Referral to rheumatologist, positive ANA what will happen next?

nh_user_1058626
Mon, 12 Jun 2017 18:59:30 +0000
Allergies, blood and immune system

Hi all

New to this forum so any replies would be appreciated. I'll give a brief history of symptoms.

4 years ago Raynauds started, 3 years ago reaction to sunlight itchy red swollen rash on hands and top of feet ( arms legs, any where exposed to sunlight, never on my face).

September 2016 pain began in hands and feet and extreme tiredness.

December 2016 pain in hands feet ankles and fingers: Raynauds particularly severe. GP blood visit blood tests showed vitamin D deficiency and borderline abnormal Bone Profile.

April 2017 repeat of bone profile and victims D bloods: came back normal. Pain affecting day to day life by this point, painful hands fingers and joints dead arm feeling started arms feel really heavy pain constant worse in a morning but never goes.

May 2017 GP visit as symptoms worsening ANA Blood tests

June 2017 blood tests came back, GP visit requested a copy of results but dr reluctant but did read off some of the results. Here are the two I remember raised anti-RNP and ANTI-Sm (hopefully I remembering these correct) dr didn't discuss what it indicated and told me to discuss concerns with the rheumatologist. Basically I feel my symptoms match Lupus and wondered if anyone had similar: what should I expect at a first appointment etc? GP was very vague at appointment.

Also interest in how lupus has affected people's life and your diagnosis journey.

Look forward to any ones reply lol thanks.

13 posts - 6 participants