Bonjour, j'ai subi une ablation il y a 10 jours pour une WPW et une SVT. La procédure s'est bien déroulée, elle a duré environ une heure et demie, je crois. Le médecin a dit qu'ils avaient trouvé trois voies, mais il a dit que la principale, qui était la WPW, était plus grande et qu'il a dû la brûler trois fois. Il a dit que c'était un succès après. Lorsque j'étais allongé dans le lit d'hôpital, j'ai remarqué que mes fréquences cardiaques au repos étaient encore de 90 à 110. J'ai demandé à l'infirmière si c'était normal que ce soit si élevé, elle a dit oui, que cela n'était pas monté jusqu'à 190 et que cela prend jusqu'à trois mois pour savoir si la WPW restera absente ou non. Mon pouls a été dans les 100 supérieurs. Je suis allé faire un électrocardiogramme pour vérifier et tout est sorti normal. Ils m'ont rassuré que c'était normal et que mon cœur avait besoin de temps pour guérir. De plus, quelqu'un a-t-il ressenti une telle fatigue après une ablation ? Je suis retourné travailler hier en service léger et j'étais si fatigué à la fin de la journée et ce matin encore plus fatigué. L'infirmière de mon médecin a dit que j'aurais peut-être besoin de plus de temps pour retrouver mon énergie. Quelqu'un a-t-il eu une expérience similaire ? Merci.
Hello I'm 20 years old and I had an ablation done for wpw on the 11th of January, however mine was not so successful, I was told there was a 50% chance it might not have worked due to me constantly moving during surgery .Since then I have been to the hospital numerous of times due to unsual feelings ranging from minor palpitations on one side of my heart to chest ache but everything looks healthy and fine according to the doctors every time I go in. For the past couple of days I feel tired and I have some chest pain after I eat which I have no idea what it's related to. It could be my heart healing I have no idea how ever I noticed that my heart pulse was ranging from 88-106 which before surgery was 113 to 119 when resting. All I can say is try to get through it, it's really depressing for me on top on constantly fearing the worst/ death/ heart attack . I do feel very tired constantly and out of breath when i climb stairs ect on other days I don't. It's really random , hopefully your not like me panicking every time I feel as if it might be something worse and I'm glad your was successful it gives me hope for next time
Let me know how your getting on , Emma
Merci Emma. Pensez positivement et espérez que cela soit parti et c'est un bon signe qu'ils vous disent que tout semble bon après l'ablation. J'ai un travail physique donc oui, je me suis sentie beaucoup trop fatiguée pour travailler toute la journée. Je ne vais pas pouvoir travailler toute la journée au moins pour une autre semaine vu comment je me sens, je n'ai pas récupéré mon énergie et j'ai remarqué que mon rythme cardiaque était de 60-120 après l'ablation contre 80-160 avant. Je trouve toujours que 120 est un peu élevé mais c'est avec l'effort, enfin pas exactement de l'exercice mais avec des mouvements comme marcher. Ils m'ont dit que tant que mon rythme cardiaque au repos baisse, je dois laisser le temps de guérir, en plus mon médecin m'a fait croire que tout allait bien. Il m'a donné un mot pour travailler une semaine plus tard après l'ablation, ce que j'ai trouvé un peu tôt. De plus, pas de médicament pour le cœur après. Ne paniquez pas mais je n'aime pas voir mon rythme cardiaque atteindre les 100 supérieurs juste en marchant. Espérons que cela diminuera, cela n'a pas fait 2 semaines, c'est encore un peu tôt. Essayez juste de ne pas y penser et de penser positivement, jusqu'à présent bon pour vous.
Hey maribel86463 I thought I would come to post a little update on how things are going and for anyone else who stumbles across this post who feels they might need some reassurance. It’s been a year since my ablation. How I feel has changed, I do feel better in terms of not having a full on attack however I do get small quick flutters ( benign beats ) causing me to occasionally take a breathe in , never lasts more then 15 seconds / does not feel like an episode at all. Over the past year my confidence in going out has gotten better, I did not start drinking ( occasional ) until September and I’ve been recovering fine and finally enjoying myself as I do study . In July however I had a check up for six months was told everything was fine and that my wpw is gone despite numerous panic trips to the doctors and some nurses still reading the slightest trace of wpw on my ecg . The next day I had a small attack which didn’t feel like a full episode but nearly caused me to black out it was scary after being told it was gone and I might never know what that was. There were factors that I feel played out to that event (it was one of the hottest days last year, I was on my monthly cycle and I decided to excercise using weights on my chest area for the first time ). Since that event I know what I can do and cannot do , for example excercise has been a struggle for me as I can feel the strain it puts on my heart, I’ve tried to take it slow / avoid it . But I’d advise excercising slowly just so you know that your doing the best for the health of your heart ( one of my resolutions for this year haha). At one point last year when I had an empty stomach I would get benign beats so I would combat it by eating more ( gaining wieght). After months of doing that I can feel the strain on my heart at times as what I was eating was not healthy causing me to gain a stone . Try to think of what your body needs to be the best it can . This sounds like I’m talking about my struggles as a unhealthy person but what I’m trying to say is that at times I would question why my heart feels the way it does all the time, when I’m not at my healthiest / doing things that would help it.
Currently the only problems I have are those little flutters as well as taking longer to recover from the effects of alcohol then others. I do feel anxious sometimes and tired. As well as being sensitive in that area quite often ( I can hear my heart beating in my ears at times, I also have this weird relationship with it asif it doesn’t feel quite the same as before  . If In that situation get your gp to run some tests ( bloods) just in case it’s something else before jumping to the conclusion that it has to do with your heart which I do a lot.
I hope your doing well Maribel and everyone else who reads this who has had an ablation for wpw / those who will have one and happy new year x
Oh mon Dieu, merci beaucoup pour cette réponse. Je suis heureux que vous aillez mieux et laissez-moi vous dire que cela fait aussi un an pour moi. L'alcool semble aussi m'affecter un peu plus que les autres, j'ai décidé de ne pas boire pour l'instant ainsi que de la caféine, je l'ai remplacée par beaucoup d'eau. Mon anxiété s'est un peu aggravée récemment mais je sens que je commence à mieux la gérer. Je travaille toujours à temps partiel et j'ai décidé d'attendre un an avant de commencer à temps plein juste pour être sûr de ne pas trop forcer sur mon cœur. En ce qui concerne l'exercice, je n'ai fait que marcher jusqu'à présent. Je n'ai pas encore essayé le tapis de course, les poids ou autre chose de ce genre. J'ai parfois des battements irréguliers mais mon électrophysiologiste a dit que c'était normal et de ne pas trop s'en inquiéter. Je suis vraiment heureux que vous ayez posté cela car j'ai aussi ressenti de la fatigue et j'avais l'impression d'être le seul à traverser cela et de me blâmer de ne pas essayer assez fort. Mais maintenant je sais qu'il faut y aller doucement et écouter mon corps. Je suis très optimiste que cette année sera beaucoup mieux 😊. Merci pour votre retour. C'est très apprécié.
I'm 18 now and I was around 16, when I had the procedure and I work out at stuff I wanna drink pre workout drinks and stuff but scared to after everything that happened it's crazy always being scared of anything with energy lol I don't have symptoms but sometimes I feel like my heart jumps for a second every now and then but it's been a weird experience
Je connais cette sensation, enfin je suppose que vous pourriez demander à votre médecin si vous vouliez vraiment en être sûr. Oui, c'est ça. Je pense que cela varie d'une personne à l'autre.
Bonjour Maribel,
Donc, j'ai subi deux ablations dans le passé. Une en 2009 et l'autre en 2016. Le médecin a dit que j'étais un cas rare car cela est revenu après avoir subi une ablation. Maintenant, je remarque que j'ai des palpitations et mon anxiété prend le dessus car j'ai l'impression que cela va revenir. J'ai subi tant de tests sanguins et d'ECG. Un neurologue que je consulte m'a dit que votre cerveau ne sait pas que les voies ont été brûlées, c'est pourquoi je continue d'avoir des palpitations. Mon cerveau continue d'envoyer des signaux pour essayer d'envoyer un courant électrique dans ces anciennes voies. Il m'a dit que l'ancienne méthode pour s'en débarrasser est un pacemaker, mais que je suis trop jeune pour cela. Donc, tant que mon pacemaker interne fonctionne, je ne devrais pas m'inquiéter. C'est mon anxiété qui me dérange tout le temps. J'ai fini aux urgences si souvent avec le cœur qui bat la chamade et ils ont finalement compris que c'était mon anxiété. J'espère que cela vous aidera également.
Hello again Glow509
Doing another check in to see how you are doing ?
Just thought I’d once again update you on my experience 2 years post first ablation and my experience of **my second ablation for any who want reassurance of having to do it again **
On the 14th of February this year I underwent the second ablation, shortly after my post on here last year I experienced an SVT and another in late October, the accessory pathway was back and weirdly enough I felt much more comfortable and confident with my heart when it was active. One episode came on gradually from bending over to fast and was stopped with an injected drug the second episode I only had to blow into an empty syringe to slow my heart rate down.
Last year was better then the one before however I was feeling tired some days more then others and pvcs were very frequent. I made sure to be bold and brave in front of the doctors which yielded good results from the past year of vagueness and being told everything was normal when I had known the pathway was still there before it became active again. Had a few heated arguments with GPs for not sending my requests to see the cardiologist and finally was able to speak to the head of the team that operated on me who saw me up to this point ( never saw the actual doctor who did my first ablation since I left the hospital).
My experience of the 2nd ablation was much more positive as I prepared myself for it ( at least tried >.< ). Fears and worries often plague my mind with the thought of them discovering an additional pathway or other extreme outcomes. The cardiologist I saw up until this point worked on me along side another , they were both working on me in order to successfully ablate the pathway
I was told the ablation was a success this time around but because of my previous negative experience I only remain cautious and hopeful . I have been experiencing some palpations (possibly from anxiety and comparing my ecg with a normal persons ecg ect) and pain whilst recovering as well as my heart attempting to use the pathway but no SVT as of yet
SORRY if that was a pain to read!
Hoping to hear from you soon as this is a really good way to put thoughts at ease, I’m thinking to set up a better form of communication for people to voice their fears and worries about their experiences. I’m sure this will help others as writing to you has helped me over the years
have a lovely week,
emma
Hi, I had WPW and had an ablation 2 years ago. The Cardiology team told me that i was cured, and for the first year I was symptom free. Over the past few months, i have begun feeling occasional rushes of tachycardia, lasting from a few seconds up to a few minutes. I bought a pulse oximeter this week to help me see what my pulse rate was doing when it felt fast. Tonight, I had an ‘episode’ and my pulse was 137. This lasted for around 8 minutes, with the rate dropping to around 115 before escalating again. My resting pulse is usually 60-80. For clarification, i had had a coffee 4 hours prior to this episode, and had eaten a small meal about 45 mins earlier. i am not on medication and would not say i am stressed. I’m in 2 minds about doing anything about this just yet - the tachycardia is nowhere near the 200-240 it was when i had wpw episodes. If anyone has any advice or thoughts, they’d be appreciated. Thanks!
Hi Steven,
Have you tried taking medication for the anxiety? I had an ablation, but my extra pathway was unfortunately too close to my main pathway, so they could only burn a little. They thought it might improve it (and it may have), but that I was probably stuck with WPW for life. The reason I’m inquiring, is ever since I was originally diagnosed with this, I became hyper-focused on my body especially my heart beat, so I notice every little abnormal beat, etc. Luckily I haven’t had a bad episode since I cut back on alcohol and caffeine, but I’m wondering if it’s anxiety that’s making me notice my heartbeat so much, because I never noticed it before and I was diagnosed at age 38.
Thanks,
AJ