Hola,
Me llamo Corbin, y durante los últimos dos años he estado extremadamente enfermo con una enfermedad aparentemente indiagnosticable.
Soy un hombre de 28 años, en forma y sano, que ha desarrollado espontáneamente una presión arterial severamente alta, dolores de cabeza por presión temporal, mareos y oídos tapados. Los síntomas varían, con períodos agudos que duran un par de horas y ocurren semanalmente. Generalmente, un período agudo se caracteriza por dolores de cabeza severos, necesidad de acostarse, oídos tapados y extrema fatiga.
He tenido tomografías computarizadas y resonancias magnéticas del cerebro y la columna cervical, escáneres PET, ecocardiogramas, una multitud de análisis de sangre y varias otras pruebas sin anomalías.
Voy al gimnasio 4 veces por semana, como saludable y trabajo como peluquero, por lo que mi estilo de vida es bastante saludable en general.
Esta condición está comenzando a limitar mi estilo de vida y, con dos años sin respuestas, estoy poniéndolo ahí afuera para que alguien lo reconozca o brinde consejos sobre lo que podría estar pasando potencialmente.
¡Cualquier comentario, incluso pequeño, sería muy apreciado!
¿Has revisado tu nivel de cortisol, Corbin?
A raised Aldosterone level can cause High Blood Pressure. I have just been diagnosed with Hyperaldosteronism. I discovered I had High Blood pressure 1-2 years ago. My blood pressure settles on rest and the pounding headache that goes with it. The blood pressure and headache always get worse with activity, as does the fatigue I experience. You will need to have a renin/aldosterone ratio blood test done to test for it. Hope you get some answers.
¿Tienes la enfermedad de Addison, Claire? ¿Cómo se verifica la aldosterona? ¿Hay un análisis de sangre?
I have too much aldosterone being produced by the adrenal glands. It is the opposite of addisons. There are a few tests which need to be done before a diagnosis of Hyperaldosterone is given (the name for too much aldosterone being produced) First they do the renin/aldosterone ratio. If the aldosterone is elevated they next do a Saline suppression test. If the aldosterone is still high with this test you have Hyperaldosteronism. After this they do a CT scan to see if there is an adenoma on the adrenal glands or if there is hyperplasia. I was diagnosed with M.E many years ago, so I'm not sure how much fatigue is from that and how much is from the raised aldosterone. Plus I also have Sinus tachycardia, at rest my pulse is 100 on mild activity it can increase to 150. The Endocrinologist doesn't think this is caused by the raised aldosterone. But at least now I have the diagnosis of Hyperaldosteronism I can start taking Blood pressure medicine and see how I go from there. Have to wait until next week to see my GP for a prescription.
Do you have Addisons?
No, estaba pensando en mi hijo de 22 años, como está cansado mucho, su vitamina B12 está baja, su cortisol a las 9 a.m. fue de 299, pero el médico general dice que es normal
Has your GP suggested anything for the low b12?
hoy le hicieron una prueba del factor intrínseco, no estoy seguro de si eso mostrará si no está absorbiendo vitamina B12
Hi Claire. I was also diagnosed with ME 25 years ago. Last year I got low k having had high bp for years. Now got Conns. Multiple adenomas on one side. Struggling with awful fatigue still. On eplerenone 25 as can't tolerate 50mg or spiro. Seeing endocrine surgeon at Kings college on Monday after asking for another referral. Hoping to get the pet scan next as avs was inconclusive as couldn't get into right hand side. Am wondering if this has been the ME all along. What do you think. ?
Hi Missworld,
Did your M.E symptoms improve with the BP meds? Mine improved a lot and I no longer need to use the wheelchair outside. I also have greater stamina and haven't needed to rest during the day. (Although now, 2 weeks into the school summer holidays, I do have an increase of fatigue again) I do believe that some of the M.E symptoms are from the Conns. How sensitive to sound are you? Also, did you have an improvement with this on BP meds? Mine improved a little, but not as much as the other symptoms. Interestingly, I've had my hearing tested and found it is on the lower border-line of normal. (I'm 43) 50mg Spiro was also difficult for me to tolerate, so back on 25, but BP is going up again and wandering if that is why fatigue is returning?
I hope your appointment on Monday is positive and they are able to suggest something. Was your Conns diagnosed with the low k? Let me know your appointment goes.
Hi Claire. Sorry only just got your message. At my appointment at Kings I was referred to Cambridge for a pet metomidate scan which is alternative to AVS. Still waiting for date. In the meantime having dropped eplerenone to 25mg. (im also on 3 other bp drugs by the way too. ). My k has dropped to 3 so am feeling crappier and am back on Sando k. Hoping I can be a candidate for surgery I think ! Yes I was diagnosed with low k last year. Have had high bp for years and ME for 25 years. I felt a bit better when first on eplerenone 25 but not now. How are you ?