My skin is so dry it flakes off, especially my lower arm and leg areas, looks similar to the results of a milder sun burn. I need a brand name of a good moisturstering lotion. Help!!! I live in Northeast Pa USA ..
I love luberderm (sp) i find it really good moisturizer and my legs sometimes look scaley and this does a great job.
Mariane Canada
I too love Lubriderm for regular dry skin, but als have used Vanicream
Vanicream is a very different consistency from Lubriderm...doesn't feel as nice going on...kind of sticky...but it might work for you depending n your skin type. I had to use it when I had a PMR rash because Vanicream has no odor or additives.
Do you have proper old-fashioned dispensing chemists? Who make their own stuff? If so ask for a paraffin-based emollient cream with no parabens or lanolin (which are potential allergens), perfumes or sodium lauryl sulphate. Or they may be able to tell you one - something used for eczema patients is ideal.
Thanks, I will try the Lubidern. The skin on my arms is so sensitive, that I have to use one that is easy to rub in, as the more (longer) I rub, the nerve endings start sending out these sharp needle point jolts of pain. Therefore, I end up not being able to rub it completely in. Just another little PMR complication. It is a good thing, we PMR club members are strong-willed people, cuz it definitely isn't for the weak at heart.
hanks, I will try the Lubriderm.. The skin on my arms is so sensitive, that I have to use one that is easy to rub in, as the more (longer) I rub, the nerve endings start sending out these sharp needle point jolts of pain. Therefore, I end up not being able to rub it completely in. So i dont think the Vanicream is a good match, but thanks for your input. That is just another little PMR complication. It is a good thing, we PMR club members are strong-willed people, cuz it definitely isn't for the weak at heart.
Hi Jeanne, I'm sorry to hear about your skin. I use organic coconut oil every night and it's great... I use it on my face and body, just massage in and leave it.
Cheers Dea
No, old time pharmacies are a thing of the past in our area, even though we are basic country.
But dont you smell of coconut, cuz even though I Ike the smell of coconut, I prefer not smelling of it all day long. I prefer Vanilla & Spice. If the aroma is not there or very mild, I will give it a try.
If you use the organic Raw/Cold Pressed/Unrefined Coconut oil has very little smell. And after about half hour that smell goes... Also great for wrinkles 
I'm 68 and told I look 10 years younger... Although now I have the PMR for 3 months only, I wonder if I will start looking my age lol I will keep using the oil, health is more important :
Cheers Dea
I was prescribed, but in the UK as it free to over 65's, Doublebase. It's available at amazon try search 'doublebase cream'
Or search Epaderm Cream
E45 lotion is good. It is unperfumed and is used by people with exzema. Might help
OK thanks .. and here's to you keeping on looking younger.
I use arnica infused oil (not homeopathic preparations) then I put doublebase(from Amazon) . The arnica is anti inflammatory and helps the stupid red spots. The double base goes over it and seems to enrich my skin.
By the way I never trust health food store employees (my medical background). When the owner asked about why I developed red spots I gave him a long winded explanation of PMR and treatment with pred. He pipes up: " prednisone damages your liver; you will need something for that." I answered: "no it doesn't" and he backed off.
Snake oil salesmen--and dangerous. These people have absolutely no right in recommending herbal remedies. They don't have the training or medical license.
I have the same problem. I've also been having a problem with my pelvis rotating and Sacroilliac joints not moving. My physio said it was because all my core muscles are so weak due to lack of excercise. He suggested non weight bearing excercise in a pool. Have just joined my local health club and love being in the water but my skin is 10 times worse. I suspect it may be the chemicals in the water. I have just signed up to quite a lot of money each month plus joining fee. Does anyone know if this exacerbates the skin problem?
Not sure I'd agree with the physio - it is possibly part of the PMR. I had sacroiliac joint problems due to myofascial pain syndrome - and whatever it was it wasn't due to poor core muscles! I had been doing Pilates and yoga for years.
Oh drat - forgot the other question. My skin certainly improved dramatically when I stopped doing aquaerobics every day Mon-Fri - though it was the only thing that kept me mobile during the 5 years I had no pred for the PMR! Something else that helps the skin problem is never using soap products on your skin - if it foams, it strips the natural oils out of your skin. Even now if I forget and use shower gel my skin dries immediately - and if I'm flying it is embarrassing, I just flake all over the place!
Thanks Eileen the problems with my joints is an ongoing problem since I broke my back years ago and he had been my physio so I don't doubt that. I use a special emollient with no soap etc but has certainly become worse since going to the pool. On the positive side, if you're remember my posts last year when I nearly decided not to marry my lovely husband because of PMR. I am now down to 20 mg every two weeks of Depo Medrone injections and feel fine except for the skin and bruising.. Seeing my rheumatologist on Tuesday.
That's great to hear - I did wonder if it was you!
How have the injections been overall? You have info that none of the rest of us have and I do quote you every so often!