So this is my first post on here. I've scoured the net for info but what better way than to just ask right?
So I've had very troubling symptoms the last 2 or 3 months. I'm sure you all know what I'm talking about but not sleeping and losing weight like crazy 40lbs in about a month and a half. I constantly feel weak, I sweat profusely, super irratable and have tremor mainly in my right hand but the last week I've had what I can only describe as a goiter because I don't know why else my neck would swell up the way it did and where it did. It seems to last about 12 hours or so and goes away has happened twice now but to make this semi short. My blood test I had done a month ago has my TSH level at 1.11 uiu/mL which is still "normal" but on the lower side. My FT4 is above the normal high though which on my paperwork says 1.7ng/DL and my test came back at 2.01.. I know these numbers are aren't really going to get the Endo's attention but the goiter and everything else how could it not?.... I feel like I'm losing my mind to be honest and would just like to get some feedback. I have 2 friends diagnosed with Graves Disease and when they saw me, my condition and heard the numbers they seemed pretty confident that I'm going to get a Graves Disease DX but after all the things I've read it sounds like my body isn't going to have to literally crash land before they make any important decisions. Currently out of work on temp leave. I just want to feel better. Got an apt with my endocrinologist at 2pm today and just getting nervous. Sick of hitting dead ends... Thank you in advance for any response.
*is going to have to crash land* sorry don't know where to edit the post on here.
Sounds like the full monty of a runway thyroid - pretty much mirrors my symptoms before it was removed. I never knew what my tests showed but the effects seem very similar. Just to add to it I was told there was 'no swelling in my neck' for several years when you could see the damn thing sticking out. You'll just have to rattle the bars hard to get a response. Good luck.
Ross
Was recently told by a Dr in the hospital that my neck wasn't swollen. I about lost it. Had to pull my phone out to show him what my neck normally looks like and he just shrugged his shoulders basically. Really upsetting getting the same crap over and over. I've since been taking photos of the goiter and when it goes away so they can see the obvious difference.
Sounds about standard. Mine had a lump on it that looked like a bean and they ignored that too - thankfully it was benign but no thanks to the original medics. Luckily my current GP is brilliant and he started the process to get it sorted out.
That's good. When everything got swollen it felt like there was a rock on the inside of my throat. Nothing visible from the outside though.
I have sent you a private message.
Wow!!!!!! I have exact numbers like yours, I also lost weight ( but gained bloating midsection) that put weight on but just water retention, goiter but thyroid scan did not say enlarged, fatigue, thinning skin I now can see all veins and bones in my hands, heart beat fast( 90 sitting down) loss and thinned hair , feeling like I can go on no more! Doc said I have sub clinical maybe but does not think all symptoms I have are thyroid related . I am at loss!!
Tsh o.95 t4 2.09
Did you go to appointment??
Apt isn't for another 6 hours.
Crazy how we have the same numbers , do you have too all the symptoms I mentioned? I replied to your comment, let me know!!!
I do have all of those symptoms and more unfortunately. My first apt with him he believed it to be something neurological going on but have to wait a month to see the neurologist. I just have no idea why my thyroid glad would swell up like it did. Doesn't make any sense. Recently started having a pins and needles / cold feet. Mainly the left. Also have problem with my right eye. On and off double vision and sometimes lately the pupils are slightly different sizes. I do strongly believe there's something neurological going on as well but it's just confusing with that swelling.
Holy s...t I have pins and needles too and problem on right eye! Double vision too!! I saw a neuro ophthalmologist for that and said it was not from the brain! I saw neurologist too cause dr thought it may have been MS but he dismissed me! I am on antidepressants and anti anxiety meds because this has been ruining my life! I used to work as a preschool teacher but had to quit because I was always fatigued too. I still cry a lot because many doctors say stress and anxiety, I agree but stress and anxiety came after me having all these symptoms and docs not knowing what is wrong!! Who wouldn't be stressed and depressed!!!!
I completely understand. Honestly since I have a hard time sleeping I do a lot of reading on everything I can and the closest condition I've come to matching up my symptoms and how I feel is MS.. But again what the hell is going on with my neck then. I've had to many neurological issues to just dismiss it but if it was something autoimmune it isn't impossible for it to be wreaking havoc in other places as well.. I will state that I have had multiple head and spinal traumas though due to the fact I use to be a very active extreame sports athlete but my head scans have come back normal (from the ER anyway) I'm just incredibly confused. I seriously have an extremely hard to finding the energy to do anything the last few months either. I lay in bed 90% of the time and I feel somewhat ok but if I go out to store or something especially in the day everything falls apart very fast..
Let me know what endo says
Exactly!! Doctor told me double vision was induced by reading on phone or computer for a long time. What freeks me out most is change in my skin and loss of mass. Plus tingling hands and feet. I hope hope hope it's thyroid, I want so desperately to believe it as other conditions are far more scary!
Just to add - I also used to get eye problems and still do if I manage to take too much thyroxin or don't take sufficient exercise to burn it off - best describved as my eyeball and lense going hard so the ability to focus is massively reduced. I wear varifocals so not a massive issue but I'm like a rabbit, head going up and down to get the focus point right because I don't have the flexibility in my eye. Once the level is back to normal there is no problem.
At the worst I also had very itchy dry skin and violent leg tremors when under any 'load'. I actually thought it was Parkinsons. I drive 4x4s and reached the point I was unable to control the clutch when manoeuvering - really scary stuff. Oh - and nearly uncontrollable bowel movements which were horrendous - I was afraid to leave hiome for months.
I've had massive stress at various times and am fairly certain that this i what caused the thyroid to flip. It conincided with a family trauma and having had a few heart scares that I ignored ( family business came first ) my thyroid that had been swelling and grumbling unnoticed just went wild - so for me stress and emotional issues are a major factor.
Its a bloody nightmare as the thyroid is a key player in your daily life, but it can be fixed and you will get better. There are a few small caveats round taking the thyroxin replacement but they are minimal when you get used to it, so while its very nasty now, you will come through it and will be OK - I've been there and wondered too....
Ross F,
Could you still have symptoms with "sub clinical " hyperthyroidism? My doc said no way with my numbers?!? Tsh 0.95 free t4 2.09 barely out