I have had chronic urticaria for nearly 12 months now - well this episode - it started in January 2006 after taking a drug called metformin - or so I thought - i have seen several consultants, been in and out of hospital and today have been told it could be delayed pressure urticaria. I am on telfast in the morning and zyzal in the evening - i have tried ciclosporin which didnt work at all. When I have a bad attack - (which means worse than usual as i have had it every day since last october with no break) I get shakey, shivery as my body is trying to cope with the heat from all the rashes. When i get excited, stressed, not enough sleep, my period, ill, exercise, hot, alcohol it gets worse so most of the time then!!!! i have now been suggested to use sulphasalazine - has anyone else tried this? I am taking steroids but 8 x 5 mg for 3 days only to try and get it under control - i have just been in the car for 7 hours to get to my specialist appointment and that has made it go like mad!!!! - has anyone heard of any connections with stomach problems and urticaria - I seem to get bad diarrahoa when i have a bad attack and it all started when i had a sickness and diarrahoa bug in December 2006. Does anyone have a link with periods? I have a lot of periods and have endometriosis and polycystic ovaries and wondered if anyone had the same and had urticaria - people with this terrible disease need to keep finding out more information as I do believe there is something that causes it - whoever finds it could become a millionaire! there must be more to life than taking drugs which in the long run will cause something else!!!! Any suggestions or comments welcome - all the best to all you itchy and scratchies out thereXXX
I also have both, chronic urticaria, and delayed pressure urticaria(dpu). I have had this condition for over 6 years, my dpu has lightened up, but i think it is only because I know how to manage it better, such as no exersize, and no heavy bags, etc.. My Urticaria has not gotten any better, but in the summer time it does lessen, I also had endometiousis(?) , and horrible cramps but this has happened to me since I was 14, I am now 27, I am not sure if it is related, never gave that any thought. But here's a wacky idea, every time I drink alcohol , the next morning i wake up with less hives. I have noticed this for the past month its so crazy, I know, I am going to post a more detailed blog later, so look for that
take care and good luck
After suffering with DPU for 20 years, I was diagnosed with H Pylori. After taking the meds and testing H Pylori free, I am DPU FREE for almost a year now. I cannot begin to tell you how much better my life is!
After suffering with DPU for 20 years, I was diagnosed with H Pylori. After taking the meds and testing H Pylori free, I am DPU FREE for almost a year now. I cannot begin to tell you how much better my life is!
I wonder how you are getting on now that it is one year later. The only tablets I have currently found for this condition that help are Levoceterizine 5 mg (Zyzal). However, they were not available in my local chemists when I went for my last prescription. Strangely I have had many of the other problems you suffered and I am still suffering from the urticaria 47 years later. I always blamed the contraceptive pill for starting my problem but it could have been the stress caused by getting married and moving away from home. Good luck with your problems.
Hi! My symptoms get worse during my period. I also get shaky and sometimes even pass out when I have bad outbreaks. I don't have pcos or endometriosis and I don't even have bad periods, but I do get angioedema during every period. My Dr. suggested the fluctuations in hormones causes the flare ups to get worse. She wants to put me on birth control so I'm not fluctuating as much but, i don't want to do that just yet. Good luck!
I also have chronic spontaneous delayed pressure urticaria and chronic oedema. I get diarrhoea, stomach pain and I did have heavy periods which they said possible endometriosis. Due to this I had a hysterectomy. I react terrible to heat and since I have had this condition it has ruined my quality of life including my job. I'm due to have a biopsy on the bowel next week but who knows what the outcome is.
I pray everyone under this post is cured of this illness. The levocetrizine and plaquenil combination alleviated my symptoms and allowed me to enjoy life again
In addition to lots of prayer to Jesus
Hi, have you tried going gluten free? I did and my symptoms disappeared within two days. If I eat any food which contains gluten the symptoms return. I'd rather be gluten free though.
I have dpu and went gluten free which cleared my symptoms within 2 days. As long as I stick strictly to a gf diet i am fine but if I have any food which has wheat in it the symptoms return.
I have dpu and went gluten free which cleared my symptoms within 2 days. As long as I stick strictly to a gf diet i am fine but if I have any food which has wheat in it the symptoms return.
Hi, have you tried going gluten free? I did and my symptoms disappeared within two days. If I eat any food which contains gluten the symptoms return. I'd rather be gluten free though.
Hi, have you tried going gluten free? I did and my symptoms disappeared within two days. If I eat any food which contains gluten the symptoms return. I'd rather be gluten free though.
Hei,
I understand you I had the same 5 years ago, do you ever hear about the transfer factor????
If you try it, you will never let it go !
Hi John
Interestingly I am also gluten free but it hasn't cured my symptoms which have affected me badly all my adult life. I take Levoceterizine 5 mg daily and that almost keeps it under control. The urticaria gets into my joints which is very painful as well as the soft tissue. I am glad you are feeling better.
Hi Roxana
I must admit I have never heard about the transfer factor and will see if I can find out anything about it. How has it helped you? Thank you for writing as I am still looking for a cure.
I have had a quick look and was a bit concerned about it saying it’s possibly safe. Something about diseases that come from animals. Don’t think I will be trying it any time soon. Unless I’m getting it completely wrong.
Hi John,
Can you please further explain your symptoms before they subsided?
Thank you.
After standing for a short period of time or walking, the pads on my feet became swollen and painful about 6 hours later. The same with my finger end pads and the pad at the base of my thumb once again about 6 hours afterwords. Usually from using garden tools, screwdriver, power tools etc.They remained swollen and sore for about 48 hours after which time they became normal. Whilst the were swollen I would suffer occasional sharp stabbing pains similar to peripheral neuropathy (my father was diabetic so I knew about that). After an episode I would feel drained and tired. At the initial onset the left side of my tongue swelled up one morning and after about 30 minutes started to go down but the right side then started to swell. on another occasion my lips swelled but this was in the early days. I also had marks where a nurse held my arm whilst taking a blood test when I had the initial bout.