Choice difficulty

I've had retention problems for some time, without it seeming to be a problem: about 500 - 600mL. But about a year ago my blood pressure started rising, eventually to alarming levels (200+/105). Then my remaining kidney started showing signs of reduced functioning - creatinine levels up, eGFR down (eventually 25). Various specialists investigated and put me on various blood pressure pills, which worked to some extent, with unpleasant side effects. Eventually I had an ultrasound check of my abdomen, which showed dilated ureter with what seemed to be an obstruction. So a cystonephroscopy was done (a visual check, via the urethra, into the bladder and ureter).

They found (a) some low gade baldder cancer; (b) no cancer in the ureter, just distension; (c) high urine retention (1.2L). They put a catheter in for me to drain regularly and thus relieve the back-wash into the ureter (which may have been causing the poor kidney function and increased blood pressure); this to remain until I had a TURP in several week's time.

Subsequently, my kidney function improved and my blood pressure fell (I've halved my hypertension medication too). This shows that the earlier consultations with the hypertension people failed to discuss or test for this possible cause (I'd been put on an increasing dosage and wider variation of pills instead). and thus didn't uncover this cause and more productive way.

Next, I found the poor sleep and lack of sex with the catheter such that I didn't want to wait months with it in. Fortunately, I can afford to go private. This didn't produce the rapid response from the local team that I hoped for - failure of communication and missed clinics. I started a hunt for alternatives, meanwhile chiving up the locals (which eventually got a response, but after I'd found someone else to do it quicker and cheaper).

I got a bewildering and conflicting set of recommendations from experienced urologists - TURP, Green Light Laser, HoLEP, UroLift. All seemingly sincere and stating that their preferred option was the best. Even contradictions: one urologist said as I'd had bladder cancer, then a couldn't have UroLift; an hour later another urologist contradicted that but then thought surgical TURP was the best even though he did HoLEP and UroLift. Etc.

In parallel with all this, I was attempting to find a hospital that has a short waiting time for this op on the NHS. Theoretically, and English patient can choose to go to any hospital. But try finding a list of hospital waiting times for this op (or any other for that matter) as I did, and I found nothing. I failed after three days searching the web, and phoning various organisations (NHS Choices, CCG, BICS, PALS, hospitals direct): either nothing or having the same waiting times for the one or two hospitals I talked to directly.

My conclusion from this is that there may not be much difference in outcome on average from any of the alternatives, and the expertese and experience of the urologist along with the patient's individual situation may have more of a bearing on the outcome than any one of the four alternatives.

So I feel now relaxed that I'm having my op done next Tuesday, by HoLEP, with a surgeon who says he's been doing two a week.

I'll report back afterwards.

 

Good luck with the operation.

All the urologists disagree and are usually pretty adament in their preferences.

Practice nurse told me that sex is possible with a catheter.....I said don't tell me!! as I only had it for two weeks. Actualy I did look it up and it can be done.

 

Thanks Derek. I did try sex once, but the results were not nice - blood, etc. Not again. So I want this darned catheter out asap

Wearing one for two weeks was a hassle. One leaked when I was out after that I carried a spare rair of trousers just in case.

You deserve a good outcome for your persistance against a sea of NHS troubles. Some years ago a Guy on a prostate NG was posting during the procedure.

Hi Ian,

Best of luck. I think the holep was a good choice as they can evaluate the removed tissue for cancer, while the GL I had just vaporizes everything so there's nothing left to evaluate. I agree with your evaluation that all the procedures are very similar (except for being able to evaluate the removed tissue), they all just cut or burn a tunnel through the prostate, to allow the bladder to empty without the previous obstruction caused by the enlarged prostate.   Please keep us posted. Don't be discouraged if you take longer than expected to recuperate. Some men are good in 10 days, others like myself experience 8 to 9 weeks of bleeding, urgency, frequency and spasms. I think it's the luck of the draw.

When I had thulium laser surgery last year it was not all vaporised and he had masses of material to send to histology. 

I think only the Green Light laser (at least the 180 watt XPS that I had) is the only laser that vaporises only, so leaves nothing behind to analyze. I think all the other lasers cut and section or grind the tissue and wash it into the bladder where it is washed out at the end of the procedure.

Thanks guys for all that input. You've all been a great help in guiding me through this and letting me know what I may be letting myself in for.

Yep, I'll report back.

Are you expecting to be home the same day? Most GL laser patients are. Friends who travelled to London for it spent the night in a hotel and returned to the hospital in the morning to have their catheters removed. I was kept overnight as I had it done in late afternoon. They took the catheter out the next morning but I could not pass much and had retention. If I had lived locally they would have let me go home but as I had to travel to Edinburgh from Newcastle they did not want me out of reach of promt attention so I had to stay another night until I could void without retention.

Rather similar with the Thulium laser done locally in Sussex last year. As I was still passing blood they sent me home on the second morning with a catheter in.

OMG! Sex with a cathater still in? I cant imagine that. I woke up with an erection a few times while that tube was in. ...freaked me out!

I've been told to expect to stay in for two nights. The op is in the evening (18:00). I did keep saying 'maybe one night?', but they seemed doubtful.

I now second that. Which is why I want the darned thing out asap

Hello ianC,

Did you have th HoLEP procedure? I am hoping it went well. I just had the Urolift 2 weeks ago and so far I am doing better but still not off the Flomax. I am curious about your procedure. Which doctor? Was it successful? Are you Happy with the results? Thanks Phil

Hi Phil,

Yes, I did have the HoLEP TURP. In terms of urine flow I'm pretty good in the day - I can comfortably go 5 hours if I need to; 4 is general.

Oddly, I still have to get up at least once, and lately twice, a night. I even think I was up 3 times last night (I'm so groggy then I'm not sure - I do it on auto-pilot).

I stopped tamsulosin a week or two after the op (last August) and haven't needed it since.

The surgeon was Ravi. He said he'd done lots, so I trusted him - but didn't check (I think I should have done).

The op seems successful. But I still have micro-haematuria and leukocytes, which Ravi was dismissive about when I contacted him a month ago. He'd told me they would finish in 6 - 8 weeks; not true. But someone here (Derek?) told me he'd had such problems for 12 months before they cleared up - so I'm hoping that'll be true for me. There's no issue with pain - these sypmtoms only appear on the dipstick reagant tests I do daily.  Apart from that, I am failry happy with the result.

I've no problem with ED, other than my dick now has a bend to the right - not really a problem. Orgasms are OK.

Micro-hematuria and leukocytes.... Wasn't me Sir:-)

Did he say why your dick is now bent? The head of my penis was mildly painful for a month or so after my last procedure.

Hi Derek.

No, I didn't mention that. I just assumed I was lucky to get away with just that (it's more a 'lean to the right' and not really a problem - but maybe I will take it up with him; he's been a bit too dismissive for what I think is something he's responsible for). I know that some have worse effects afterwards.

I don't recall any pain afterwards.

Have you compared its look to Peyronie’s disease?

No I hadn't. But thanks for the idea.

From what I read on Wikipedia, that may explain it - except it only happened after the TURP, so I suspect it's more to do with that.

I doubt there's much can be done about it; and it's not troubling me - I'll leave well alone.

Gives you something in common with Bill Clinton:-)

 

IanC,

Everyone heals differently at different rates. I had a guy online tell me he trurned the corner at 6 weeks. I was disaapointed when I didn't. It took me 9 weeks to stop peeing visible blood daily and getting verey sharp spasms when I finished peeing after my GL laser.. I have my own 10 parameter reagent urine test strips, and I had micro hematuria and leukocytes for many months. Neither my GP or my uro were concerned.

Good luck,

Bob