Has anybody regained the sensation in their feet after being diagnosed with neuropathy?? I can't detect temperature and feel like my feet are dead. I'm only 20 years old. I can't live like this. I'm depressed and honestly can't see myself living through this.
No cure for PN I have small fibre neurophathy chronic ask your doctor
To get you too see a pain management doctor who will work with you
With what drugs you can take and how to manage the pain
I use slow released tramadol and gabapentin plus lidocaine patches for my feet
They work very well.
I also can't detect any temperature in my body I am always cold same with my feet
Only had this disease a year I'm no longer working because the pain is also in my hands can't feel the
Pedals on a car
To beat depression I keep my mind busy listen to music or read a book
I also play the guitar but that's effected by the carpel tunnel in my hands
If you are in the UK
Ask too see the top specialist on PN he's in oxford I spent a day with him having tests
Done plus DNA done
Its a horrible life lone disease try and be positive attitude towards this illness its not easy I know
I am 45 and feel my life is over
Hi Mia,
I am sorry you are having such a hard time, you are very young to have to deal with something as challenging as neuropathy.
Do get yourself properly checked by a good doctor. Use the pain relief you are offered. The medication can take a while to work, and the side effects can be difficult at first but as your body adjusts it all becomes easier.
Depending on where the nerve damage originates a doctor can advise wether physio, Pilates, yoga or similar may help.
And finally I do understand how terribly life changing a neuropathy diagnosis can seem - but truly much can be often be done to help. Give it time. Get all the medical help you can. And tell your doctor how desperate you are feeling, there are organisations to help with that too.
Best wishes,
Rebecca
I also have severe nerve pain in my foot (cronic regional pain syndrome) currently on morphine to control the pain, but after seeing a consultant at Walton neurological centre in liverpool, they are putting me forward for spinal cord stimulation operation to try and reduce my pain. Try and get an appointment with a pain management consultancy and see if there may be a way forward for you. I feel for you I know exactly how it's affecting you. best wishes wayne.
mia, please don't give up. You can live thru this. You will learn and adjust. I know it's harsh at first. The reality of having a medical condition. It's upsetting, I know. But you will adjust, and come into acceptance of it. Just remind yourself everything will be ok. You can do this today, sometimes we can't handle if we look to the future of being this way. Just focus on today. Ok that's my pep talk, lol.
I developed neuropathy after being in a coma for two weeks. Talk about the future looking bleak. I couldn't even turn over in bed, let alone walk. I soon worked my way up to it. The neuropathy sucked once I was up and around, because it was so painful to be on my feet. I used to love to walk. I still do, just cannot go for a long time. I have to measure out my energy and pain.
I'm a nurse, So I really love learning about the human body and conditions. Unfortunately, I didn't find very many answers. This is what I learned.
The nerves, have synapses that connect them and relay messages on what to feel, like pain, warmth, cold. It's like a rope cut into 10 pieces, then the way the connect is by a spark one piece to the other.
In neuropathy, the ends of the ropes get frayed. And the spark is misfiring. Sometimes the wrong informing is being relayed. This is why we get spark of pain, or feel cold, and feet are warm to touch, ect.
The doctors have told me that damage to mine is done, permanent.
But there is allot you can do to help arrest this process. The main thing is good circulation. Do anything you can to do that. Exercise, don't smoke, I do foot exercises. I do yoga to teach my body to balance. Try and be just as healthy as you can. Exercise helps with those feel good hormones, endorphins, this will help with depression too.
Get on with your life. Don't let any physical condition keep you down. Be the success person. Hardly any one knows I have this condition, because I refuse to let it define me. Life doesn't happen to me, it happens through me. I decide what my day will be like. I make and keep plans.
For example, I went to Disneyland yesterday with my hubby and nieces. We had a great time, but after 3 hours I was ready to go, and that is fine.
Don't be hard on yourself, we are all learning and growing along the way.
Take care today and do something for YOU. spoil yourself. Get a pedicure, foot massage, ect.
Thank you for the support! However, I'm in college and in a sorority...all my sisters drink and party and I'm scared I'll never be able to do that. It makes me feel so alone and weird
Hello there I'm new to the site, I've been prescribed amatriptyline 10mg for a burning/numbing/ disabling pain in both my feet I've had lots of blood tests an X-ray plus recently a nerve conduction test, for a possible tarsal tunnel diagnosis, witch I am awaiting results, The pain is worse when I'm at work placing pressure on my feet!! It's almost disabling very scary!! I'm scared I won't be able to work anymore! And these tablets are not exactly making me feel great! I'm worried for my future, and not sure weather to carry on with the amitriptyline or not. Will it be a cure or just a pain reliever!!! So Will I end up on it forever, if no cure is found for my burning feet, would like to talk to someone who has same problems?! Thank you :-)
Yes, I feel for you. I know it's very painful and debilitating. I'm on nortriptyline for it. And pain meds. These keep my pain under control so I can work. As of yet, we just treat the symptoms. Hang in there..
Do you think amatriptyline is right for this issue as I'm worrying if it's the right road to go down!!! Thank you for replying, I feel like I'm letting everyone down. By just not being able to do anything!! Thankyou
I feel the depression as well. It may sound to a degree kind of funny but if I'm out and about I'm actually kind of jealous of people who can wear shoes. I'm relegated to Crocs and flip-flops
I luv crocs now
unfortunatly the amitriptyline wasnt for me, didnt manage longer than 2 weeks on the medication, i really did try but the side effects just completely out weighed the burning pain in my feet, and i had a bad reaction that ment me being rushe dto hospital, witch is a real shame because i was desperate for releif, debaiting looking in to accupuncture but i dont know if there will be any benefits for neuropathy pain!!! any one tried this?
I've tried acupuncture for about six months. This has shown to work for some people, but it didn't for me. Ted hose work for Mr when at work, they seem to help the pain. There is also a cream my friend gave me, it had like toradol and other pain med in it, this would help also when in extreme pain.
thanks tricia, yes im running out of ideas at the moment the pain in my feet just keep worsening. so ill try anything, going back to see my nerve conduction results next friday, hopefully they shine some light on my nurning pain! what did you mean by ted hose? and was the cream perscription, im due back at work tomorrow and im really dreading it, i know the pain will be unbareble, but i will have to try make it through!
Oh God, the dread of working. At the TED hose you can go to a pharmacy or a pharmacy supply house and they are white or black and they go on your feet and legs or some go up to your thighs and they hold everything really tight and this helps with circulation and swelling so it helps with the pain. I've had the nerve conduction test and all it did was confirm that I have neuropathy. The cream is a prescription so maybe you can ask your doctor to prescribe it for you it's a cream that the pharmacy mix up and they put medicine in it and it's topical and it is not absorbed into your system so it won't affect your liver or anything. It is used for muscle pain but it really helped on me for my feet. What kind of job do you have?
The label is gone, but they're is tramadol inn it, I can't remember the other two meds in the cream. Tramadol taken inn pill form helps with the pain. So does Mobic, that has helped me the most!!
Ok thanks, that cream sounds pretty strong then, with tramadol in it, I'm an engineer running machines so I'm limited on the medication, I can take, but the pains at it's worse when I have big safety boots on and have to do lots of standing up, as you can imagine!!! I've been given a chair but once the feet are irritated, that's it chronic pain, there on in!!! Yes they reckon I could have tarsal tunnel! But it seems to change everything time I go, getting burning radiating both of my legs too now, so I really just do t know!!!
Ok I'm a nurse so I understand. If you can get expensive foot insoles. I paid about $50, the are called Super Feet. They help. The foot cream is not systemic, so it's not absorbed in your blood. If you are able to sit, try and cheat and put your feet up, I use a stool. This helps immensely. When your not at work, get home. Slather your feet in cream, put them on pillows. An usually hard day at work, I need to stay on the couch all day.
Luckily my family doesn't mind, because they know I'm in so much pain. I don't even want to eat, cause the pain makes me nauseated, my husband will make dinner for me.
The last thing, and the most difficult was, is, taking care of myself. Like we can go to Disneyland, but only for a few hours. After grocery shopping at Costco and Stators I'm done for the day. Pretty much I'm done by 11am, unless I'm working. Do I tell people this, if we are going to visit, it Has TO BE Morning.
This is with many years of practice.
Let me know if you have more questions. We are all here to help each other through this journey
hi,
i cant really help you because i not a practitioner, but i can only tell you what help`s me. i have been in the same position as you since the year 2000, the thing thats help`s me the most after a lot appointments in pain management for this condition, i ended up up by taking gabapentin tablets daily and also a patch that stick`s on my body just like a large sticking plaster called.
transtec
70 micrograms/h
transdermal patch
buprenorphine
which i believe is morphine based, i change this patch every other 3 days. it doesn`t entirely stop the pain, but it makes life a lot more bearable. hope this help`s you, all the best.
There is evidence that tadalifil helps with CRPS pain. Tadalafil is also known as Cialis. Weird. But there are scholarly articles out there regarding the subject.