I will try to keep this short. Three years ago my fatigue started and is still here. Brain fog too. I have visited so many doctors these years and they tested me for autoimmune disorders, celiac and other things and noone knows what is wrong with me. At the beginning I was vitamin d deficient but that was fixed the first year. For three years now either I wake up exhausted or I have energy only for the first couple of hours. I also have cold urticaria and oral allergies in some foods (I didn't have either before my fatigue started. Has anyone experienced anything similar? or has anyone any idea what it might be? I exercise regularly and eat as healthy as possible. any input would be greatly appreciated.
have you looked into Lyme and tick borne infections? Find an LLMD near you
Hi Alex,
Do you remember a trigger to your fatigue?
Beverley
were you taking any meds any antibiotics before you started to have these symptoms ??
hi there , im sorry that youve felt so rough for that long now. it sounds like you have chronic fatigue syndrome or ME! THIS IS THE DIAGNOSIS, i have ME , this is the disease or disorder . its the cause you are looking for i suspect , well maybe you wont find that . i have alot of people say to me , oh so they dont know what it is yet that you have and i have to say yes the do know its called ME.
it had taken me a while to come to terms with this diagnosis, but the sooner you do you can go into healing mode and self care, its an important step to make I feel in the road to recovery. acceptance doesnt mean you are not fighting for you health but if you have a diagnosis the you are much better able to treat it. hope this makes sense and of course this is just my opinion.
sending many blessings and wishing you good health. Jan
I have looked into Lyme, yes. the test was negative. thank you for responding
The day it started it was the last day of being sick with what seemed to be the flu, although I had more fever than I usually have when I have the flu. I was shivering and aching in my entire body. I woke up the next day exhausted, which I thought was normal for the situation. Flu was gone but the fatigue never left.
I had been taking depakote as a mood stabilizer for years. After the first year with fatigue I stopped taking them to see if it would make a difference. It didn’t…
Thank you for your response. I have thought about chronic fatigue syndrome and I think it might be it too, but I am hesitant to settle in that thought because I have read that you need to rule out everything else first and that sounds like a lot. Also, where I live doctors are not really accepting CFS as a real disease. They prefer telling me that it is in my head (some of them already have)
oh thats rough if your doctors dont even recognise, where do you live ? Im in NZ and although we are short of specialists here my GP is very good m i think if you have had for more than six months and you have seen many doctors and had all the usual mainstream tests to rule out cancers , MS adn blood born diseases or deficiencies im pretty sure that youd fit the criteria for cfs. im no doctor but there are lots of guidelines online. all the best
i had a cold two weeks before i got sick which is thought to have triggered it for me. but six months prior to that i had been doing a very stressful job which apparently left me more suceptable to getting ME
Hi Alex, There is a very high false negative rate only an LLMD will understand. With LYME etc. the sooner you start antibiotics, the better . Google LLMD. The average doctor doesn’t understand this
alex, how long have you been sick?
I agree that it sounds like CFS/ ME. I have been recovering for 4 years now. It can be a long road.
not everything is lyme ,and advising someone to take antibiotics or ANY kind of medication without knowing their health background is EXTREMELY DANGEROUS specially over the net. I wonder why and how you are so sure he “has” lyme when the test already came back negative. does anyone ever look at side effects from medication. I feel sorry for ppl struggling with symptoms thinking their I’ll. with all the respect I hope not to offend anyone 
Hi Alex,
Cfs/me needs a trigger and it seems yours was the flu? If you Google the ME association there is a list of causes and symptoms and any virus can trigger post viral syndrome which then leads onto ME. My own trigger was a car crash and just like you I woke up afterwards exhausted. Doctors, psychotherapist and physiotherapist all telling me that was expected. 18 months later was when I started to wonder if this were something else and all clear blood tests came back.
I have had people ask me about Lymes (my reply is that I would have been really unlucky to have been bitten by a tick and have the crash!) a liver disorder that has cfs/me symptoms, vitamin d deficiency etc. I know my trigger but would just like to get to recovery. Lots of people do.
Beverley
I have been sick for the past three years
Jan, I have been doing a stressful job that I quit two months prior to getting sick. I worked for many hours with no days off and with too much stress and very strict bosses. It seemed weird to me to be honest, that of all the pressure I didn’t get sick while I was working but two months later
I live in Greece and we don’t have the best medical care here. I will try to find a pathologist who is familiar with cfs. At least he/she will know what to rule out and how to diagnose it. Thank you for taking the time to reply
yeah i think then the flu is the trigger or the final straw , 