Fui diagnosticada com hidradenite supurativa há 2 meses e venho frequentando médicos nos últimos 7 anos, mas eles apenas me dispensavam com antibióticos. Fiquei devastada ao descobrir que, quando finalmente investigaram, já estava no estágio avançado do estágio 2. Já tentei inúmeros antibióticos e, com os efeitos colaterais, não consigo tomá-los. Parece que minha única opção agora é a cirurgia. Tirei tantos dias de folga no passado devido à dor da condição e, quando consultei sobre obter meus registros médicos do meu médico de família, descubro que tenho que pagar £50 e escrever uma carta ao gerente da prática explicando por que preciso deles, e depois cabe a eles decidir se me dão permissão ou não. Quero tentar levar isso adiante, pois, se tivessem me investigado antes, isso teria sido controlado e não teria chegado a este estágio. Durante 7 anos, eu ia e dizia a eles que havia algo errado, mas me faziam sentir que tudo estava só na minha cabeça e que eu só tinha furúnculos que haviam se infectado. A dor era insuportável e passei dias sem conseguir usar roupas normais.
obrigada desde já
Mam. I am using only 4 medicines and now it's give me relief little bit but I am also avoiding nightshade fruits and vegetables until I didn't get properly fit. I am also trying to avoid meat and eat fish with salad. Overall if you really wanna to cure self go ahead search hs diet in Google and if you wanna more info how to diet? Then search Catherine *435 and try to follow. I hope you will get well soon.
Não como direito há 5 dias porque a medicação que estou tomando suprimiu totalmente meu apetite. Eu só como legumes e carne.
e a hidradenite não tem cura infelizmente
Mam every disease has a cure. Just don't listen doctors to much. Don't lose your hope. If medicines creates trouble 4 you then don't eat avoid for one or two day atleast. Search the Hs patient of this page Catherine435 and see how she cured they are alots of patients who got recoverd just don't loose hope plz
I have suffered for 8-9years but was only diagnosed 3 years ago despite numerous visits to doctors just to be given antibiotics.i too suffer severe reactions to most of the successful combination of drugs.i lost my job due to amount of time had off and am not able to hold one down at moment as in and out of hospital so often.
Along side feeling so rough and the pain it also causes me great distress as not able to live normal life at moment.you have my sympathy xx
é horrível, não é? Estou na área de cuidados e não posso agradecer o suficiente aos meus empregadores pelo apoio e paciência que têm comigo. A dor é insuportável, tenho infecções o tempo todo, mesmo tomando os medicamentos... Espero que você se recupere melhor logo, é uma coisa horrível de se ter.
Hi I too was fobbed off by doctors for years and it was only because a friend of mine has it that I asked to be referred to a dermatologist for a proper diagnosis. He comfirmed I had it but didn't offer much and he was a total jerk. He took it very lightly and just told me to go away and be happy and live my life!
Most gp's have never heard of it so unfortunately it is up to you to be proactive and look for answers yourself from sites like this, reading on the net, and there are some very good HS fb sites too.
HS is a highly unfashionable disease which is little researched and there are no ideas on the cause of it. I was told it was more common in those who are overweight, smokers or those who have suffered acne in the past (I have). Not sure if tackling those issues would make much difference though. I found that one of my biggest triggers was stress but it's hard to avoid that these days.
Sorry if this doesn't sound helpful but know that you are not alone. x
Há cerca de 2 anos, um médico me disse que achava que poderia ser isso, mas não tinha certeza, pois eu precisava ver um dermatologista... mas ainda não fui encaminhado, estou tão cansado disso agora x
Hi Tania, if you live in the UK you can get your medical records for free, it is your right by law!!!!!
You just have to insist. Online access to your GP records is free of charge.
However, charges may apply if you wish to see the originals or get physical copies or your health records.
The Data Protection Act (DPA) covers personal information, including health records. It gives you the right to see your records by requesting a permanent copy, also known as a subject access request (SAR).
I was charged £10 some years ago to get paper copies of my records ie the admin and paper cost. All I got though was copies of letters and not what the GP had put on my notes, which is what I was really after. I wasn't aware they are free online. Does that include notes gp's put on when you visit them? x
Eu realmente preciso dos meus também, mas me recuso a pagar £50 para acessar meus próprios registros quando uma recepcionista pode procurar de graça haha. Vou encontrar o jeitinho e atualizar se tiver sorte x