Long story short. 24 yr old female. I am under a neurologist. I had a lumber puncture 4 years ago to release some pressure. In February at a review I was prescribed topiramate 25mg. So far so good. Probably mid August book them came back with revenge but not my normal kind of migraine pain. It eases after a week. I have had this one for for 5 days. I have lost the hearing in one ear. One eye is Larry than the other and is all red and blood shot. The pain in on the top on my head ( crown on my head) and behind my eyes and all down the right side of my face. I get weird tingling in my right arm and I get a weird sensation in my hand. All i am doing is sleeping and I'm waking up with a worse migraine. I am not taking pain relief due to other Health conditions. My GP won't do anything. Can anyone please suggest something I can do or has anyone experienced these kind of migraines?
I get similar but not for as long usually 3-4 days and doesn't affect my hearing. I cant get pain meds either, neurologist says just give into them! Sorry this wont help you. X
Hi Amy,
It could be Hemiplegic migraine when you feel tingly or numb down one side of your body, I get this.
Ask your Neuro if you can have Botox and see if GP or Neuro can prescribe flunarizine, These are both treatments for Migraine anyway so whatever type you have they are good.
You sometimes have to nag and nag your GP to get anywhere. They dont always take people seriously.
Good luck Amy and take care.
Keep in touch, we respond to people.
Best wishes
Awful aren't they. I can't eat. All I want to do is sleep. I feel so nauseas good job I have anti sickness tablets in the house. I just can't lift my head off the pillow. Pharmacists are saying go the walk in, some people are saying ride it out. I'm stuck on what to do it's so painful I just want to sleep it off but I know it will wake me back up later on x
Hi, have you tried botox? If so did it help? X
Thanks for responding. Tell me about it I rang everyday at one point and all they prescribed was sumatriptan or rizatriptan and they didn't work. It's awful the pain but I am not due to see neurology until February and they can't see me sooner I called up today. All they can do is change my tablets. They sent a fax to my Drs so my dr will pick out a new medication for me. I wasn't sure if the pain was from a head injury I head a month ago as I've not been right since but my dr isn't convinced it is
Hi Babs,
Yes I have Botox and for me it has been great, I can recommend it.
Do you have Botox?
I am so sorry to hear about your pain. Mine is very similar, minus the blood shot eyes. .. (partial hearing loss as a young child, but probably unrelated. ) i was diagnosed with hemiplegic migraines & it effects one side, tingling sensation. ..stroke like symptoms & also resembles ms. I took topiramate for a while, it didn't prevent my more constant episodes. I was on 2000 mg of Depakote for 2 years in the beginning, but side effects were severe.
I would suggest that you take Xtra vitamin D, B, & magnesium, & find what foods trigger your migraines. God bless you, & may you find relief soon.
I had them a while back but they didn't help. I then tried acupuncture and and after about 6 sessions we give up on that too. We did consider hypnotherapy but I haven't gone that far yet x
Yes I get this. It is associated with auto immune disorder. Anyone with these type of migraines should consider this as a cause.
You also mention a lumbar puncture to relieve pressure....was that raised intercranial pressure? You should really be reviewed to see whether you have an auto immune related illness.
Do you have any other health problems....gastro intestinal issues or joint pain....any flushing in the face or torso or anything like that? Any heart palpitations or chest pain?
Hi Amy,
Now you mentioned head injury, this could be contributing to your issues. What my GP always says to me is if I have an attack to call an ambulance and explain all your symptoms, not just you have a headache as they will not listen to you. Have you had MRI or CT scan?
I've not heard of depakote before. I have been keeping a food diary for the past 6 months as I am under a gastroenterologist anyway. I have to be careful with extra vitamins as I have vitamin injections every 3 months as I am deficient and my gastro meds can sometimes react to certain meds.
I've not tried Botox yet as not approved where I live yet but hopefully will be within the next few months. Does it help with Aura too or just pain?
Interesting Margaret, I get chest pain but its put down to HB and stress which also bring on migraine. X
Hi. I am under gastroenterologist for investigations. They thought crohns but we are still not sure. They are saying IBS-c for now. I have pains in my legs especially if I walk far distances. I am on propanolol for my heart rate/pulse as it was hitting 130. I am not too sure what the pressure was as it was so long ago but it wasn't significantly high just a tad but up. I am b12 difficent. A walking disaster as some people like to say as they don't understand
Chest pain is all part of HM, I have noticed I get this ever time I have an attack. Its not stress
My last brain MRI was 4 years ago they've never done a brain CT scan. All my obs have always been fine
I have had three heart attacks but my heart is supposedly healthy. How is auto immune checked and what is the treatment?
It is designed to help prevent all the symptoms, so you should think about trying it when it becomes available, or get a transfer to London and see my Dr at the nationa neuro hosp. You have to be assessed first, but normally no problems
The only chest pain I get goes towards my armpit and my GP always says it's stress or part of an anxiety attack