daughter recently diagnosed with SOTOS syndrome!

Pregnancy
1

My daughter was recently diagnosed with SOTOS syndrome, I have researched it online, but is there any help available to myself and my daughter. She is the only known case EVER in northern ireland

HELP

2

Hi lisaolivia,

You may wish to have a look at http://www.childgrowthfoundation.org/ - this site contains information on SOTOS and offers support.

3

Thankyou for your reply, I will have a look at that

4

Hi,

I've just came across your post here and just wanted to say I also have a daughter with SOTOS and I am from Belfast. She was diagnosed when she was 2 that was last year.. If you need any advice I will be happy to help you in anyway.

Regards

Colleen..

5

Hi Colleen, great to hear ur from belfast do u have a facebook and would you mind if i added you to talk more about the kids

6

Yes no worries Lisa search for Colleen Mc Connell, ive got red hair if it helps you find me lol.

Look forward to hearing from you.

x