFS?](https://community.patient.info/t/does-this-sound-like-hfs/798827)

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**Author:** [@nh\_user\_1460706](https://community.patient.info/u/nh_user_1460706)\
**Replies:** 0

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I have been experiencing a heavy upper right eye twitch since last September. It 95% of the time happens when: I do a long blink, get water in my eye, blink quickly or sneeze. some days are worse than others but if I am …

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## [Microvascular Decompression For HFS](https://community.patient.info/t/microvascular-decompression-for-hfs/798217)

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**Author:** [@nh\_user\_1459434](https://community.patient.info/u/nh_user_1459434)\
**Replies:** 0

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Hi I am 41 and i have been told today that i need Microvascular Decompression surgery for my HFS. I was diagnosed 2 years ago and it has got a lot worse over time and massively affecting my quality of life. My baby gir…

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## [My left temple muscle has been constantly twitching recently, what does this mean?](https://community.patient.info/t/my-left-temple-muscle-has-been-constantly-twitching-recently-what-does/787187)

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**Author:** [@nh\_user\_1356555](https://community.patient.info/u/nh_user_1356555)\
**Replies:** 0

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after a weekend of heavy drinking for two nights and barely any sleep, the left side of my forehead at the temple has been twitching from time to time. What exactly would this mean?

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## [Considering HFS Surgery](https://community.patient.info/t/considering-hfs-surgery/780645)

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**Author:** [@nh\_user\_1418579](https://community.patient.info/u/nh_user_1418579)\
**Replies:** 0

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I saw neurosurgeon last week ( Feb 2022 ) Dr Melvin Field in Orlando Fl and discussed having HFS surgery. I’ve been receiving Botox injections every 3 months for the past 5 years and was told by Dr. Field that I need to…

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## [Hemifacial Spasm..There are others!!!](https://community.patient.info/t/hemifacial-spasm-there-are-others/258396)

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**Author:** [@anon53727290](https://community.patient.info/u/anon53727290)\
**Replies:** 51\
**Last updated:** [22 January 2022 19:17 UTC](https://community.patient.info/t/hemifacial-spasm-there-are-others/258396 "2022-01-22T19:17:10Z")

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Hi, Firstly, can I say how chuffed I am to find that there are many other people suffering from HFS, for a longtime I have felt alone, but also sorry that you're going through this aswell. I am a 35 year old living in t…

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## [Canadian and suffering need advice](https://community.patient.info/t/canadian-and-suffering-need-advice/40566)

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**Author:** [@anon53727290](https://community.patient.info/u/anon53727290)\
**Replies:** 10\
**Last updated:** [2 January 2022 01:25 UTC](https://community.patient.info/t/canadian-and-suffering-need-advice/40566 "2022-01-02T01:25:24Z")

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Hi there! I'm a 36 year old female living in Ontario Canada, my spasm started with my right eye a little over a year ago and at first I thought it was just my eye twitching due to either stress or because I was strainin…

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## [Facial Twitching- Still looking for a diagnosis](https://community.patient.info/t/facial-twitching-still-looking-for-a-diagnosis/313371)

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**Author:** [@nh\_user\_495354](https://community.patient.info/u/nh_user_495354)\
**Replies:** 27\
**Last updated:** [27 November 2021 14:15 UTC](https://community.patient.info/t/facial-twitching-still-looking-for-a-diagnosis/313371 "2021-11-27T14:15:39Z")

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Hello all! I'm in the states and have been dealing with ongoing (off and on) facial twitching since March of this year. Mine started as a constant non-stop fasciculation in my smile line on the left side of my face. Then…

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## [Support Group for Hemifacial Spasm sufferers?](https://community.patient.info/t/support-group-for-hemifacial-spasm-sufferers/11878)

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**Author:** [@anon53727290](https://community.patient.info/u/anon53727290)\
**Replies:** 34\
**Last updated:** [25 September 2021 21:15 UTC](https://community.patient.info/t/support-group-for-hemifacial-spasm-sufferers/11878 "2021-09-25T21:15:39Z")

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Hi there, I've had Hemifacial Spams for two years now. They can get so bad the whole of my face is pulled to one side making talking and eating difficult. It's horrible as you're trying to 'fight' your face and when peo…

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## [Botox concern](https://community.patient.info/t/botox-concern/555492)

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**Author:** [@anon53727290](https://community.patient.info/u/anon53727290)\
**Replies:** 19\
**Last updated:** [17 February 2017 18:43 UTC](https://community.patient.info/t/botox-concern/555492 "2017-02-17T18:43:53Z")

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I have been diagnosed with HFS 2 years ago. I started Botox around that time with my eye doctor. Botox helps, however, I wanted to see if other HFS patient's experiment what I do. First - are you all getting it from e…

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## [I've Had Eye Twitching And Spasms In My Face For A Couple Years And No Help. Was Getting Botox but mypaynomore](https://community.patient.info/t/i-ve-had-eye-twitching-and-spasms-in-my-face-for-a-couple-years-and-no/769148)

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**Author:** [@nh\_user\_1393550](https://community.patient.info/u/nh_user_1393550)\
**Replies:** 0

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I Have Had twitching in my face for a few months. started 3 years ago with just eye twitching. i get embarrassed when I go out. I need help where do I turn.

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## [I have been experiencing this face twitch...had eye twitch a year ago same time...](https://community.patient.info/t/i-have-been-experiencing-this-face-twitch-had-eye-twitch-a-year-ago-sa/720657)

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**Author:** [@nh\_user\_968607](https://community.patient.info/u/nh_user_968607)\
**Replies:** 3

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Hi guys..! I been having this weird face twitch …last year same time I had eye twitch that lasted 24/7 (even during sleep!!) I am not sure why this face twitch is happening…it is killing me…I am afraid it is HFS… this…

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## [My hemifacial spams are gone without surgery!](https://community.patient.info/t/my-hemifacial-spams-are-gone-without-surgery/498514)

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**Author:** [@nh\_user\_924326](https://community.patient.info/u/nh_user_924326)\
**Replies:** 69\
**Last updated:** [4 July 2021 22:17 UTC](https://community.patient.info/t/my-hemifacial-spams-are-gone-without-surgery/498514 "2021-07-04T22:17:02Z")

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I'm a 51 year old guy. (Irish/Italian/French/English) descent. I've had hemi facial spasms since age 40. At first it was a slight twitch on my eye. Then, the whole eye was closing with my left side of my mouth and chee…

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## [Help area near mouth twitching! (need reassurance!)](https://community.patient.info/t/help-area-near-mouth-twitching-need-reassurance/754381)

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**Author:** [@nh\_user\_1353791](https://community.patient.info/u/nh_user_1353791)\
**Replies:** 0

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Hi About a week ago I noticed the area on the left side of my face twitching near my mouth. It is small (like an eye twitch) but annoying. It did not start at my eye like most spasms seem to…but it isn’t getting better. …

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## [Hemifacial spasm help](https://community.patient.info/t/hemifacial-spasm-help/751841)

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**Author:** [@nh\_user\_1347481](https://community.patient.info/u/nh_user_1347481)\
**Replies:** 0

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iI live outside Philadelphia about 45 minutes west of the city. My Doctor has retired a few years ago. I have been trying new Doctors out but they are not as good as my formed Doctor. i need a Doctor that can give the Bo…

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## [Seeking new Doctor Philadelphia ](https://community.patient.info/t/seeking-new-doctor-philadelphia/751780)

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**Author:** [@nh\_user\_1347481](https://community.patient.info/u/nh_user_1347481)\
**Replies:** 0

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my doctor retired i need a doctor with a good track record of giving injections. i am tired of black eyes or over injecting causing the eye to stay open and stress the eye causing pain. anyone have a good doctor?? i am …

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## [After spasm-Eye has been twitching and watering for 1 and half year now](https://community.patient.info/t/after-spasm-eye-has-been-twitching-and-watering-for-1-and-half-year-no/637786)

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**Author:** [@anon87974465](https://community.patient.info/u/anon87974465)\
**Replies:** 4

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I had a spasm during July 2016 and was fortunate enough to get rid of it in around 3 weeks with some medication. ​I have not used any tablets after that. But ever since it got cured, my right eye twitches at times and wa…

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## [Twtiching on my left cheek... ](https://community.patient.info/t/twtiching-on-my-left-cheek/535917)

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**Author:** [@anon53727290](https://community.patient.info/u/anon53727290)\
**Replies:** 10\
**Last updated:** [14 November 2020 04:48 UTC](https://community.patient.info/t/twtiching-on-my-left-cheek/535917 "2020-11-14T04:48:14Z")

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Hello I'm Jack's twitching buccinator muscle. Started noticing upper/mid cheeck twitches about 2-3 weeks ago. I'm not sure if they were randomy happening or if I was triggering them but this week I realized that It's ce…

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## [Best remedies for Hemi- facial- spasms ](https://community.patient.info/t/best-remedies-for-hemi-facial-spasms/720609)

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**Author:** [@nh\_user\_1279847](https://community.patient.info/u/nh_user_1279847)\
**Replies:** 9

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i started having h f s 5 years ago , brought on by a stressful situation, i had a brain scan and it was clear, thee symptoms gradually went. in the last 6 months the symptoms have returned , the doctor offered me s…

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## [Have had my 7th injection of botox, but my right eye is now trying to close.](https://community.patient.info/t/have-had-my-7th-injection-of-botox-but-my-right-eye-is-now-trying-to-c/719304)

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**Author:** [@nh\_user\_1106](https://community.patient.info/u/nh_user_1106)\
**Replies:** 2

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I lost my husband in June and had two injections of Botox round my right eye in July. This time it has not worked very well at all. I went back to the neurologist nearly two weeks ago now and told him. He thinks it is ei…

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## [Left eye twitch and right facial twitch ](https://community.patient.info/t/left-eye-twitch-and-right-facial-twitch/742367)

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**Author:** [@nh\_user\_1323602](https://community.patient.info/u/nh_user_1323602)\
**Replies:** 0

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Hello, It started with my left eyelid (top). It started slowly, increased to twitches multiple times a day. The eye twitching is happening for six months. It lasts for a month, goes away for a week or two and comes back …

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## [Lip twitching ](https://community.patient.info/t/lip-twitching/735142)

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**Author:** [@nh\_user\_1310069](https://community.patient.info/u/nh_user_1310069)\
**Replies:** 2

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my upper lip has been twitching continuously for 4 days. The only way to stop is by touching my lip. This has also happened before in the past. I also have a spasm in my lower right lip which comes about every 3 weeks, l…

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## [Has anyone been obliged to stop driving due to hemifacial spasm?](https://community.patient.info/t/has-anyone-been-obliged-to-stop-driving-due-to-hemifacial-spasm/734549)

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**Author:** [@nh\_user\_1305290](https://community.patient.info/u/nh_user_1305290)\
**Replies:** 0

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Almost three years after the onset my hemifacial spasm is getting worse and worse. I’m even afraid that eventually I might be not able to drive, due to excesive movement. Has anyone been obliged to stop driving due to h…

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## [Has anybody lost their job due to hemifacial spasm?](https://community.patient.info/t/has-anybody-lost-their-job-due-to-hemifacial-spasm/734138)

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**Author:** [@nh\_user\_1305290](https://community.patient.info/u/nh_user_1305290)\
**Replies:** 2

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I didn’t lose mine, because I’m a civil servant, but I think that, if not, it would be extremely easy to lose my job due to my facial appearance, since I work attending people face-to-face.

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## [Going to get a third operation. Is there any one who got a repeat MVD?](https://community.patient.info/t/going-to-get-a-third-operation-is-there-any-one-who-got-a-repeat-mvd/731722)

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**Author:** [@nh\_user\_1303332](https://community.patient.info/u/nh_user_1303332)\
**Replies:** 5

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Hi, I’m new to the forum. I had HFS since 2017, when I was 33, and it deteriorated rapidly. Now I am having trouble even walking or reading because my left eye kept shutting and my left face would twitch to a degree that…

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## [Iatrogenic Hemifacial Spasm? Does Botulinic Toxic works?](https://community.patient.info/t/iatrogenic-hemifacial-spasm-does-botulinic-toxic-works/732423)

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**Author:** [@nh\_user\_1305290](https://community.patient.info/u/nh_user_1305290)\
**Replies:** 4

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I have a iatrogenic hemifacial spasm, it takes my face and neck, it’s very strong and during almost all the time. Two months ago the doc infiltred botulinic toxic in my face. But nothing happened. I’m beginning to think …

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## [New Findings](https://community.patient.info/t/new-findings/300942)

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**Author:** [@anon53727290](https://community.patient.info/u/anon53727290)\
**Replies:** 40\
**Last updated:** [20 March 2020 15:38 UTC](https://community.patient.info/t/new-findings/300942 "2020-03-20T15:38:05Z")

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Driving a car with the affected eye can be difficult, especially if there is some tearing as well. However I discovered that keep the body straight and pulling in the chin can stop the eye closure. I wonder if anyone her…

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## [HFS and vertigo?](https://community.patient.info/t/hfs-and-vertigo/720551)

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**Author:** [@nh\_user\_1279744](https://community.patient.info/u/nh_user_1279744)\
**Replies:** 5

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Hello all. Diagnosed with HFS in February 2019. Had all tests done and there does not seem to be a “seen” blood vessel compression of the cranial nerve. Went to eye specialist…no issues. Went to ENT specialist…no iss…

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## [How long for relief after MVD?](https://community.patient.info/t/how-long-for-relief-after-mvd/710313)

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**Author:** [@nh\_user\_1261381](https://community.patient.info/u/nh_user_1261381)\
**Replies:** 0

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I had MVD surgery a month ago and I’m a little discouraged. My question for anybody that has had relief from HFS thru the surgery is, how long did it take to start seeing relief?

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## [Anyone ever tried medical marijuana for relief of HFS ?](https://community.patient.info/t/anyone-ever-tried-medical-marijuana-for-relief-of-hfs/35552)

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**Author:** [@nh\_user\_19193](https://community.patient.info/u/nh_user_19193)\
**Replies:** 16\
**Last updated:** [9 July 2019 08:16 UTC](https://community.patient.info/t/anyone-ever-tried-medical-marijuana-for-relief-of-hfs/35552 "2019-07-09T08:16:28Z")

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Has anyone on this forum tried the medical marijuana route through your doctor?

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