Olá a todos!
Vi uma discussão sobre isso, mas foi há anos, então decidi começar a minha própria. Tenho um estimulador da medula espinhal da Boston Scientific implantado na minha coluna desde outubro de 2009 para RSD ou CRPS (qualquer que você prefira chamar) na minha mão esquerda quando o médico que me tratava para dor no pescoço atingiu um nervo. Tive que ficar afastado do trabalho por 8 meses, pois não conseguia usar a mão e tentar encontrar o médico que causou isso culpado com uma condição pré-existente como fibromialgia provou ser inútil. Nenhum advogado queria se envolver. Era aquela área cinzenta, eu acho. Em 2015, sofri um acidente de carro e o impacto traseiro foi tão forte que danificou os fios do estimulador da medula espinhal no meu pescoço. O que foi recuperado na ação judicial foi apenas o suficiente para cobrir as taxas do médico e do hospital e as taxas do advogado, com dinheiro suficiente sobrando para colocar na minha conta para dar entrada em uma casa, o que não cobriu realmente, então está apenas parado na minha conta até eu começar o processo de compra novamente. Portanto, fios danificados e como não estava usando, deixei. Agora, em 2017, tenho esse problema de queimação, pontada, dor e destruição nervosa na área onde a bateria está. Fui ver um médico que me encaminhou para outro médico e esse médico me disse que a bateria se moveu, mas isso não é o ponto principal, tenho dor ciática e paralisia da perna tão grave na área onde a bateria está que estou extremamente frustrado com tudo isso. Tenho uma consulta marcada para ver um neurocirurgião para remover ou substituir a bateria e o estimulador removido ou substituído. Posso ficar sem os dois, mas gostaria de sair andando depois, então talvez fique com a remoção da bateria. Estou tomando um anticoagulante após cirurgia cardíaca aberta para substituir uma válvula flácida, então tenho uma mecânica. Tinha apenas 33 anos quando tive o estimulador da medula espinhal implantado e cirurgia cardíaca aberta aos 38 anos e agora, aos 41 anos, tenho que voltar para a faca. Estou completamente frustrado com isso e me pergunto se alguém teve algum problema como o meu.
Oi,
Estou na Inglaterra, no Reino Unido. Nunca ouvi falar do implante ao qual você se referiu, então não posso dar conselhos.
No entanto, tive um acidente em 2011 que levou a problemas graves na coluna cervical.
Tentei fazer um pedido de indenização ao seguro e, em mais de 3 anos, perdi meu negócio, perdi meu histórico de crédito e tive que me aposentar antecipadamente. Resultado do meu pedido de indenização: nada. Por quê? Porque meu acidente foi exatamente isso, um acidente, ninguém teve culpa, foi inesperado e, portanto, imprevisível. O que realmente aconteceu foi que eu estava decorando a sala de estar de um cliente, de repente, sem aviso, o pé da minha escada de mão caiu através de uma tábua podre do assoalho, jogando minha cabeça contra uma parede, empurrando minha cabeça/pescoço completamente para a esquerda, levando a um desalinhamento das vértebras e danos na medula espinhal. Nenhuma compensação.
A casa tinha apenas 25 anos, mas o ex-marido dela, um pedreiro, havia usado madeira reutilizada para as vigas do assoalho e as tábuas do assoalho para economizar dinheiro quando construiu a casa.
Mike.
Oi,
Peço muitas desculpas, tomei conta do seu post com meu desabafo, muitas desculpas.
Mike.
Meu conto. Tive SCS implantado em 9/2017, foi ótimo! Até migrar para cima. Cirurgia de revisão em Nov/2017, desde a revisão tenho tido o mesmo problema que você com minha bateria. Ninguém me escuta. Quem te orientou? Já falei com minha programadora chamada Boston e com meu neurocirurgião. Por favor, me avise o que você fez.
I had the permanent implant surgery on 12/29/17. After a few days I started experienceing the most excruciatingly painful burning pain in the area of my upper buttock where the battery was implanted. It is extremely painful to walk and sit in a chair. I cannot stand for the area to be touched which makes it difficult to get dressed. I went back for my post op check up at which time I tried to explain the pain to the doctor. All he said was that it will take time to heal. I'm very concerned as this just doesn't seem normal.
Hi Tracie, my Boston Scientific was implanted October 2017. You are very early in your post operative period & there would still be quite a lot of swelling which perhaps may account for your excruciating burning pain. Post operatively and once wounds healed I gently massaged moisturising cream into the lower two incisions in an attempt to desensitise the nerves. My battery is left upper buttock & I have right upper limb CRPS (hence x3 incision sites). I find it becomes warm whilst charging, however it isn’t painful. My rep told me not to use any adhesive tapes to secure battery for x3 months. I hope things soon settle & you get good relief with your SCS.
Hi three!! I can't BELIEVE so many of you are having problems with your SCS like i was. I had 2 placed because the first one was NOT STERILE and within a week after putting it in,i was being rushed to emergency surgery to remove it. THEN I was talked into having the second one placed 6 months later. It never worked and it stuck out of my lower back SO far it was VERY painful!!! I FINALLY found a Doctor who would remove it, and I had it taken out in April of 2017. Boston Scientific is a NIGHTMARE and I wouldn't recommend them to ANYONE, EVER!!!!!!!!
They all sound like the generator/battery,whichever term you prefer, is sitting on or near your sciatic nerve and irritating the heck out of it. This happened to me post-op because I lost a lot of weight and the fat pad that it was sitting on disappeared and so down it plopped. My doc did NOT want to move it, but I couldn't sit on that side, had trouble walking and when I got foot drop, I insisted he move it. It's now working great and is much more out to the side of my butt.
As to the OP, It is a bit of a mess you are in being on blood thinners and all. I am an MD, a retired anesthesiologist. You have those damaged wires scarred down in there and to just go in and rip them out could cause quit a bit of damage to some important nerves. I would just go for getting rid of the generator which should be easy peasy as it is sitting in a scarred down pocket. There should be minimal bleeding. Good luck!
Hi ChelleChelle!! I'm with you would not EVER recommend them to anyone, mine lifted my patella up out of the groove they supposed to be in, but of course the Dr said that couldn't be, just wanted to put me in pain management, huh thought that was what the scs was for, one BIG joke they are, hope You're doing better, Joy
Obrigado allaroundanne!
Eu havia removido ambos. Estimulador e bateria e agora estou pronto para ir. Obrigado novamente!
Hi ChelleChelle, this is Joy read back across your post and just wanted to check and know how you are feeling now, better I really do hope. Did Boston Scientific ever do anything to help you with the problems you incurred because of their products. If not hope you found someone to help you deal with them. But did not post back because of the negligence of that company just wanted to really check in on you and hopefully You're doing better. As for pain relief if you don't mind saying what are you doing to control your pain. They, two Dr's are persistent in me being in pain management. All I know is pain is tough to deal with and I awesomely hope there is something that can be done other than making you as in us drug addicts. Well hope things are better for you please take care of yourself best as you can ,Joy
I'm soo sorry ChelleChelle that you had to go thru such a horrible experience:-( I had my SCS implant in December of 2015 and I have had more problems since I had my SCS implant. I started having problems with both sciatic nerves causing me to have burning,stabbing and numbness!! I kept telling my pain doctor but, he acted like I was crazy:-( For the past 4 months now my leg started turning bright red making it difficult to even walk or stand for more than a few minutes!! Where my implant is feels like I'm overheating inside of me!! Now I feel like I'm overheating everywhere inside of me:-( Is there any support group's that you know of? The one support group that I'm in doesn't want to hear anything negative!! This is soo frustrating for me because the more research that I do I'm finding that we aren't alone!! Something needs to be done about these implants!! I can't believe how many doctor's are pushing their patients to get this implant!! Sorry for ranting just hope to find some answers!! I hope that you are doing better!! Thank you for listening!!
So sorry, you are not alone. Join us on FB page. Failed Spinal spinal cord stimulator.
Join FB page Failed Spinal Cord Stimulators, read Brenda Davis post.
I had a CD Boston scientific trial was 98% pain free in neck and back. I decided to have battery
Put in and 3 leads that go all the way up to my neck, after that I starting having migraine in the back of my head, excoriating I've been in bed for months pain medcine, botox in jections for migranes, i go to physical therapy has helped range of motion my pain level 7-8, it quit working on my back
On my back and neck. July 19th they are taking it out, i have no idea what my next option will be
On my back and neck. July 19th they are taking it out, i have no idea what my next option will be
hi i have a question for you. i had a stim put in my neck for RSD in my arm in 2013. I ended up losing a lot of weight and the battery ended up hurting more than helping me anymore. Long story short they took it all out BUT had to leave one of the leads in because it was too close to my spinal cord and was to big of a risk to take it out. The surgeon had told me it would move and would either fester its way out OR would need an invasive neck surgery to get it out. fast forward to 2021 and i have seriously felt like in the last year something has tore threw my muscle by my shoulder blade and now it feels like i have something in my neck that’s painful
I had the implant surgery 12/21/22, pain was minimal up until a month ago, now I have intense burning pain at battery site, I can’t stand for anything to touch it! Dr said it’s not a common issue, I think he is fibbing!