Hi there I'm a 42 year old male who has ME CFS diagnosed in 2007 and in 2013 I was diagnosed with ulcerative colitis and as side effect result of heavy steriod treatment for colitis I have developed anxiety disorder .
My latest flare of coltis has floored me fatigue wise I'm almost housebound bordering on bed bound I have no energy i haven't had a drink of alcohol in a year because of flare and medications . I am not overweight and I am within my BMI for height and weight but have put on about half a stone in the last month and have had blood tests done frequently my blood sugars are normal .
In the past few months I developed a craving for sugar sweets sugar mints to be exact I eat about a packet a day I know myself it's too much but I have a craving for them other than the sweets my diet is good . Can eating too much sugar make you feel more tired and fatigued and add to my ME CFS and possibly my colitis symptoms ? I know I'm probably asking the obvious here sugars more addictive than cocaine right ?
Oui, le sucre est plus addictif que la cocaïne. As-tu vu le documentaire "Fed Up"? Il présente un très bon argument contre le sucre. Mais je comprends l'envie. J'ai une envie intense de See's candy California brittles. Je suis sûr que vous savez que le sucre est considéré comme très mauvais pour le ME/CFS. Cependant, je dois admettre que je l'utilise pour des bursts d'énergie nécessaires pour aller aux rendez-vous chez le médecin et pour d'autres événements. Mais c'est jouer avec le feu. L'autre soir, nous avons organisé un grand concert à la maison avec 60 invités, et j'ai abusé des bonbons. Je me suis extrêmement mal senti le lendemain, avec des problèmes d'estomac, des nausées et une sensation générale de malaise. Typiquement, mon estomac va bien. Donc maintenant je réduis le sucre.
Hi Jackie no I've not seen that documentary I'll look it up on you tube . In the U.K where a lot of the focus is all on the fat content in food it's only the past few years the press and media have highlighted the sugar consumption and hidden sugars in food and drink as the reason behind the obesity and diabetes epidemic in the U.K . I agree anything for a bit of energy with ME/CFS. there is caffeine but too much of that does no help either . I did try to mention to my Gastro Dr about the possible link between ME/CFS and the gut but he wasn't interested which the NHS in general I have found are not much help with CFS its a psychological illness is the main consensus .
I've heard of a few reports of patients with ME/CFS going to specialists privately paying a load of money looking for answers or reasons behind illness and where it originated loads of tests done to be told it originates from the bowel but they can't be 100 per cent sure .There must be loads of theories out there though.
Yep loads of theories out there and possibly many correct! Mine is from a car crash, a friends is post viral and someone else I know, is from a bad break up with boyfriend! Seems some kind of trauma causes the initial and that could be neurological, physical, gatrogical, social, environmental etc. In relation to cfs and sugar, usual sugar rushes cause the dip in energy afterwards so, it can have an affect regardless of cfs/me. Genetic factors also come into play as well as amount and time amount of consumption. Add to this a whole host of other factors! Like natural sugars-even in cheese and it goes on... but, what I want to mention is a long time ago when I was struggling anxiety wise, a psychotherapist told me to suck on a sweet to help it? So, maybe your body needs that sugar right now? No harm in cutting back though. If you have a whole bag a day, over a week cut down one or two sweets a day. Put them to one side and see ow many you have cut down. On a daily bases Its nothing! But see after a week.
Ils commencent maintenant à se mettre d'accord sur le fait que les bonnes graisses sont essentielles car elles nourrissent le cerveau, et comme vous l'avez dit, les sucres raffinés sont mauvais. Ils les mettent dans tout ce qui est transformé, n'est-ce pas ? Il est donc préférable de manger des aliments frais et faits maison.
Le ME est un trouble auto-immun et la majeure partie du système immunitaire se trouve dans le système digestif. Je ne pense pas avoir déjà rencontré quelqu'un atteint de ME qui n'ait pas eu quelques problèmes digestifs en plus !
Hi Georgia, I have been thinking about starting new discussion on here about possible link between digestive system and M.E. I had ulcerative colitis for about 20 Years before I got M.E. after bad episode brought on by a distressing occurrence in family. I've just also learnt that most of serotonin is made in bowel! Fascinating isn't it? I have just recently had allergy/intolerance testing. Lots came up but I was advised to try gluten and dairy free to start with. My bowels are thanking me. Also reduced craving for food in the evenings and a little more energy. Unfortunately, I'm finding that gluten free food usually means increased fat and sugar! Can't win can we!?
Je suis à un régime sans gluten et sans blé depuis un certain temps maintenant et cela m'a empêché de gonfler. C'est vrai que le choix que nous avons n'est pas idéal. Le fait maison est le meilleur, mais je n'ai pas l'énergie de cuisiner tous les jours et de faire mon propre pain.
Je participerais à une discussion sur le lien entre le système digestif et le ME ; je pense que c'est vraiment important. Cela pourrait amener plus de personnes à améliorer leur alimentation et à prendre des suppléments pertinents. Allez-y, s'il vous plaît !