I'm a senior nurse specialist and have been off sick since this all statred in September. I'm 9 years away from retiring at 55. I really don't know what's going to happen as I have so many symptoms to contend with that I can't see myself doing my job effectively. As you say this brain fog makes it unsafe. I'm signed off until early July and the rheumatologist is expecting me to return to work! x
mr G - this is a common symptom of fibro not likely to be side effects of amitriptyline. i get this often in the mornings, some days i cant lift my right arm at all on its own, i have to use my other arm to lift it and its killer painful. i am not taking anything other than otc painkillers eg paracetamol so its not side effects for me its just a symptom of the fibro. i get 'dead leg' too sometimes, in the thigh area and have to massage it to ease the pain/numbness otherwise it is prone to giving way when i stand up.
I was given Ciproflaxin for a bacterial over growth and the Cipro caused a severe reaction called Neuropathy the pain was to my feet and tendons in my feet. I couldnt walk for three months. My Dr. put me on a experimental drug called Low Dose Naltrexone (LDN). I have reached level of 4mg now its been a couple of months now. Besides the poisoning of Cipro I also suffer from Hoshimotos thyroid, and bad autoimune as well as Fibromygila (exucse spelling). Since LDN no more autoimune flare ups no more pain period. I am losing wieght and feeling great energy galore. Ive kept a journal from day one and can tell you if your not sleeping well try taking LDN later at night even if you have to set you alarm but I take my between 10:00pm and 12:00am I sleep for 8 hrs. I get tired since I am up early and work all day in my garden and home now, I love it. I can tell you a week after you up your dose you might experiance your symptoms returning alittle less everytime you up your dose. I now only worry that I might wake up from this dream and live a hellish life in pain again. I havnt needed a pain killer of any kind including asprin. I am 60 and have suffer for over 8 years in pain I quit my bizz and retired early since I couldnt handle it anymore. talk to your Dr, about LDN and if your serious go nline print up all the trials going on and success its a safe drug with very little side effect.
I get this alot when the muscles tear and are exhausted
I’m currently trying hard to type with a dead right arm, very heavy, hot, swollen, tingles and burning. I have Crohn’s disease (30yrs) and fibromyalgia (4+yrs), I literally feel your pain. I’m not on any fibro meds as I’m allergic to 2 of them and other causes suicidal thoughts, I’m good without either of those. I take an immune suppressing drug (stelara) for my Crohn’s every 4wks, cyclobenzaprin (muscle relaxer) as needed before bed to help me sleep better, however I also just started taking CBD oil about 7 days ago. It’s expensive but has virtually taken all pain down to about a “normal persons” level 2&3. When I’m physically active it catches up with me still but I did manage to work for 6 hours and drove 50mins each way today and I haven’t had an 8 hour work day in years that I’m able to make it through. For me a minor flare (lvl 6 Pain but rising slightly and slowly) is expected with such intense physical activity (for me anyway). I swear by CBD it has no “high” so its perfect it relaxes your body and lets you feel “limp” or not tensed at all times, my shoulders stop kissing my ears! The pain I’ve lived in my whole life (everything started at 5-7yrs old 30yrs ago) has slowly subsided in only 7 days I’m freaking out in a good way because I feel like I may have a chance of getting a partial life back and being a great mommy to 2+2 amazing children! Good luck Mr.G and remember you have a whole community of people that understand your pain and and want nothing more than to hear your real feeelings. Best wishes always
Brandie
Takebackyourlife2day!
Hi
I have had a dead arm no for two weeks . At first thought I just sleeper on it but it carried on for a week then last weekend did half marathon and the arm was noticeably worse and has not get any better a week later . It is very hard to raise it and like I said not noticeably getting any better . Can I do anything to heal it as I won't to get running again this week ?? 🤕😞
Consider being checked for Lyme disease. I know this is 3 years old, Lyme often is misdiagnosed as other ailments. Lyme causes neurogical symptoms in many advanced cases
Have your doctor check you for Lyme disease. Lyme cause similar symptoms. Google the great mimicker or imitator, which what Lyme is referred to
In 2001, I went to my doctor with what I told him felt like someone filled my legs and arms with lead. He said lets check you for lyme disease. And it came back positive. I don't remember being bitten by a tick, nor did I have any rashes. After much research, anyone with similar symptoms I encourage to be tested themselves even if you're certain you've NEVER been bitten. I was very, very lucky that I had a doctor who thought outside the box. I owe him my life!
Have any of you guys tried diet change? Paleo is helping me ❤