Dor nas costas crônica em busca de apoio e conselhos

Oi a todos os colegas que sofrem com dores, eu pediria como todos estão, mas sei que essa pergunta pode ser uma droga e emoji de rosto com lágrimas de alegria. Eu tenho dor nas costas há 10 anos, intermitentemente, desde que me machuquei durante o trabalho de enfermagem. Minha filha está quase com 5 anos, a gravidez foi tranquila, mas o parto foi horrível, parto com dor nas costas e um disco degenerativo não foi divertido. Depois disso, minha dor nas costas não parava de piorar. Meu marido me incentivou a voltar ao médico e obter respostas. Fiz uma ressonância magnética que mostrou que meu disco estava hérnia (L5-S1). Nessa época, eu estava grávida do meu filho, a dor era horrível e, aos 5 meses, tornou-se crônica... Tomei morfina, que me deixou muito sonolenta para cuidar da minha filha, então passei a tomar tramadol (obviamente não queria, mas estava em agonia). Tive uma cesariana, pois não podia arriscar ter outro parto com dor nas costas e chegar ao termo completo. Meu filho nasceu saudável e feliz, graças a Deus! Desde então (ele tem 15 meses), tive 2 injeções de esteroides, a primeira funcionou, a segunda não... Os médicos e o cirurgião basicamente disseram que não podem fazer mais nada, pois a cirurgia não funciona bem para discos hérnia, então fui encaminhada para o manejo da dor. Tomei as coisas nas minhas próprias mãos e paguei particularmente por terapia IDD (esticamento do disco). Tive ótimos resultados nas 6 semanas de terapia, mas quando fiz muito, a dor piorou. Agora terminei as 6 semanas de terapia, mas como ainda tenho muita dor, eles vão fazer mais 2 sessões, pois acham que exagerei... Eu me sinto perdida, tenho dor crônica, não consigo ficar em pé por mais de minutos, andar mais de 20 minutos ou sentar por mais de 10... Tenho que dormir de bruços, mas acordo rígida e com dor. Estou tomando gabapentina, mas não acho que esteja fazendo muito, então posso ver se posso voltar a tomar tramadol... Meu marido é incrível, ele ajuda muito, mas ele é chef e trabalha 4 dias de 14 horas, mas tem 3 dias de folga... Eu me sinto tão deprimida e frustrada, não consigo levantar meu filho de 15 meses como eu gostaria, tenho que sentar para empurrar minha filha no balanço e esperar o ônibus ou andar me mata... Só quero conversar com outras pessoas que me entendam... A dor crônica é verdadeiramente destrutiva da alma, mas você tem que carregar e fingir que está bem quando, na verdade, está desmoronando! Qualquer conselho seria ótimo... Espero que sua dor não esteja muito forte hoje e que você esteja se sentindo tão positiva quanto possível, estando em dor.

Hi Erica, I am so sorry you are going through a difficult time you seem such a strong person.

I understand exactly how you feel I've been suffering with chronic pain in my neck / shoulders for 5 years following a road traffic accident. I have tried so many oral meds everything you have taken and much more absolutely rubbish!

I am registered at the London Neurologist hospital I regularly go for trigger point injections ....normally every 3 months! I had the whole body infusion last year it never really helped me but it might help you! At the moment I am still suffering the constant stabbing burning pains it last 24 hrs everyday! I have difficult sleeping due to the neck and shoulders so trust me you are not on your own! You must have faith try and remain positive. ...and I know this is very hard there is times were I just want to scream lol! At the moment I am having private osteopath treatments combined with Pilates 121 it's expensive but it helps with movement. If you can get you Dr to refer you to a hospital that has hydrotherapy you will see and feel such a hug difference as well as make some lovely friends who can understand and relate to your pain!

I was taken amitrotyline for a while it helps you sleep but leaves you sleepy in the mornings lol....I have realised that there is no oral tablets that can help me so my Dr has just started me on 5mg buprenorphine patch. ...I have seen a huge difference will at least the stabbing pain has gone so I can cope more with the pain. You might like to try this I think it will get you.

I know things are hard but you have been blessed with beautiful kids unfirtub

I've been suffering with lower back pain for 13 years so I've had a long time to adjust to it. I'm 55 years old so my kids have long since grown up. I never had to deal with the chronic back pain and small children at the same time. The closest I come to it is when I have my visitation with my grandson and granddaughter. And when I do I have to have help because there's no way I could do it on my own. So I can certainly appreciate you having to do it every single day all day and night. I can barely manage it for 2 to 3 hours and that's with help. I do take opiates and I've been taking them for many many years so they no longer make me sleepy and I can function quite well on them. But I do have a suggestion for you that you might want to look into that is a non-drug pain control method. You might ask about having a stimulator implanted in your back. I tried but it didn't work for me so they didn't implant it. You have a trial first and if that works out then they implant the stimulator. I don't know if you've ever heard of a TENS unit and if you haven't then you need to get one right away and use it. A TENS unit works very well and a stimulator is kind of like a TENS unit only the stimulator is of course implanted and the TENS unit is not. The way they work is they kind of garble the pain message that goes to your brain so that your brain doesn't get that pain message. I don't know what country you live in but I'm thinking you don't live in the US from the way you spell Labor. So I don't know what the dollar conversion would be but in the US a TENS unit runs around $40 or $50 so they're not terribly expensive and you can buy them on Amazon. Also there is a website that is a very good support system for me not only is it good support which I think you need, it is also a place to gather information on alternative pain control. It has people from all over the world on it everywhere from the US to the UK Africa Malaysia Australia just to name a few. I can't give you the website here because it will be monitored. But I will send you an email with the website on it. If you do decide to go to the website I just want to let you know there are a few questions you have to go through so just bear with them and then if you would like you can look me up. My name on the website is Kathleen Kaiser. You can look me up and even add me to your team. Good luck to you. Having back pain is a very difficult thing to deal with and you need people who know what it feels, like to talk to. Best of luck to you.

I am sorry you are going through a very bad time . The only thing you can do is to pace you're self , and do things when you are able . Doing some exercises can stop you from going stiff. Swimming is also good for you as well as relaxing . I have done a 10wek course on Pain management. It is not at all easy. I have had this now since I was 30 and now I am 64. I had the disc removed and spinal fusion and it does not work. So please try other things. Tens machine acupuncture phsyo. All the best.

Oi, estou interessado no outro site que você mencionou. Há 2 anos, fiz uma microdiscectomia por DDD e ciática. Nos últimos meses, minha dor nas costas/perna voltou a incomodar e na última semana foi horrível. Agora estou vendo um médico que está me dando um teste de 10 injeções (5 de cada lado da minha coluna lombar) uma vez por semana durante 4 semanas para ver se isso me traz algum alívio. Já fiz 2 sessões e nada, na verdade, a dor da semana passada piorou ainda mais, mas não acho que seja por causa das injeções. Estou tomando hidromorfona, Vimovo e Lyrica, mas nada parece ajudar muito ultimamente. Estou tão cansado da dor e me sentindo realmente miserável. Não ajuda que meu médico tenha mudado meus antidepressivos, então estou no meio de esperar que os novos façam efeito. Espero que você esteja se sentindo bem.

I am always telling people to think strongly about whether they want surgery because it is a rare time when surgery actually fixes the problem on a permanent basis. More often than not it doesn't fix the problem at all and then there's times when it fixes the problem but it's only for a year or two and then the worst problem was all is when it makes the problem worse than it was. But my warnings always seem to fall on deaf ear because the doctor makes these grandiose promises. I'm always hearing "I have to do it because I'm in so much pain I have no choice." And I tell them to ask the dr. for the percentages of what the chances are for success. Of course I don't know if they do or if their doctors tell them the truth for the percentage of success. I was not given the option for surgery as my lower back problem was not something that could be fixed with surgery so I consider myself lucky that I didn't have to make the decision whether to have surgery or not.

I'll have to email you that site because it'll be monitored off of here. I'll look for you on the site.

I guess you don't have an email. I've never come across this before and I see that you're new so I don't know why this is but I've looked and looked and I don't see an email for you.

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amkoffee,

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Regards,

Alan

Eu entrei com um e-mail quando me inscrevi.  

Then I'm afraid I just can't help you.