Hi everyone, I have had several knee surgeries in the past year. Im still having issues. One thing I have noticed a couple months back is when I lay down in bed. My legs are in fire. They are not to the touch? It does it sometimes during the day,but mostly every night at bedtime. I get so irritated I get out of bed,strip down and turn a fan on. They are still burning. They don't tingle or nothing but any answers would be helpful. This is interrupting my sleep and are awful. Thanks Tina.
Hi Tina ,I have exactly the same thing, having to remove bed covers
off me. I have had it during the day, but most of the day my legs
and feet are ice cold. I do have a lot of other symptoms affecting
every part of my body.Most that only I can feel , which makes it
hard for anyone else to understand unless they are suffering
the same themselves.
Surgery to both knees? Burns from where to where?
Hi cabonick, from my hip all the way down. They are hot to the touch and are on fire. It's in both my legs. I have had the patella femoral realignment , scopes and total kneecap replacement on left knee. My feet are ice cold all day. Once I go to bed from my hips to my feet are hot. I don't know what this is and it's been overlooked in spite of the great deal of pain I deal with. I just wander what it could be now? Thanks,Tina.
Hi Mandy, I haven't addressed this to my Drs. I have been overlooking this and shrugging it off because the great deal of pain I still suffer from on my left knee.It gets pretty bad at night. I do to suffer from cold feet during the day. Once I go to bed it's instantly on fire. Both my legs. It's really weird. It does happen during the day time too. For example last night I went to pick my daughter up from work and I was so agitated and ready to get out of the car because they were on fire. They don't tingle or a sharp pain like sciatica. They are just hot. Thanks,Tina
I have the same issues with the burning feeling of the legs
I have fibromyalgia and dr again said that there's no cure.
Hi Tina, along with the burning,ice cold feelings, I have stabbing ,
pulling,pricking,stinging sensations. I've been told it,s small fibre
sensory polyneuropathy diffuse . I've been given Gabapentin which
hasn't got rid but has calmed it down a bit.
look it up see if it fits what you're experiencing. I also have
Autonomic Neuropathy .
Hi denise, I was diagnosed with fibromyalgia years ago. Is this a sudden onset of it becoming worse? I didn't think it could get any worse than it was? Geez, this disturbs me because your right. There is no cure. I use to think that Drs diagnosed people with fibromyalgia because they didn't want to rule out other things first. I had been told that I had it and there was underlying issues that layed undiagnosed for a while.I was suffering from some serious knee problems. Just wow.
Hi mandy, It's not a nerve pain feeling. I do have sciatica issues and cervical nerve pain and multiple migraines. So I could understand if pain was shooting or tingling cause I can relate to those pressure points,but it's a different kind of thing going on? I do have fibromyalgia and have had it for years. This is a new symptom that has come on for about 2 months. Maybe my fibromyalgia is just getting worse? I really didn't think it could get any worse. Lol. It's just weird. When I googled my symptoms it showed up MS and another neuralgia disorder. That's why it's not good to Google things. I'm thankful for these forums. I feel reassured I'm not the only one suffering and other folks can relate.
Hi Tina
I thought I'd replyed to you then realised I'd replyed to myself.
If you look further up the discussion you'll see.
I can relate and understand completely. It's really hard to explain
to people who don't suffer what we are dealing with ,what we are
experiencing.
Right now I have leggings on, socks on fleece blanket over me,and
my legs & feet are still cold. Yet, in about an hour they will be
burning like an inferno.
oh i have a lot of what everyone is talking about.. scary i cant have nothing covering my legs at night or it hurts if i do. so very horrible.. if i pic a sore it burns like someone is holding a match to my skin and it burns.. i also notice there not normal sores becuz they have deep holes, there not like normal sores..and again they burn.. i have to have a fan on at night for me to. my dogs jump up on my legs i almost go through the roof it hurts so bad.. i hurt really bad from my waist down there r most days i can barely walk.. i get this feeling on my legs,back,neck,chest and arms not much left is there.. ya if somone knows something or can help that would be great.. this is so horrible and no one understands either..thank pat
i cant wear anything for very long, i can wear long t shirt pj but that is it.. it is so hard to go anywhere do to this crap.. my feet get cold to but there is no way i can wear socks..i dont even think the doctors know what there doing when it comes to this stuff..
Hi Patricia I have a number of things wrong with me .
Your condition sound extremely painful,its dreadfully debilitating
What sort of test have you had done so far.
Have you had a nerve conduction test done? Are you in the uk?
i havent had ins thanks to our president so i have been just living with it.. i do have a lot of mental health issue that r trying to be controlled.. very very high anxiety, i go to the doc on the 9th of this month i told them i want a mri done.. i dont hurt this bad for nothing something is going on..
Patricia and Mandy, I'm gonna talk with my Dr about these things for sure. My life was turned upside down when I had my total kneecap replacement back in April of 2016. My knee would wake me up all hours of the night. Just horrible pain. It didn't dawn on me from all this knee problems that I was enduring these other issues. I'm not going to sleep til about 2 in the morning. Stripping my clothes off from waist down. Covers off and back on. Window open and fan going. Been thri ugh menopause so I can differentiate that as well. Ha this is not that! It started out with this crawling feeling in my feet that would irritate me to no end. I thought maybe it was from circulation? But these legs are on fire,fire. My husband can even feel how hot they are. He is like wow! I don't know but I don't think I'm gonna tolerate that much longer without answers. I sure hope you ladies figure out what's going on too. I know I would like to know?
YEP MY SKIN CRAWLS TO SO BAD ITS LIKE I AM LAYING IN A BED OF BUGS,, ITS SO NASTY I HAD IT SOOOOOOOOO BAD I WAS TAKING 2 TO 3 SHOWERS A DAY CUZ I THOUGHT IT WAS JUST ME, BUT THEN I KNEW SOMETHING HAS TO BE WRONG.. THEY PUT ME ON VISTARIL, OR ITS ALSO CALLED HYDROXYZINE PAMOATE 50 MG.. THEY HELP SOME BUT IT IS STILL THERE REALLY BAD AT TIMES.. GOOD LUCK IM GOING TO THE DOC ON THE 9TH HOPING TO FIND SOMETHING OUT.. PAT
Hi Tina,
I have the same thing . What I found very helpful is to take a bath with epsom salt and lavender. I usually stay about thirty minutes in the bathtube. I found big relief with this . I wish good luck . Please let me know if that works.
Hi I use epsom salt and it does work
However I have a problem getting out of the tub 🛀
Does anyone have this problem?
Hi patricia, I see my pain specialist on the 10th. I may give them a call and ask them about this. I got to thinking could this possibly be from my steroid injections? I get them in my lumbar and also in my sacral joints. My ortho Dr also wants him to do nerve blocks in my knee. So when I see him I don't know what he is gonna say about the knee injection. I'm kind of scared to get the injection in my knee because it already gives out on me,snaps,pops and swells alot. I have fallen down the stairs a couple times. I go in tomorrow to get a MIR if my shoulder. When I fell a few weeks ago I heard something snap in my arm. The Dr did a xray and it showed alot of immflamtion and arthritis. So he did a steroid injection. Do you get injections?