I'm new to this but I really need some answers. I've had so many tests, most come back with hyper thyroid, I've lost so much weight. From 10 to a 6 in a few weeks really. I get so sick in the stomach but don't always throw up. I get sweats, trouble sleeping, always feel fatigue though, head aches and missed periods. My stomach feels awful most of the time, I can't drink, makes me feel ill. I suffer from aniexty and depression.. I've always been thin, I'm so picky with food now too as it seems everything upsets my stomach. It feels like these hormones are poising my body.. How did you guys know you had hyper? What were you first signs.. I think I have had this for a long time but always put it down to something else. Waiting for some more test results next week but I'm so stressed about this I need answers.. If anyone can help pls reply below. I would appreciate any advice.
Rapid heart rate, heat intolerance, eye irritation, finally blood tests, ultrasound and uptake scan confirmed the diagnosis of Graves disease. If you have had it a long time, you have lost important vitamins, minerals and amino acids from your body. Though your doc will prescribe thyroid hormone blocking meds, if you add supplements to replace these lost vitamins, minerals and amino acids, you will heal faster. I took the meds for 2 years and it blocked the excess thyroid hormones but my TSH was less than 0.001 for that period of time until I started adding supplements like L-carnitine 3,000 mg (I asked to be tested for it and was found to be deficient), vitamin D3 1,000 to 5,000 IU (also was tested and found to be deficient), Magnesium 200 mg daily. Also took omega 3, 1,000 mg and curcumin for inflammation. The docs will not know or tell you about the supplements. For anxiety, there is Motherwort and Melissa. It made a tremendous difference to my recovery along with Methimazole (Carbimazole in England). I am currently in remission on a low dose of meds. Do not let the docs push you into having RAI or thyroid surgery. Meds and supplements are the best chance for remission.
I was diagnosed in Jan 15 with Graves Disease (Hyperactive Thyroid ). I too lost a lot of weight not sure what my dress size was but i was a size 8 before i got sick and when diagnosed size 8 was swimming on me. I was 40.2kilos when i went to doctor.
I was put on beta blockers and carbimazole. Im also taking Vit D and have started taking Naturopathy Herbal Medicines. Not sure if it's working, but i can say I'm feeling pretty good these days. I go for more bloods in 2 weeks. I wish the puffiness under eyes would go away.
You will start feeling better once your on medication. You need to be careful of a Thyroid Storm while waiting to be medicated.
Hi everyone! Thank you soo much for all your information. Im defiantly not alone here and sounds like help should be on the way after this last screening in Tuesday. This should hopefully show where the problems lies. I have had many bloods tests that indicate I'm hyper but it kept jumping up and down so they wanted to test me again few weeks later so i have been waiting and waiting; wishing for them to see it jump again and it did! As I expected ( started feeling crap again.. Can always feel it coming on) I have had many other tests done also not related as they thought I had refluex for months..
Rapid heart is big one for me.. Scares me sometimes. They want me to have an idione test this week? Anyone had one only these? I leave for a big overseas trip back home to the uk in 3 weeks so stressing it won't be sorted and il feel like this the whole trip! Sorry Jean.. I'm actually from Australia but me and family are welsh. May I ask how old you ladies were when diagonised? Thank you thank you for all your advice and info, I was gettin anxious just waiting for someone to reply! P.s. Jeanie- Aus medical scheme sucks and I have private health.. Still costs me a fortune!
Thanks heaps Jody! Cool name! Lol seems like we have like identical symptoms.. 40kg wow.. Lowest I've been was 42kg and we put it down to work stress years back.. Maybe it was this.. I never had been tested for it.. I did reply below all the comments too. Sorry new to this X
Hi I know the feelings. I would be grateful if you could possibly just let me know what your thyroid screening resullts were. I know it is a drag getting them together etc but it woulld help me to understand moe what is going on with you. I had a low TSH SUGGESTING SUBCLINICAL HYPERTHYROIDISM. t4 WAS 16.5. tpoS LESS THAN 33. i HAVE A MULTINODULAR GOITRE AS WELL. this can hyper secre T3 and T4. Subcliical hyerthyroidism is treated differenntlyy. I have all the symptoms that you ghave. PLUS JOINT AND MUSCLE PAIN.
have you been tested for antibodies yet?
Did not realise that Australian healthcare is bad as well!
I will have to get them for you. I might just request them all on Tuesday so i can let you know the latest ones as I actually do not have copies of them yet as it was just an results call from the doctor. And she wanted me straight into idione testing. I'm fairy certain I've been tested for just about everything as this has been on going for about 8 months. I can't remember all the tests I've had and I had heaps when I got put into hospital. That's how bad my stomach got at one point.
Aus healthcare isn't too bad I shouldn't complain but it's annoying if you have ongoing sickness as it caps out at some point but your still sick.. So frustrating! thanks for your help X
I think that you need your results in writing before agreeing to any treatment esp RAI.
Perhaps you could contact your surgery today and ask them to e mail you he resuts or possibly have them ready so you could collect them before Tuesday.
Im 49 and think ive had this for a couple of years before i hit rock bottom.
Im sure stress has played a major roll. Plus ive currently found out leaky gut can cause this also.
I did the iodine uptake test and it comfirmed Graves.
Ive gone Hypo once from being over medicated. Then doc reduced my medication then it went slightly hyper. That is when i sort alternative help. I still take carbimazole along with herbal medicine. Have next bloods in 2 weeks. Hope it has improved.
Hi Dreamergirl, diagnosed with hyperthyroid/Graves 2 and half years ago but in hindsight probably had this long before that. The symptoms had crept up on me one by one until I had that many scary/awful symptoms to cope with anymore. Loss of weight (like you from a size 10 to size 6), racing thumping heart beat/pulse, panic attacks, anxiety, heat intolerance, shaky hands, breathlessness (could'nt climb a flight of stairs or walk for long without glasping for breath, thinning brittle flyaway hair, ate like a horse but never gained weight, phobias, dry gritty eyes - the list is never ending. My thyroid has nodules on it but that has been checked and the lumps are benign. Been on medication for HYPER thyroid since diagnosed in 2013. At this moment in time I am now being medicated for being HYPO thyroid. Swings and roundabouts in my case and as such I have been referred back to the Endo and have an appointment for November. It's a debilitating disease which has completely changed my life in a poor way. Finding this website has helped me tremendously in that know I am not alone going through this and there is so much help and support from the members on here and other forums AND I know now that I am not insane or lazy or a hypercondriac !! I am 60 by the way but thanks to this disease look older and definitely feel older ! Chin up and smile as much as you can
Thank you so much for your info Christine! Seems like we have very similar symptons, can't wait to get this sorted. The sad thing is I'm only young 29, and this has been effecting me years now.. Just need it gone.
I will keep on track with the website as I got the best info form here so far. Does the medication they give for it have any side effects?
Hey Ladies.. Thanks for all your help. Just a few more questions!!
Did you girls get regular periods? As mine are so all over the shop, never even know if I'm going to get them.. Also pains in the stomach.. and cannot sleep.. Always feel wired.. Is this the hormones doing this to me? Also just wanting to know before being put on any meds.. is there any known side effects for the medciation they usually prescribe you?
Hi Lucy, it is well documented that stress can be a trigger for this disease so yes the stress caused by moving house could well have triggered your thyroid problems. Stress has certainly been THE or definitely a contributing factor to my hyperthyroidism/Graves. I doubt very much that no-one goes through life without having had some stress, unfortunately it woud appear that there are those of us whose thyroid hormones can't cope with it and we are some of them ! I have had a lot of health problems throughout my life but this is the worst, if only because it's been going on for so long, let alone all the very nasty symptoms that come with it and in my case just don't seem to have any long periods of time when I feel 100% and I think that's because "they" (Endo and GP's) haven't managed to get the dose of medications right yet and also because they have failed to do the follow up patient care that each of them thought they were doing between them but in actual fact neither of them were - a total lack of cummunication between the Endo at hospital and my GP at the medical centre ! And the more I read on this forum about Endos and GP's the more I am realising just how many people suffering with thyroid disease are not being treated well enough.
thanks for your help X 
I am 60 by the way but thanks to this disease look older and definitely feel older ! Chin up and smile as much as you can 