Cellcept

Bones, joints and muscles
1

I’ve talked this week about Being on Methotrexate and Humira. Today Dr took me off all that and start Cellcept twice a day an 5 mg prednisone. Has anyone had experience with Cellcept. I also have scleroderma which I was diagnosed many years ago but since RA I never had a serious problem with it.  So my hands are swollen and tight and stiff. That won’t change he says. I’ve never heard of this med so I’m interested if anyone has taken it. 

2

Hey Regina I just did a quick google search of “Cellcept for RA” and that produced quite a few results that will possibly be of interest to you.  Good luck.

3

Hello Regina,  I don't have RA or Scleroderma but I do have experience of Methotrexate, which I took for 24 months before having to give it up & then Cellcept [Mycophenolate Mofetil] which ia also took for a similar length of time.  I restarted MMF [Mycophenolate Mofetil] a few months ago.

This leaflet might help you

https://patient.info/health/scleroderma-systemic-sclerosis

And the following one

https://patient.info/medicine/mycophenolate-mofetil-cellcept-myfenax

With all these drugs, you need to take them for about 12 weeks before you notice any difference, the objective is to get you off the oral steroids.  They are used as 'steroid sparing agents'.

What country are you in?

4

https://patient.info/health/rheumatoid-arthritis-leaflet

The RA leaflet is also helpful reading.

I was diagnosed with SS [Sjögren's Syndrome] in January this year, aswell as an autoimmune skin disease which I was diagnosed with officially, in 2011]  and the only 2 drugs suitable for me, are MMF [Mycophenolate/Cellcept]  or Rituximab which is a biologic given by infusion & very expensive.

5

Leaflets were helpful thanks. I am from upstate New York. I guess because both of the autoimmune diseases Cellcept must be the drug to take. I’ll try to stay positive.  I will probably seek out a specialist for the scleroderma. I had one years ago when first diagnosed but was able to keep it under control for 25 years. The RA must have woke it up. It is what it is. 

Thanks all for info.